Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wierd Symptoms In My Otherwise Normal 4 Year Old


dylansmama

Recommended Posts

dylansmama Newbie

My 4 year old started throwing up a couple times a month for the last 2-3 months, wether its a gag reflex or a flu bug were not sure, but we took him to the doctor and he suggested since the things he was eating at the time were starchy/carby type foods (in addition to meats and veggies) he wanted to test for celiac, the test came back normal hemablobin (sp?) and negitive for celiac. but i look on you site and i think, well why is he vomiting now? he has a little rash on his cheeks which we thought was from out woodstove drying him out, we use baby oil and its better, but also tummy aches when he was on omega 3 (2 of the vomits were during this time)so we stopped when he said his tummy hurt, now thats all better. But he still wants us to have an upper gi done, and were not sure? to put him thru sedation and hours of testing when the blood came back normal. hes 4 in april 50 pounds 45 inches tall and more active that ive ever seen a kid, he doent want to sleep more than 10 hours a night wont take a nap and eats everything in sight, both fruits veggies bread meat etc etc etc. so im not sure what to do? Is it something i should help him thru just in case or unnessessary discomfort for a kid? super conflicted, any advice would help! thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

The ped. gastro. should have told you the list of suspect issues that the endoscopy is being done to rule out or diagnose.

From what I can remember...

Celiac Disease

H. Ployri

Eosinophilic Esophagitis

Yeast overgrowth/thrush

malformation of the upper digestive track

parasite infection

The doctor MUST take biopsies! More than one biopsy even if is "normal" looking tissue.

You need to talk to your child's doctor and reach a comfort level of understanding. You can do some preliminary research on these suspect causes. (It won't make you more comfortable but you will have more of a game plan if the time comes for one of these diagnoses.)

My daughter has both Celiac and EE. If you have any further questions you think I can help you with, feel free to contact me.

Laura

dylansmama Newbie
The ped. gastro. should have told you the list of suspect issues that the endoscopy is being done to rule out or diagnose.

From what I can remember...

Celiac Disease

H. Ployri

Eosinophilic Esophagitis

Yeast overgrowth/thrush

malformation of the upper digestive track

parasite infection

The doctor MUST take biopsies! More than one biopsy even if is "normal" looking tissue.

You need to talk to your child's doctor and reach a comfort level of understanding. You can do some preliminary research on these suspect causes. (It won't make you more comfortable but you will have more of a game plan if the time comes for one of these diagnoses.)

My daughter has both Celiac and EE. If you have any further questions you think I can help you with, feel free to contact me.

Laura

thats just it thought, we havent even been to the ped. gastro. doctor, were just going off our visit to our normal pediatrician and havent gotten our questions answered or even feel justified in taking him to a gastro doc. Were not sure its even nessessary!!! Just thought it was a super long shot to do the upper gi, no one even mentioned a biopsey, they just took blood said it all came back normal but still wanted to do the upper gi with small bowel follow through. dont know what the deal is just know he doesnt seem like its that serious until he scared us with this whole gi thing! thanks for the advice but im still confused!!! :huh:

mommida Enthusiast

Get a refferal to a Pediatric Gastroenterologist.

Start a food journal. This could be a food intolerance or allergy. Delayed food intoleranc or allergy can be VERY difficult and expensive to figure out. Get some practice reading food labels and determining what your child is eating.

Gluten has over a page of words that mean Wheat, rye, and barley. We also know that oats are too cross contaminated to eat in the U.S. Some Celiacs purchase specialty "gluten free" oats.

  • 2 weeks later...
dmmcleod Newbie

Have you researched Gastroparesis? You have to have a delayed gastric emptying scan for this. Sounds very possible.

Genna'smom Apprentice

Hi

I just wanted you to know that blood work can have false negative and your child could still have celiac disease. I have an almost 3 yr old who every blood test came back normal and negative but when she finally ended up in the hospital because she just stopped eating and drinking they decided to do an endoscopy and biopcies to rul out all the things mentioned above. Well guess what it came back positive and she is doing better - slow but better. She really had no symptoms of Celiac's at all so we were not convinced but the proof is in that she is eating again and she is starting to gain weight again and grow again.

ULTIMATELY - you have to follow your own mother instincts...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748

    Sally Garber
    Newest Member
    Sally Garber
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.