Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Deficiency

diannalynn0711

Recommended Posts

diannalynn0711 Rookie
diannalynn0711
Posted

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elonwy Enthusiast
elonwy
Posted

I take Nature Made Liqiud softgel Vitamin D. Says gluten free right on the bottle. I too am super low in vitamin D, as I never go outside, and all the food that is fortified with it is cereals and bread and gluten things I don't eat.

diannalynn0711 Rookie
diannalynn0711
Posted
  • Author

That's the same situation that I am in. With being lactose intolerant, I can not have milk to get a lot of vitamin D like everyone else. It has been so long since I have looked for them that I am not sure which ones to look at and all I have around here is a walmart. I am willing to drive to get any supplements since I know that I need them.

Where did you buy your supplement at?

Thanks :)

Bosque Rookie
Bosque
Posted

I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

elonwy Enthusiast
elonwy
Posted

I bought my vitamins at Walgreens. Taking the vitamin D has caused a drastic improvement in my health.

chatycady Explorer
chatycady
Posted
I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

Freeda vitamins - online is where I purchase mine. It is gluten free, lactose free, starch free, etc. etc. etc.! Shouldn't cause you any trouble. I didn't any any luck with purchasing them locally. THey all have something in them that I react too. Good luck!

diannalynn0711 Rookie
diannalynn0711
Posted
  • Author

Thank you so much for all your information! This really helps! I decided to not go back to the doctor that did the tests because he wasnt at all familiar with the disease. So I'm on my own with finding the supplements. Thankfully I have a wal-greens where I moved to recently!!! That is a relief.

Thanks again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daveray Newbie
daveray
Posted

Hi

I have had both low levels of both vitamin D and Folic Acid. I bought supplements at Trader Joe's. They were very helpful and have a large list of gluten free products.

Good Luck

l

I recently had my doctor order a series of blood tests. I've been gluten-free for 5 years going on 6. When I was first diagnosed I had really low levels. They seem to all be fine now, but my Vitamin D and Folic Acid are low now. When I was diagnosed we went through a lot to find out which vitamins were gluten-free and which ones had the right dose. It has been so long since I have had to take any vitamins, I'm not sure which ones are gluten free anymore and if I can get these 2 on their own. Ive tried a multi-vitamin and had a reaction to it, so I am afraid of taking those again. :(

Does anyone take these supplements, what brand and what store did you get them at?

Thanks. :)

pele Rookie
pele
Posted
I was just tested last week and was found to have a low D as well. My doc prescribed 50000 iu of D once per week for 12 weeks, then a retest. I forgot to check with the pharmacy if the script was gluten free!! :o

Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

mushroom Proficient
mushroom
Posted
Those prescriptions are for D2 which may not stay in the body long enough to help. My friend was just retested after a year on 50,000 units of D2 weekly, and her Vit D level was still extrememly low.

The non-prescription Vit D is D3. It is available over the counter at pharmacies and natural food stores in 5000 and 10,000 unit capsules and drops, and is usually gluten-free. Getting out in the sun works, too!

Here is a link to a journal article about D2 and D3.

Open Original Shared Link

This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

pele Rookie
pele
Posted
This post confuses me greatly. It was and is my understanding that the over-the-counter Vit D is D2 and the prescription kind, the kind you need, is D3, cholecalciferol, which is what my doctor has prescribed for me. Maybe it's different where you're from.

D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

mushroom Proficient
mushroom
Posted
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

ang1e0251 Contributor
ang1e0251
Posted

I also take fish oil for Vit D. We buy it at Walmart or Sam's.

SimSabalim Newbie
SimSabalim
Posted

I take two Carlson Solar D Gems 4000 Iu daily. I've had really good results with taking high doses of vitamin D; approaching 10,000 Iu.

pele Rookie
pele
Posted
My doctor said she was prescribing D3 for me as the over-the-counter kind did not work, and it says Cholecacliferol Strong 50,000iu on the bottle. I rechecked the article you referenced and here is a quote from it:

"The project was conducted during the month of July, 2003. Subjects were randomly assigned to receive 1) no supplement (the seasonal effect, control group), 2) one tablet labeled to contain 50,000 IU (1.25 mg) ergocalciferol (the vitamin D2 group), or 3) 10 tablets labeled to contain 5,000 IU (125

  • 1 month later...
Roda Rising Star
Roda
Posted
D3 is the over-the -counter kind. D2 is prescribed by (some) doctors. D3 is the kind that works. D2 does not. Ask your pharmacist what kind you are taking. I wonder which kind produces the most profits for drug companies!!

I do understand that the D3 is a more bioavailable form of vitamin D. I have been taking the prescription which is classified I believe as the D2 ergocalciferol. I have been taking one 50,000 iu capsule a week since mid January. I just had my levels checked again in April. My levels went from around 17 to mid 40's. So yes for me it has worked. I am going to finish out the rest of the script and then probably maintain on an over the counter D3 supplement of about 1,000-2,000 iu daily.

mushroom Proficient
mushroom
Posted

I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Roda Rising Star
Roda
Posted
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

Amen to that! :P

Roda Rising Star
Roda
Posted
I read just the other day (sorry I can't give a reference--think it was on Yahoo news ) that the "experts" have now reached the conclusion that D2 is just as good as D3. :huh: I just wish they'd make up their darned minds.

I googled this and found the article. Here is the link. It tells you at the end which journal it was published in.

Open Original Shared Link

mushroom Proficient
mushroom
Posted

Thanks for doing the leg work on that Roda. I guess I was too tired (or too lazy!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748
    Rrenee2990
    Newest Member
    Rrenee2990
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.