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I Have Good News Regarding My Plight

UnhappyCoeliac

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UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

Hello! If anyone remembers this thread:

https://www.celiac.com/gluten-free/index.ph...mp;#entry519602

I was not only Unhappycoeliac but angry one to. Anyone after reaching my wits end of the 'am i doing good' and im i doing bad scenario I vowed to get a blood test. Which I did and I got the results just now and basically everything is healed on well on the way

B12.VitD, folate, thyroid function,calcium, other stuff I have no idea about

Where all basically stuffed as of July last year when I was diagnosed.

I can happily report these are all now normal and I am pumped. My doctor was quite happy and mentioned it shows I had been making an effort I am effectively nutritionally healed of this disease and continuation of the gluten free diet will see the anti bodies go down.

That is the bad the anti bodies where both over 130 at diagnosis and now one is

40 and is 53. They both however need to be under 20.

I am very happy I am healed and most definitely continuing a gluten free diet.

For the battlers out there I have struggled immensely i love food, i suck at controlling temptation and in social situations and other situations I have simply given in. The important thing is getting back on the horse though.

I have maybe had gluten up to 5-8 times (minuscule amounts) in the last 3 months but have managed to recover nutritionally. Once the belt is tightened I will also get the anti bodies down.

Anyone I also coined up my new motto while passing time in the doctors surgery and that is

"if Nutritionally sound coeliac represents just a diet, if not it is a disease"

Anyway all of my 70 or so posts have been mostly getting help and being angry so im glad to post some good news. I think everyone here is really tolerant and i appreciate the mods always moving around my threads and stuff :)

My doctors words on my stuff ups where 'the blood test represent mostly an adheral to the gluten free diet over a long period of time.

And it hasn't been that long even 3 mths ago I was still in shambles not even knowing lollies etc had gluten and actively eating them. Done ranting now I am really pleased. In 3 mths i go back for another test.

I ironically two of my liver enzymes are above what they should be and I have to get a cholesterol test that is the bad news to much fatty diet the doctor suspects

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mushroom Proficient
mushroom
Posted

Good for you! You *sound* ever so much better. We will always be here to keep you on track :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted

This is great news!!!!!! I am so glad things are looking up for you and that you have been able to get a good amount of healing in a short time. Don't go dropping those supplements yet though. :)

flourgirl Apprentice
flourgirl
Posted

This is good news!!! So glad you have something positive to feel good about, a reward for you efforts. It makes it easier to do what you need to do when you can see some results. There is always someone here for you.....which I'm sure you've discovered. Some of us read along, answer sometimes, but not always. Wish you great luck in your continuing efforts.... :)

ang1e0251 Contributor
ang1e0251
Posted

That is great news! You might not know but I think about those who are struggling. I'm always sending prayers your way and hoping that you are working your way toward good health. I'm so glad to hear of your improvement. Kudos!

RiceGuy Collaborator
RiceGuy
Posted

So glad you're doing better! That is wonderful news, and your encouraging words will help others who also struggle.

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

Yeh i am getting the hang of it need to get more fruit and vegs in my diet though.

If i understand right alot of the probs with coeliac is due to nutritional deficiency which I no longer have so I am good about this.

Positive I only had celiac for 2-5 mths before diagnosis too at 21. So im in good set if I am still kicing at 80 this will be easier to managae i guess.

There is a vaccine in stage 3 process at the Melbourne hospital atm things will get better in 20 yrs or so i hope

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GottaSki Mentor
GottaSki
Posted

That is wonderful news...thanks for sharing!

caek-is-a-lie Explorer
caek-is-a-lie
Posted

Good for you! Keep up the good work! I think it's normal to be angry for a time about this. I mean, it's not fair, is it? And it's all up to us to eat right but the world makes it so hard to do a good job at staying gluten-free. I used to get angry at myself for accidental glutenings, but I think I'm starting to accept that I'll have no control over it sometimes and, despite my best efforts, it's still going to happen on occasion.

DakotaRN Newbie
DakotaRN
Posted

I'm happy for you. Good job!!! :D

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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