Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Explain Illness To Kazakhstan/russian Friend?


NDM123

Recommended Posts

NDM123 Newbie

Does anyone have any site (I am going to print it) I can give a Russian friend (actually she is from Kazakhstan), that will explain Celiac/Dermatitis H in Russian language? It will be easier for her. I'm looking for something short and sweet? So she actually reads it. (No matter how I explain it in English she just thinks I am being crazy, on a diet (well yes but not like she thinks), or silly?

"You need bread sometimes." She shakes her head at me still.

We have tried explaining it as being an allergy, damaging my small intestines, ect... but nothing is working. She doesn't understand this is serious (she just learned English, doesn't understand words fully yet), keeps trying to get me to eat products (candy, ect) with wheat flour and doesn't understand me. I hang out a lot with her lately. I adore her.

And when we go out to eat, or she wants to cook (bless her, I swear I try to be not picky!), she thinks I am being a pain in the a** I am sure. I tell her potatoes, rice, corn... for a grain.

She doesn't know what gluten or products with wheat are (or flour even). And I don't think she should have to bc it is my illness and I feel bad enough already I have restrictions, but it is frustrating her bc she does not understand me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crystalkd Contributor

Find a description you like and copy it into babelfish. It's a yahoo service that translates. Maybe that would help?

ive Rookie

I can understand your friend, I am from Belarus (another ex-USSR country) and everybody I know has never heard of celiac disease / gluten intolerance there at all. Bread along with dairy are staple foods in Russian diet and culture. I live in Canada and I am intolerant to both gluten and dairy, so I actually dread my upcoming trip to visit my parents...

Here are some links that might help.

Open Original Shared Link - What is celiac disease?

Open Original Shared Link - What is Dermatitis H?

Open Original Shared Link - The list of allowed and prohibited food on gluten-free diet

Open Original Shared Link - Some brief rules to prevent cross-contamination

The first 2 links are not very good, unfortunately these pages were translated from English to Russian and were not edited properly, but it's easy to understand, Russian is slightly broken there. The 3d and 4th links are from the St Peterburg Celiac Society.

Unfortunately there is not a lot of information available on the Russian internet about celiac disease.

My husband is from Belarus as well and he tested positive for gluten intolerance as well. Here is a document that I prepared for my husband's parents when he went to visit them this fall. It explains what celiac disease is, where gluten can be found and how to prevent cross-contamination.

Диета без глютена и как предотвратить попадание глютена в еду

Целиакия, или непереносимость глютена - это автоимунная болезнь, часто передается по наследству. Вкратце - протеины пшеницы, ржи и перловки не усваиваются организмом и организм начинает атаковать свои же клетки, обычно кишечника, однако зачастую бывает, что поражен другой орган. Очень часто целиакия / непереносимость глютена проявляется наряду с другими заболеваниями, в частности, автоиммуными болезнями (люпус, артрит, диабет) часты случаи поражения щитовидки, нервной системы. Если этот диагноз игнорировать, то он нередко приводит к раку желудка или кишечника. Это заболевание не такой уж и редкое, но к сожалению, очень много недиагностированных. В России / Беларуси об этой болезни совсем мало что известно и естественно, диагностики тоже практически нет. Это не значит, что она не распространенна, это просто значит, что диагностика совсем не развита. Считается, что в Северной Америке целиакией болен 1 из 100-133 человек и только 3% из них продиагностированы.

Симптомы могут быть очень разными. Основные симптомы заболевания: боли в животе, проблемы с кишечником, изменение аппетита, рвоты, отставание показателей веса и роста, боли в костях, самопроизвольные переломы, агрессивное поведение, замкнутость, апатия, депрессивные состояния, кожный зуд, аллергические поражения кожи и органов дыхания, частые вирусные заболевания, анемии, носовые или другие кровотечения. Из редких проявлений целиакии отмечается ожирение.

Глютен

Jestgar Rising Star
My husband is from Belarus as well and he tested positive for gluten intolerance as well. Here is a document that I prepared for my husband's parents when he went to visit them this fall. It explains what celiac disease is, where gluten can be found and how to prevent cross-contamination.

Диета без глютена и как предотвратить попадание глютена в еду

Целиакия, или непереносимость глютена - это автоимунная болезнь, часто передается по наследству. Вкратце - протеины пшеницы, ржи и перловки не усваиваются организмом и организм начинает атаковать свои же клетки, обычно кишечника, однако зачастую бывает, что поражен другой орган. Очень часто целиакия / непереносимость глютена проявляется наряду с другими заболеваниями, в частности, автоиммуными болезнями (люпус, артрит, диабет) часты случаи поражения щитовидки, нервной системы. Если этот диагноз игнорировать, то он нередко приводит к раку желудка или кишечника. Это заболевание не такой уж и редкое, но к сожалению, очень много недиагностированных. В России / Беларуси об этой болезни совсем мало что известно и естественно, диагностики тоже практически нет. Это не значит, что она не распространенна, это просто значит, что диагностика совсем не развита. Считается, что в Северной Америке целиакией болен 1 из 100-133 человек и только 3% из них продиагностированы.

Симптомы могут быть очень разными. Основные симптомы заболевания: боли в животе, проблемы с кишечником, изменение аппетита, рвоты, отставание показателей веса и роста, боли в костях, самопроизвольные переломы, агрессивное поведение, замкнутость, апатия, депрессивные состояния, кожный зуд, аллергические поражения кожи и органов дыхания, частые вирусные заболевания, анемии, носовые или другие кровотечения. Из редких проявлений целиакии отмечается ожирение.

Глютен

ive Rookie
You totally rock!!

Thanks, I hope it will be useful for someone :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,444
    • Most Online (within 30 mins)
      7,748

    Aliki
    Newest Member
    Aliki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Thank you so much for sharing your story with such honesty and detail. Please know that you are not alone in this struggle, and your experience, while incredibly challenging, is more common than those "gluten-free miracle" stories on social media would have you believe. It's completely understandable to feel isolated, but your diligence in tracking your symptoms, following up with scopes, and working with professionals is truly commendable. It's encouraging that your villi have healed, which proves you are successfully avoiding the large-scale damage of gluten; however, it's clear your immune system remains in a heightened state of alert. Your intense reaction to the quinoa flakes is a classic sign of this hypersensitivity. Given the reputable brand, it's highly unlikely to be gluten cross-contact. It's much more probable that you are reacting to the quinoa itself—perhaps due to a separate intolerance, its saponin content (which can irritate some sensitive guts), or cross-reactivity, where your immune system mistakes similar protein structures for gluten. Your nutritionist's plan for a simplified, grain-free (except rice) baseline is an excellent strategy. The goal is to calm your nervous and immune systems down completely before slowly testing individual foods, like avocado or even quinoa in its whole form, to identify the true triggers. Remember, healing from years of damage takes time, and setbacks are part of the journey. Be kind to yourself; you are doing everything right by continuing to investigate and advocate for your health. Your path to feeling better may be more complex, but it is absolutely valid.
    • Scott Adams
      When you are first diagnosed it is very normal to feel overwhelmed and depressed about the vast dietary changes that a 100% gluten-free diet entails. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. There are a couple of things that can help you feel like you have "regained control," and the two that I recommend are learning to read ingredient labels so that you can shop with confidence, and the other is learning to become a good cook (if you aren't already). If you can master these two, then you have regained control of your diet, and can eat safely and recover. To help this site has extensive recipes and cooking sections: https://www.celiac.com/celiac-disease/gluten-free-recipes/ https://www.celiac.com/celiac-disease/gluten-free-cooking/ The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.        
    • Scott Adams
      Thanks for sharing this! Bread machines are still the way to go if you want outstanding gluten-free breads.
    • Scott Adams
      What you've described is every celiac's nightmare, and it's very frustrating to be failed by a product that was specifically labeled as safe. It would be great to know which product it was so others here can be warned. Six weeks of inadvertent exposure is a significant insult to your system, and it's no wonder that after two weeks you are still feeling the effects. The body, especially the nervous system when dealing with ataxia, needs considerable time to calm the inflammatory response and begin to heal. It's common for a major glutening to take several weeks to even a few months for symptoms to fully resolve, so be patient and gentle with yourself—you are on the right track. The anxiety and panic are also a very real, physiological part of the reaction for many of us, compounding the feeling of helplessness. What you're feeling is not a step back to your pre-diagnosis state; it's a severe but temporary flare. Focus intensely on the basics now: rest, hydration, and simple, whole foods. You have not undone all your progress. Your body remembers how to heal; it just needs time and a safe environment to do so. You are not alone in this.
    • lmemsm
      Thank you for mentioning that.  My main reaction to gluten seems to be related to the skin and breaking out.  So, I'll definitely take that under consideration when trying to figure out how to better supplement calcium.  I'm trying to use lower oxalate and lower histamine greens like broccoli, baby bok choi, collards and Lacinto kale.  Recently, I've been getting migraine reactions to spinach, possibly from the histamine.  I do use Malabar spinach (not related to spinach) but only a leaf or two in foods and I don't think it has a high calcium content.  I should check into longevity spinach and Moringa again.  Some gardeners in our area grow them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.