Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Explain Illness To Kazakhstan/russian Friend?


NDM123

Recommended Posts

NDM123 Newbie

Does anyone have any site (I am going to print it) I can give a Russian friend (actually she is from Kazakhstan), that will explain Celiac/Dermatitis H in Russian language? It will be easier for her. I'm looking for something short and sweet? So she actually reads it. (No matter how I explain it in English she just thinks I am being crazy, on a diet (well yes but not like she thinks), or silly?

"You need bread sometimes." She shakes her head at me still.

We have tried explaining it as being an allergy, damaging my small intestines, ect... but nothing is working. She doesn't understand this is serious (she just learned English, doesn't understand words fully yet), keeps trying to get me to eat products (candy, ect) with wheat flour and doesn't understand me. I hang out a lot with her lately. I adore her.

And when we go out to eat, or she wants to cook (bless her, I swear I try to be not picky!), she thinks I am being a pain in the a** I am sure. I tell her potatoes, rice, corn... for a grain.

She doesn't know what gluten or products with wheat are (or flour even). And I don't think she should have to bc it is my illness and I feel bad enough already I have restrictions, but it is frustrating her bc she does not understand me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crystalkd Contributor

Find a description you like and copy it into babelfish. It's a yahoo service that translates. Maybe that would help?

ive Rookie

I can understand your friend, I am from Belarus (another ex-USSR country) and everybody I know has never heard of celiac disease / gluten intolerance there at all. Bread along with dairy are staple foods in Russian diet and culture. I live in Canada and I am intolerant to both gluten and dairy, so I actually dread my upcoming trip to visit my parents...

Here are some links that might help.

Open Original Shared Link - What is celiac disease?

Open Original Shared Link - What is Dermatitis H?

Open Original Shared Link - The list of allowed and prohibited food on gluten-free diet

Open Original Shared Link - Some brief rules to prevent cross-contamination

The first 2 links are not very good, unfortunately these pages were translated from English to Russian and were not edited properly, but it's easy to understand, Russian is slightly broken there. The 3d and 4th links are from the St Peterburg Celiac Society.

Unfortunately there is not a lot of information available on the Russian internet about celiac disease.

My husband is from Belarus as well and he tested positive for gluten intolerance as well. Here is a document that I prepared for my husband's parents when he went to visit them this fall. It explains what celiac disease is, where gluten can be found and how to prevent cross-contamination.

Диета без глютена и как предотвратить попадание глютена в еду

Целиакия, или непереносимость глютена - это автоимунная болезнь, часто передается по наследству. Вкратце - протеины пшеницы, ржи и перловки не усваиваются организмом и организм начинает атаковать свои же клетки, обычно кишечника, однако зачастую бывает, что поражен другой орган. Очень часто целиакия / непереносимость глютена проявляется наряду с другими заболеваниями, в частности, автоиммуными болезнями (люпус, артрит, диабет) часты случаи поражения щитовидки, нервной системы. Если этот диагноз игнорировать, то он нередко приводит к раку желудка или кишечника. Это заболевание не такой уж и редкое, но к сожалению, очень много недиагностированных. В России / Беларуси об этой болезни совсем мало что известно и естественно, диагностики тоже практически нет. Это не значит, что она не распространенна, это просто значит, что диагностика совсем не развита. Считается, что в Северной Америке целиакией болен 1 из 100-133 человек и только 3% из них продиагностированы.

Симптомы могут быть очень разными. Основные симптомы заболевания: боли в животе, проблемы с кишечником, изменение аппетита, рвоты, отставание показателей веса и роста, боли в костях, самопроизвольные переломы, агрессивное поведение, замкнутость, апатия, депрессивные состояния, кожный зуд, аллергические поражения кожи и органов дыхания, частые вирусные заболевания, анемии, носовые или другие кровотечения. Из редких проявлений целиакии отмечается ожирение.

Глютен

Jestgar Rising Star
My husband is from Belarus as well and he tested positive for gluten intolerance as well. Here is a document that I prepared for my husband's parents when he went to visit them this fall. It explains what celiac disease is, where gluten can be found and how to prevent cross-contamination.

Диета без глютена и как предотвратить попадание глютена в еду

Целиакия, или непереносимость глютена - это автоимунная болезнь, часто передается по наследству. Вкратце - протеины пшеницы, ржи и перловки не усваиваются организмом и организм начинает атаковать свои же клетки, обычно кишечника, однако зачастую бывает, что поражен другой орган. Очень часто целиакия / непереносимость глютена проявляется наряду с другими заболеваниями, в частности, автоиммуными болезнями (люпус, артрит, диабет) часты случаи поражения щитовидки, нервной системы. Если этот диагноз игнорировать, то он нередко приводит к раку желудка или кишечника. Это заболевание не такой уж и редкое, но к сожалению, очень много недиагностированных. В России / Беларуси об этой болезни совсем мало что известно и естественно, диагностики тоже практически нет. Это не значит, что она не распространенна, это просто значит, что диагностика совсем не развита. Считается, что в Северной Америке целиакией болен 1 из 100-133 человек и только 3% из них продиагностированы.

Симптомы могут быть очень разными. Основные симптомы заболевания: боли в животе, проблемы с кишечником, изменение аппетита, рвоты, отставание показателей веса и роста, боли в костях, самопроизвольные переломы, агрессивное поведение, замкнутость, апатия, депрессивные состояния, кожный зуд, аллергические поражения кожи и органов дыхания, частые вирусные заболевания, анемии, носовые или другие кровотечения. Из редких проявлений целиакии отмечается ожирение.

Глютен

ive Rookie
You totally rock!!

Thanks, I hope it will be useful for someone :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    2. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    4. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.