Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

May I Ask...why No Dairy?


skyyblues

Recommended Posts

skyyblues Newbie

I am new to this and I am doing my best to go gluten free - still need to de-gluten kitchen - and I notice that many of you have also removed dairy. I am still broke out severly on hands but stomach feels better than it has in 20+ years!! It has been 2 weeks and only made 1 big mistake while eating out, which I paid for the next 2 days. I know the skin issues will take some time but wondering if milk and cheese could be doing something I am not aware of. I appreciate all the great info you folks have provided me so far and you seem to have a lot of patience when it comes to answering ?s so thought I would ask. Thanks......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

Hi. :)

Depending on whether or not the villi are damaged it may be more or less easy to digest dairy, for some this changes over time for others not. You may or may not be affected and of course the easiest way to figure it out is to cut it out.

My understanding is that if you cannot tolerate cow dairy and continue to eat it you will continue to feel badly and it will delay the healing process, perhaps someone who knows more can say more.

I have been dairy free for three and some years and every two months or so I try to reintroduce cheese, so far no success. I am able to digest home made goat yogurt though and many who are intolerant to cow milk can handle goat milk.

Here's hoping that gluten free alone will remedy your problems, it does take time. :)

psawyer Proficient

There are two reasons.

First, celiacs with intestinal damage usually have lactose intolerance. This is because lactase, the enzyme needed to digest lactose, is produced in the villi. Until the villi have recovered, an intolerance to lactose (milk sugar) is common. In most cases, it is temporary and goes away when the villi regenerate.

Second, a large number of celiacs are also intolerant to casein (milk protein). This situation is usually permanent.

While there are some dairy products that are lactose-free or very low in lactose, all dairy products contain casein. Hard cheeses are generally lactose-free, as all the lactose is consume in the cheese-making process.

So a common recommendation is to avoid dairy at first. Once you have been gluten-free for some time, try reintroducing dairy.

Welcome to the board.

mimommy Contributor

Many newly diagnosed celiacs are also dairy intolerant, at least in the beginning stages of the gluten free diet/healing process because the villi in the small intestine are damaged. The villi are the finger like projections in the bowel wall that digest and absorb nutrients and become flattened/damaged by the auto-immune response the body creates to fight the toxin (grain proteins). The villi are also responsible for processing the proteins and sugars in dairy--casein, lactose and lactase. Some celiac patients find they can go back to eating dairy later on, after the bowel has healed. It is even a good idea to avoid all dairy products during and after a bout of the "flu" or any intestinal symptom--at least, that's what my doc told me.

Nancym Enthusiast

A lot of people intolerant of gluten also have issues with dairy. It's probably a good idea to at some point eliminate dairy for a couple of weeks and see if it makes a difference in your health.

skyyblues Newbie

Thank you all for the information. I went to the endo doc yesterday. I am scheduled for a endoscopy and colonoscopy on May 12. I cried when I agreed to go back to eating "it". :( I went to dinner last night and started to break out Been in the bathroom twice already this morn and pains are horrible. I am not sure I will make it 4 weeks. I am taking pics so I can show the doc in case it gets to where I can't stand it anymore. I will keep the appt. even if I can't stay on the regular diet just to rule out any other complications. Holding stomach and itching but wish you all a great day!! Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.