Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is With People?


Lexi

Recommended Posts

Lexi Enthusiast

So, I just have to vent for a minute. I went to my in laws for Easter, and there were a lot of my husband's family members there. They all know that I have Celiac Disease (and other food allergies). I usually bring some of my own food to make it easier on everyone. I always bring my own dessert because I KNOW it is safe. Anyway, as soon as I get it out of my bag, everyone starts gathering around me to see what I am eating, and they have to ask 20 questions about it. Also, I feel like everyone is watching me to see what I am going to put on my plate. If I don't take something, they always say "oh, that should be ok for you to eat" because everyone thinks if it doesn't specifically say wheat, then it is ok. It's really getting old!!!!! I'm so tired of explaining it, so I usually just don't say anything - but it's hard to hold my tongue at times. I saw a cute t-shirt online, and I sware I am going to wear it to the next family gathering. It says "Kiss My Gluten Free Ass" - funny!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

they're probably trying to not leave you out, and your food might look really good! :)

reminds me of this weekend - I made breakfast (eight strawberries and two bananas, chopped up, a handful of chopped pecans, handful of chopped walnuts, and a bit of shredded coconut. all topped with hemp milk. quite tasty. my husband - in a friendly tease, not mean spirited at all, called it "freaky hippie granola". :D)

samcarter Contributor

I know what you mean. We were supposed to go to my inlaws' this weekend, for Easter dinner. DH had already told them that we were bringing the ham, because he knows that gluten can hide in seasonings, and I know what to look for.

So my MIL calls me back when DH is at work and says "I was hoping to talk you out of bringing the ham." I told her, very sweetly, that i wouldn't DREAM of asking her to spend extra time in the grocery store reading labels and worrying about whether the company used gluten in the glaze, and that it would make me feel ever so much better about imposing on her with our company if we brought the ham. :D

She also always asks, about a billion times, "You're bringing your own bread, right?" I haven't bothered with gluten free bread in a while. The only good tasting ones are the ones I bake, but it takes for-freaking-ever. I'd rather just use gluten free crackers or tortilla chips honestly. Which I do, which irks her, for some reason, because while everyone else is eating a sandwich for lunch I'm eating tuna salad with tortilla chips. Whatever.

I think she thinks it's like a wheat allergy--my SIL has that--where they just avoid wheat, not barley or other things. Oy.

bigbird16 Apprentice

I like to think it's jealousy, because dang my gluten-free food looks and tastes good! :D

Love the shirt!

SGWhiskers Collaborator

Around my family, the meal inspection and food questions are out of curiosity and conversation. They are curious about what I can and can't eat just like I ask a friend about their new "Raw" diet, or vegetarian dish. (Not that ours is the same thing). It is just different from what I'm used to and I'm curious and fishing for ideas. It is like asking a single friend about her weekend out. Just trying to imagine spicing up my world.

Of course I also get the occassional "I don't know how you do it," but that seems more of a way to end the food conversation than a dig.

Wenmin Enthusiast

I have the same issues, but at work! We get a 20 minute lunch period and I always tend to pack leftovers from the night before in microwavable containers. My colleagues tend to eat those pre-prepared boxed lunches (Healthy Choice, Lean Cuisine, etc). I never ate those when I wasn't eating gluten free. YUK!

Everyday one colleague in particular oogles over my lunch, saying I want what she's having. She even told me she jokingly told her husband that if she wins the lottery, she wants to hire me to cook full time for her family.......Just what I would want to do. I love to cook when I have time....

Consider yourself lucky to have something they all are drooling over!!!

Love the shirt idea.

Lexi Enthusiast

I could definitely relate to what you were all saying. I don't know why it bothers me so much. I do know that people are curious about the foods I eat. But when I do bring a gluten free dessert to a get together, very few people eat it, and there are always jokes made about it (that's just the way my family is). They would much rather have the gluten filled cake or pie. Ever since the Celiac Disease Diagnosis, I tend to get a lot of anxiety at all social functions. To tell you the truth, I would rather just avoid them. However, I have a lot of family members that live near me, and I have to do it for my 3 kids. I think I would be such a loner if I didn't have children.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

That is very strange indeed. I don't know, this doesn't really happen to me. Usually my family makes food I can eat and they understand my disease, because I spent plenty of time educating them lol. ;) Also, I want that shirt! Where did you see it?

julirama723 Contributor

My co-workers always stare and some always have to ask me "what are you eating today?" which for some reason, annoys the hell out of me, I think because it's a stupid question. If I'm sitting there eating a grilled chicken breast and green beans, isn't it *obvious* what I'm eating? It has nothing to do with being gluten-free. :)

I've never had complaints about my gluten-free foods brought to share with others. In fact, they always receive rave reviews! Of course, I don't eat "imposter" food (like gluten-free bread or crackers) but will make gluten-free desserts that everybody absolutely LOVES! My food is also dairy-free, but everybody loves the fact that I use coconut oil or ghee, because it tastes so darn good! My husband and I even have friends who love coming over for dinner because of our "gourmet cooking!"

samcarter Contributor

I've thought about this a bit more, and I'm convinced people are so darn curious about what we're eating because gluten is so prominent in the average Western diet. Bread, pasta, cookies, cake....most people can't even contemplate eating a gluten free diet, so they wonder what's left. That's what my elderly neighbor said, when I told her I had celiac.

"What's LEFT for you to eat?" she wailed on my behalf.

Her husband said, "Dang, she can eat meat, fruits, vegetables, I guess whatever ain't baked in an oven!" I had to laugh.

Sweetfudge Community Regular
I've thought about this a bit more, and I'm convinced people are so darn curious about what we're eating because gluten is so prominent in the average Western diet.

I think this is probably close to the truth. I get annoyed by my inlaws and family gatherings, but I've learned not to let it bother me (as much...). They all know I'm only going to eat what I feel safe eating, and I'll provide myself with enough to eat.

My dad was teasing me last time I was in town. I had made some cookies to put out on the coffee table, and after my family devoured them, my dad said "You know, I used to feel sorry for you having to be on this diet. But it just forced you to become an amazing cook! I don't feel that sorry for you anymore."

I think if you could find a recipe to master, something that tasted as good as "the real thing" that might be an option, if you WANT to bring something to share w/ the fam. I usually will ask whoever is hosting what desserts they already have planned, so I make something that's not already there.

Hang in there :)

sneezydiva Apprentice

I think a huge part of it is curiousity, especially if you've been gluten-free for awhile, and your health has obviously improved. It makes other people ask themselves if they could do what you're doing, and whether it would make them feel better. And pointing out other foods you can eat, it's more of a question for themselves, "Is that allowed?" I'm starting to see this with my inlaws, who have always been very supportive because my MIL has migraines triggered by certain foods. I think my MIL is on the cusp of trying to go gluten-free for herself, which IMHO, she should. I believe she does have gluten issues and possible celiac.

heathen Apprentice

Instead of seeing it as a swarming, you could see it as an opportunity to educate more people about what Celiac REALLY is. The same thing happens to me constantly--and letting my colleagues know that I'm ok with their asking questions has paid off. Another women in my class has been recently diagnosed, and she knew that she could ask me for help. We spent an afternoon after class at the local health food store going over what foods were good, etc.

yes, it's annoying to be the "freak show" at family events, but it's human nature to be curious about things that are different.

thleensd Enthusiast

Yeah, as much as I like to be the center of attention :D I'm getting really tired of saying the word "gluten"...So while I contemplate my endless patience in educating the world about gluten and cross contamination and reaffirm the importance of talking to the world about what I CAN eat, I'll vent, too.

I went to a memorial service yesterday, and all that my friends wanted to talk about was gluten. Seriously! Um.... gals.... um.... yeah, see the flowers and the pictures up there? Are we really going to have this conversation for an hour right now?

So, I just have to vent for a minute. I went to my in laws for Easter, and there were a lot of my husband's family members there. They all know that I have Celiac Disease (and other food allergies). I usually bring some of my own food to make it easier on everyone. I always bring my own dessert because I KNOW it is safe. Anyway, as soon as I get it out of my bag, everyone starts gathering around me to see what I am eating, and they have to ask 20 questions about it. Also, I feel like everyone is watching me to see what I am going to put on my plate. If I don't take something, they always say "oh, that should be ok for you to eat" because everyone thinks if it doesn't specifically say wheat, then it is ok. It's really getting old!!!!! I'm so tired of explaining it, so I usually just don't say anything - but it's hard to hold my tongue at times. I saw a cute t-shirt online, and I sware I am going to wear it to the next family gathering. It says "Kiss My Gluten Free Ass" - funny!
mysecretcurse Contributor
I went to a memorial service yesterday, and all that my friends wanted to talk about was gluten. Seriously! Um.... gals.... um.... yeah, see the flowers and the pictures up there? Are we really going to have this conversation for an hour right now?

I could definitely see how that could get annoying, but it's also sorta cool that people are wanting to know about it! No one asks me about it. <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.