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How Do You Do It?


HelpinOhio

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HelpinOhio Explorer

If youre on a gluten free diet, how do you manage to get all the food thats gluten free?

Do you have a list of gluten free foods that you can get at a normal store?

Do you have to keep ordering boxes of gluten free food over the internet?

Do you have a special Gluten free food store in your area that you go to?

It seems difficult, I have no idea how Im going to do this or even begin to get all the food.


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Lisa Mentor

I does get easier, but here are some things that will help

Here is a list of good companies who will clearly list all forms of gluten:

Open Original Shared Link

Here is a list of safe and forbidden foods:

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Here is some information on labeling:

Open Original Shared Link

And I highly recommend the Triumph Grocery Guide (at www.truimphdining.com), which can help you with your shopping until you can master label reading.

In the beginning, it's good to cook simply. Meat, fish, potatoes, rice, veggie and fruit. Add things one at a time and expand you diet when you can safely explore other options.

Darn210 Enthusiast

I do get my Pamela's pancake/baking mix and Pamela's bread mix from Amazon. You have to order in bulk to make it worth your while and if you use their "subscribe and save" program, you save an additional 15% and get free shipping.

I started out getting most of my specialty items at Whole Foods. But as luck would have it, my local Kroger carries many of the items or a decent alternative. Check your local grocery store's health food section.

Wal-Mart will label their items gluten free - it will be listed below the ingredient list.

It gets easier. You'll establish your basic shopping list for your day-to-day stuff. When you want to add something new to the rotation or do a special meal, a little research on this site (or the internet in general) is all that you usually need.

Take your cell phone to the grocery store with you and call the manufacturer of any product in question. They usually want the bar code number anyway and you'll have it handy without spending the money on an "unknown" item.

mamaw Community Regular

Where are you in Ohio? There are several good places to shop gluten-free. The Raisin Rack is in Canton & Columbus. Jungle Jim's In cincinnati. Just to name a few.

First off take a deep breath & get a game plan. Do not run out to purchase before you know what to buy... Things to ask yourself first: Are you a baker & wish to make much of your gluten-free food from beginning to end or are you way to busy to be baking bread & sweets on a weekly basis? What kinds of foods do I want in my new lifestyle? How many people is going to be eating gluten-free in the household? These questions will begin to give you answers before you start shopping.

I think beginners to this lifestyle should start off with what they know is gluten-free already! The Naked Diet as I call it ie: plain meats, vegetables, & fruits without marinades, coatings & added pre-made seasoned packets. You can add your own spices --- McCormick labels all spices clearly.

Buy a couple of gluten-free mixes to help you along until you feel comfortable baking. Pamela's has good pancake mix & cake mixes...

Kinnikinnick has K-Toos , a cookie that is like a vanilla creme sandwich or an oreo.

Glutino has crackers, pretzels & much more.

Amazon has very good prices & free shipping on many items... if you know you like a product after trying it order by the case , much cheaper than buying 1 box every week in a store.

If you want to bake some of the most used flours are Super fine white & brown rice flour, potato starch (potato flour is not the same thing) tapicoa flour,xanthan gum of guar gum, baking soda, pure vanilla,gluten-free baking powder, corn starch.

Rice four that is not super fine will make an end product on the gritty side ... Authenic FLour is the brand for super fine rice flour. I have found the flour sold at ASian Markets have high lead levels so I wouldn't buy that just because its cheaper...

Gluten free finds at the mainstream grocery:

Progresso soups: creamy mushroom,lentil,chik & vegetable,chik & wild rice, chik & rice, clam chowder,ckhik corn chowder

Kraft is clearly labled

Hormel is clearly labeled

cheese whiz

pam cooking spray

Yoplait yougurt (dannon only plain)

Jif

Philly cream cheese

hormel chili, pepperoni, spam

coke .pepsi,ginger ale

A&w root beer, virgil's root beer

hersey kisses hersey choc bar none with krispies!

heinz ketsup, french mustard, heinz vinegar ( no malt vinegar)

cheese whiz

LaChoy or Wal-Mart brand soy sauce

Contadina tomato products

jello

cool whip

herb-ox bouillon

Lea & Perkins worchestire sauce

doritos are clearly labled. ore ida fries are lableed

hellman's & miracle whip :

dinty moore beef stew

delimax taquitos

B & M beans

Oberto Beef Jerky plain & a couple of flavors.

Ragu pizza sauce

Don Pepino pizza sauce.

There is much more but this will get you started.

hth

mamaw

NorthernElf Enthusiast

If youre on a gluten free diet, how do you manage to get all the food thats gluten free?

Many natural foods - veggies, fruits, meats, rice, potatoes, salads - are gluten free.

Do you have a list of gluten free foods that you can get at a normal store?

I have my standards - canned tuna or salmon in water, gluten-free rice crackers, eggs, cheese, and so forth - I eat simpler and less processed for sure (and healthier!). The grocery store has RiceWorks chips (yum).

Do you have to keep ordering boxes of gluten free food over the internet?

Occasionally - from Kinnikinnick.

Do you have a special Gluten free food store in your area that you go to?

Not really but our health food store does carry some good mixes. I buy the Kinnikinnick bread mix (sunflower & flaxseed) and Glutino soup mixes (I don't make them as soup but use them in sauces).

It is difficult at first but once you set yourself up you get in the groove. I eat a lot of rice, eggs, fruits & vegs, potatoes & sweet potatoes, and salads with lots of stuff in them. I bake with gluten-free flours too - lots of recipes online. Once you buy you assortment of flours and xanthum gum there is a lot you can make. I've even used flour mixes with xanthum for some regular recipes with success. Best of luck !

HelpinOhio Explorer

Well, here is another problem.

Im an 18 year old guy. Im still in school and cant get a job because of my illness. I dont have any money, and I can barely cook. I cant even go out shopping with people because of how bad I feel and look.

The person that would be doing all of the shopping and most the cooking is my mom, and in all honesty she has no clue what shes doing. My mom and the rest of my family think that anything that doesnt say "wheat" or "gluten" in the allergy ingredients area is gluten free.

There is 5 people in our house. All of which eat gluten, and Im guessing at least 3 of us have some degree of Celiac Disease. My mom has already tested positive for it, but has never really followed the diet. Im just very frustrated at the moment.

I dont even fully know what Im doing, and I feel like I have to walk everyone everystep of the way like Im babysitting them, and since Im still effected by the disease I dont have nearly enough time or energy to do that. Ughh...Ill be glad when this whole thing is over and when everything is worked out and calmed down.

GlutenGalAZ Enthusiast
Well, here is another problem.

Im an 18 year old guy. Im still in school and cant get a job because of my illness. I dont have any money, and I can barely cook. I cant even go out shopping with people because of how bad I feel and look.

The person that would be doing all of the shopping and most the cooking is my mom, and in all honesty she has no clue what shes doing. My mom and the rest of my family think that anything that doesnt say "wheat" or "gluten" in the allergy ingredients area is gluten free.

Do you have any other food restrictions?

I eat gluten free and my husband doesn't...below are some ideas/examples of some things that we or I eat in our household.

*Mission White Corn Tortillas are good and inexpensive. You can heat them up in a pan or microwave or have at room temp or straight from the refrigerator. I have made peanut butter/jelly, meat wraps, pizzas etc.

*Mission White Corn Taco Shells or the above Tortillas you can make tacos/burritos with (we brown the meat then add in some Tomato Sauce and Chili Powder or you can add some water and Chili Powder too).

*Gluten free pasta and safe spaghetti sauce (Classico, WalMart-Great Value, Bertolli) toss in some veggies if you want or ground beef.

*Dinty Moore Beef Stew is good. I like to add in a little cheese to thicken it some.

*Rice with veggies and sprinkle some cheese on top or add in chicken

*Scramble Eggs with veggies in it or some meat

*Plain chicken (then everyone can add on what they want after being cooked) with some stuff to the side

*Pretty much any plain meat that isn't pre-seasoned or marinated, vegetables or fruits are good

Be carefull with salad dressing, you might want to surf the web a little and see which ones you are okay with then double check the label when you go to the store.

If you have a WalMart they have a nice selection in their Great Value line that is gluten free and inexpensive.

Hope this helped some. It does get a little easier as the weeks go by. I find I get in a routine with our food then when we have time we add in something new and change it around.

Good Luck

Edit: Are you taking any vitamins? If you are just make sure they are gluten free. If you are not yet, I would suggest starting to take at least a gluten free Multi Vitamin till you figure what else you need to take.


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mamaw Community Regular

Does your Mother know what she is doing to her body by not following the gluten-free diet? Does she care?

You didn't say what part of Ohio you are from but there are several support groups in Ohio plus a few gluten-free shops I already mentioned.

Many people are in denial & many or most go through some initial stages of grief as in loosing a loved one. This is all natural. Sad, angry, depressed, anxiety& so on.

You are eighteen so you may have to get the stamina & will power to help the others move in the right direction. Once you set an example they too may follow. And you must care for yourself, if you don't no one else will.....

Maybe you could check into food stamps from your state. Mailorder is another option.

You may need to become the teacher when it comes to gluten-free...

A support group is a wonderful way to learn & understand the do's & don'ts...

blessings

mamaw

HelpinOhio Explorer

One frustrating thing about this site is that most people dont remember me from previous threads, so I have to write all this again and again. Its not your fault, but it gets kind of old after Ive explained my situation about 10 times already.

Basically, Im an 18 year old guy, my mom has had Celiac Disease diagnosed around 1980, but I had no idea she had this until about a year ago. My mom hasnt followed the diet in 20 or so years. A mystery illness has ruined my life for the past 7 years, Ive been very sick and like in a bad dream for all that time. I went to doctors many times and they always came up with nothing. It continued to get worse until I went through another bout of new symptoms and horrible panic attacks that ended the little life I had left, this was about 1 1/2 years ago. Ive been stuck in my house most the time since then. I started to research what diseases run in my family and match my symptoms since then, it came down to SLE Lupus and Celiac Disease, Ive had blood tests for both and they came back negative. But now Im 95% sure I do have Celiac Disease. I have an endoscopy in a few days.

I live in the Cleveland area. Supposedly my mom started eating gluten again within a few years of the diagnosis, and didnt have D or the other symptoms. She told the doctor this and supposedly the doctor said it was okay for her to eat gluten if it didnt cause symptoms. I know now that it was incredibly stupid for him to say that to her. My mom doesnt know about Celiac Disease and doesnt understand it at all. I see obvious signs of Celiac Disease in my mom and at least 1 other family member. I told this to my mom, but nobody ever listens to me or takes me serious. My family are the same people that made me go through hell for 3 years forcing me to take anti depressants, go to counselors, psychologists, and psychiatrists, and even sending me to mental hospitals twice, because they thought I was depressed. That entire time I told them I didnt have depression, but no, nobody ever listens to me. Along with all that I still had to go to school and do everything a pre teen and teenage boy has to. Its ridiculous. Now I see Celiac Disease and everything adds up now.

Like I said, Im very frustrated and these people never listen to me. I barely have enough energy to type this up so I dont see how I can find the time and energy to sit every one of my family members down and explain all of this to them. Im sorry, Im just extremely annoyed and frustrated at this point. 7 year of hell and a life-sucking mystery disease will get you exhausted. I need a vacation from all this.

ravenwoodglass Mentor
One frustrating thing about this site is that most people dont remember me from previous threads, so I have to write all this again and again. Its not your fault, but it gets kind of old after Ive explained my situation about 10 times already.

Basically, Im an 18 year old guy, my mom has had Celiac Disease diagnosed around 1980, but I had no idea she had this until about a year ago. My mom hasnt followed the diet in 20 or so years. A mystery illness has ruined my life for the past 7 years, Ive been very sick and like in a bad dream for all that time. I went to doctors many times and they always came up with nothing. It continued to get worse until I went through another bout of new symptoms and horrible panic attacks that ended the little life I had left, this was about 1 1/2 years ago. Ive been stuck in my house most the time since then. I started to research what diseases run in my family and match my symptoms since then, it came down to SLE Lupus and Celiac Disease, Ive had blood tests for both and they came back negative. But now Im 95% sure I do have Celiac Disease. I have an endoscopy in a few days.

I live in the Cleveland area. Supposedly my mom started eating gluten again within a few years of the diagnosis, and didnt have D or the other symptoms. She told the doctor this and supposedly the doctor said it was okay for her to eat gluten if it didnt cause symptoms. I know now that it was incredibly stupid for him to say that to her. My mom doesnt know about Celiac Disease and doesnt understand it at all. I see obvious signs of Celiac Disease in my mom and at least 1 other family member. I told this to my mom, but nobody ever listens to me or takes me serious. My family are the same people that made me go through hell for 3 years forcing me to take anti depressants, go to counselors, psychologists, and psychiatrists, and even sending me to mental hospitals twice, because they thought I was depressed. That entire time I told them I didnt have depression, but no, nobody ever listens to me. Along with all that I still had to go to school and do everything a pre teen and teenage boy has to. Its ridiculous. Now I see Celiac Disease and everything adds up now.

Like I said, Im very frustrated and these people never listen to me. I barely have enough energy to type this up so I dont see how I can find the time and energy to sit every one of my family members down and explain all of this to them. Im sorry, Im just extremely annoyed and frustrated at this point. 7 year of hell and a life-sucking mystery disease will get you exhausted. I need a vacation from all this.

You are in a very tough spot. This may sound like an odd suggestion but it is worth mentioning. Have you talked to social services and disability folks to see if there is some way to get out of there? You may qualify for disability or be able to get temporary assistance to find a cheap place to live, even a one room studio would work for now. You might need to get your parents to say they want you out of the house, don't know if they would cooperate with that as they might have to basically throw you out on the street for you to get help.

gfpagan Apprentice

I am just starting out. I started at Whole Foods and Fruitful Yield and still go there sometimes. However I just spend more time at my regular grocery store and look at labels and I am tryin to get used to what I can buy.

There is a dedicated gluten free store not far from me, but I haven't gone there yet. It seems like it would be very expensive and maybe once I get used to buying normal items I'll treat myself to a trip there.

It took me twice as long to buy more then half of what I normally buy this past weekend, but I'm now going to expect that for awhile when I do my grocery shopping.

Not sure if that helps!

If youre on a gluten free diet, how do you manage to get all the food thats gluten free?

Do you have a list of gluten free foods that you can get at a normal store?

Do you have to keep ordering boxes of gluten free food over the internet?

Do you have a special Gluten free food store in your area that you go to?

It seems difficult, I have no idea how Im going to do this or even begin to get all the food.

mamaw Community Regular

Hi again

I wish to give you a big hug!!!!! You are going through a lot these days...

You are so right that doctors used to tell people that at some point they could go back on wheat as the doc told your mother. He was so wrong but back twenty years ago they did not know any better...hard lesson to learn. Not that its right but many people I know have been treated with anti-depressant drugs. It is easy to say its all in your head when you know your body better then anyone else...the medical world is not perfect & not always right.Mistakes happens at all levels. Sad.

If you can tell us all what you like to eat maybe we can tell you what would be available at the mainstream grocery that way you wouldn't be spending so much time reading labels at this time. We would have done that process for you. I'm sure many on here would be glad to help...that is what we are here for help & support...Some of us older & wiser in the gluten-free lifestyle are here to help...

Have you ever been tested for other issues such as thyroid disease, lyme disease? celiac is a chameleon & other illness can make one still not heal when another illness is defeating the diet.

Ravenglass had some good advice about seeking help from your state aid programs... Could you manage on your own? Maybe you could apply for SSI & live at home if that was your choice....

Please don't give up , remember fighters always win.....we all are here to help...let us know what we can do... you need a support system....

blessings

mamaw

tarnalberry Community Regular
One frustrating thing about this site is that most people dont remember me from previous threads, so I have to write all this again and again. Its not your fault, but it gets kind of old after Ive explained my situation about 10 times already.

Like I said, Im very frustrated and these people never listen to me. I barely have enough energy to type this up so I dont see how I can find the time and energy to sit every one of my family members down and explain all of this to them. Im sorry, Im just extremely annoyed and frustrated at this point. 7 year of hell and a life-sucking mystery disease will get you exhausted. I need a vacation from all this.

3 things:

0) Not everyone reads every thread, so don't be surprised that each person who replies doesn't know everything you've typed here. You can always post a hyperlink back to another post, rather than retyping.

1) chronic illness can most distinctly cause depression. It's situational, it's annoying as all you-know-what. But you can do a number of things about it (it can include medication if you want, but it certainly doesn't have to).

3) I will give you the same advice I gave a 20-yr old friend of mine who recently went through a ridiculous week and a half of moving out, a major bank screwup that froze all his money, having his dog kicked out of his new condo, and having a girl play games with his head. It is the same advice I repeatedly give myself as I am working on very stressful full time job, managing a business, taking care of a house, training a 8-month old puppy, dealing with the fatigue of fibromyalgia, trying to cook just about every day, and found out that I am getting laid off in two months, and my husband may be right behind me two months after that. "Suck it up. Figure out what you need to do, stop whining about it, and go do it."

Yes, yes; I know that sounds like harsh advice - my friend told me exactly that. Heck, I tell myself that sometimes when I'm driving home from a particularly stressful day and would rather just drive off into the woods, sleep in the car, and disappear from home and work for a few days. It's only sounds harsh because it leaves off all the empathizing.

And you'll get that! You're right that it's a crappy position to be in. You're right that being sick to the point of being trapped at home for years is <insert string of bad words>-ingly awful. It's draining, exhausting, and just BLAH-ARGH! (I don't have a feeling for that feeling you get when you run out of words but you just want to scream-sigh... That's my best effort.)

But it being a crappy situation doesn't change it being the situation you have to deal with. And the first thing that you can change is - yeah, prepare for an eyeroll - your attitude. (Do I hear you swearing at your screen while reading this? ;) ) I don't mean "oh, just think everything is all bubble gum and roses, and it will be." That's a variation of BS. Rather, you have to change your expectations and your assumptions. You seem to expect to be able to operate without being tired all the time - well, for right now, that may not be a reasonable expectation. (Goal for the future, absolutely! But sometimes, you just kinda push yourself through the day as best as possible. Because you have responsibilities to take care of.) You seem to expect that your family ought to help you with this diet, even though they demonstrate that they aren't interested, so you may need to drop the expectation that you're going to get any real help with this diet. (No, just because they're family doesn't mean they'll do the right thing. Just because they're family doesn't mean they'll do what's best for you. Just because they're family doesn't mean that they'll help you out. That cultural 'standard', or expectation that we're given, is just kinda ridiculous - we will all get disappointed by *something* and feel more hurt "because it's family". They're still people.)

What does that mean? Figure out a way to do this. Go grocery shopping with your mom, and pick out foods you can have - when you're stressed out and don't have the mental capacity to remember what is what, stick to the naturally gluten free stuff. And then, yes, cook. But "cook" can be "spend 10 minutes in the kitchen throwing ingredients into a pot so you have a big meal, and a bunch of leftovers". (Or get food you don't have to cook, or do anything more than heat in a microwave - frozen veggies and shrimp are great for that.)

My whole point here is that the 'wallowing in the utter miserableness of all that is my life' is kinda "fun" sometimes ("fun" in the "more fun that getting off my arse and doing something about it" sense), it's self-perpetuating, unnecessary, and in the end, detrimental. I'm not saying it's easy - I'm in the middle of trying to work through it myself, and have been for a number of months since the situation I'm in hasn't fundamentally changed to alleviate the pressure - but it's the only thing you can do aside from giving up. And you are worth it not to give up.

samcarter Contributor
Well, here is another problem.

Im an 18 year old guy. Im still in school and cant get a job because of my illness. I dont have any money, and I can barely cook. I cant even go out shopping with people because of how bad I feel and look.

The person that would be doing all of the shopping and most the cooking is my mom, and in all honesty she has no clue what shes doing. My mom and the rest of my family think that anything that doesnt say "wheat" or "gluten" in the allergy ingredients area is gluten free.

There is 5 people in our house. All of which eat gluten, and Im guessing at least 3 of us have some degree of Celiac Disease. My mom has already tested positive for it, but has never really followed the diet. Im just very frustrated at the moment.

I dont even fully know what Im doing, and I feel like I have to walk everyone everystep of the way like Im babysitting them, and since Im still effected by the disease I dont have nearly enough time or energy to do that. Ughh...Ill be glad when this whole thing is over and when everything is worked out and calmed down.

Honestly, you can't be held responsible for others' irresponsibility to their health. First focus on getting yourself healthy. Why does your mom do all the cooking? Whenever I hear that, I suspect it's either because the mom won't let anybody in the kitchen OR the other family members refuses to cook. Can you cook your own food? If so, then put items on the list that you know to be gluten free: plain meats, rice, potatoes, fruit, vegetables (even canned vegetables, easy to heat up and eat with a baked potato).

Tell your mom that you're going to cook your own food. Spin it, and tell her that you don't want to be a burden to her, but you really feel the gluten free diet is best for your own health, so you'll do all your own food, that way she doesn't have to worry about it. Ask her to add these naturally gluten-free items to the grocery list.

Try to find one saute pan that you can clean really well and keep for yourself. I know it will be hard cooking in a non-gluten-free kitchen, but i do it. It can be done.

Easy gluten free meals would be:

Breakfast: hardboiled egg, or scrambled eggs, some fruit, OJ. You can take plain corn tortillas, toast them in the oven, and put butter on them. I love those with some eggs. Today i had fried eggs with sauteed spinach--very easy to do in one pan.

Lunch: baked potato, cottage cheese, veggies like carrot sticks. Also, Progresso has several soups that are gluten free, such as Lentil and Creamy Mushroom.

Dinner: Any plain meat that isn't seasoned with gluten. Ask your mom to get you plain ground beef, make a burger with just salt and pepper for seasoning. Rice is a good side dish.

A previous poster listed some brand name foods you could ask your mom to get at the store that would easy to heat up.

Just keep it as simple as you can while you're healing. I know you feel like crap right now. I did too, but I'm the main cook here in our house and I had to figure out what the heck I was going to eat while feeding my kids and husband the meals they were accustomed too. So i was feeling like death warmed over but I also had little kids who needed me to feed them, as well. Now we have meals we can all share; perhaps in time you can take over cooking some meals for the entire family that are naturally gluten free.

HelpinOhio Explorer

Thank you for all the replys so far. You all have helped and I will look into them further when its time to go out and get the gluten free foods.

Im just going through so much right now, and its been 7 years Ive had this and I look around now and into the past and I see so many things that have went wrong. I blamed mainly myself for many years, but now Im starting to understand that none of it was my fault. Im not putting all the blame on my family, friends, doctors either because they really didnt know. But it seems like none of them understand my situation at all, or even care to understand it. Every little flaw about myself they either blamed on me, or the depression.

I did have depression, but it was so much more and caused by something else. Most of my symptoms are physical, and I have many mental symptoms that arent depression as well. I live in a single parent household with my mom. I dont see my dad much, but I do know him and he would be even less helpful with this than my mom. When I got all the new symptoms and panic attacks that ruined my life about 1 1/2 years ago and stopped me from going to school, my dad told me and everyone else he thought I was making it up to get out of school. Im past the point of being able to be mad at that. Im giving up on him, at least for now until I get better. If only people could go through 1 day feeling like I feel, then maybe they would understand. I do have many family problems and just life problems all together, but I wont bore you all or push them on any of you. Another thing I will say is that my mom has an okay job, but we dont have much extra money left for anything.

As far as what foods I like, Im not really picky at all. Ill eat just about anything as long as its gluten free. When Im further into the diet/lifestyle and my symptoms go away, then Ill start worrying about getting the stuff that tastes better to me. Just about anything now will do, but Im having lactose intolerance symptoms. Most days my mom doesnt cook, she works most the day so we have to either cook for ourselves, or if theres something to make in the microwave. I dont have a problem cooking if I have to, I know a little bit and am willing to learn more and do it. Oh yes, Ive also been tested for thyroid disease, lyme disease, rheumatoid arthritis, lupus, heart problems, chest problems, fibromyalgia, low vitamins, pretty much everything came back normal.

First and foremost, I have to worry about my health. Im getting the endoscopy in a couple days, and as soon as I get the results back I will be going gluten free whether its negative or positive for Celiac. After that Ill worry about getting my life back together and everything worked out. Ill probably try to get my family to go gluten free shortly after that. I dont have much patience or energy, but Ill deal with this just like I did everything else. I went through 7 years with no hope, and now I actually have hope of getting better soon so it shouldnt be too hard.

ang1e0251 Contributor

I'm glad you'll soon have your endoscopy and go gluten free after that. You know you're Dad will come around when you start healing and feeling better. We were all just ignorant before. I include myself in that. I had heard of celiac disease but had no idea what it entailed. I didn't even suspect it for myself before my lightbulb moment. After a year and a half and hours of researchI still am learning new things about the disease. Imagine a layman trying to get it!

You don't have to have a lot of money to eat the gluten-free diet. Just eat simple food to start and add more when you get the hang of it and have the money to do so. Ask anything you want here or just sign in to read or rant. We'll listen to it all and we know where you're coming from. Good luck as you start your gluten-free life; it's a new beginning!

mamaw Community Regular

You sound like you have come to the reality point of all your medical issues. I'm glad that you now have decided you can do this & down the road you will regain your whole life except for the nasty wheat...... WAY TO GO!!!!!!! At some point I think we all felt lost but we all found our way & you will too.

Progresso makes gluten-free soups, a easy fix.

creamy mushroon, lentil, chik & rice,chik & vegetable,clam chowder, french onion. All meats, veggies, fruits are naturally gluten-free if you buy without any marinades, sauces, or coatings.....dinty moore beef stew. yoplait yogurt, popcorn, dairy queen, hersey kisses.cheese whiz, ore ida fries, ortega taco shells, bush orig baked beans,popscicles, contadina tomato products, jello, cheese whiz, hormel pepperoni, rice chex, honey nut rice chex, cream of rice philly cream cheese. hth

blessings

mamaw

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    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
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