Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Start?


HelpinOhio

Recommended Posts

HelpinOhio Explorer

Its finally about time for me to go on the gluten free diet. I got the blood tests done (which came back negative) and now I got the upper endoscopy done, and the results for that should be back in a few days. I said after I got the tests done that whatever the results were I would go on the gluten free diet regardless, it is now about that time.

(Check my other topics/threads if you want to know my whole story.)

How do I go about starting the gluten free diet and getting all the food?

Right now Im thinking about just ordering a box of gluten free food from over the internet, and gradually learning what food is gluten free in normal stores and eating more raw fruits/vegetables/meat.

Thanks if you can help. This could be the biggest turning point of my life thus far. Exciting times.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
Its finally about time for me to go on the gluten free diet. I got the blood tests done (which came back negative) and now I got the upper endoscopy done, and the results for that should be back in a few days. I said after I got the tests done that whatever the results were I would go on the gluten free diet regardless, it is now about that time.

(Check my other topics/threads if you want to know my whole story.)

How do I go about starting the gluten free diet and getting all the food?

Right now Im thinking about just ordering a box of gluten free food from over the internet, and gradually learning what food is gluten free in normal stores and eating more raw fruits/vegetables/meat.

Thanks if you can help. This could be the biggest turning point of my life thus far. Exciting times.

The best advice around here seems to be to forget about the box of gluten free processed food and just eat the fruits, vegetables, fish, meat, rice, nuts, seeds for a while. Often the gluten free grains are hard to digest and the products themselves are often laden with things we don't normally eat (like soy), so it's best to start shopping around the outside of the supermarket only. If you can handle casein you can do yogurt and cheese, but if you are not sure leave those out at first too. Then you can gradually work into the other products. Give your intestines a chance to heal from the gluten onslaught before venturing forth into processed gluten free foods.

Good luck on your new gluten free journey, and good health to you.

happygirl Collaborator

Open Original Shared Link

Great info to get you started

ang1e0251 Contributor

I agree with the above advice. Eat basic whole foods to begin with and give yourself a month or so to get used to eating that way. You can eat corn tortillas in place of any bread. I like them toasted.

It's time to do a kitchen purge. Look at every spice and package in your kitchen. Anything with gluten, goes. Also replace any spice you may have double dipped a measuring spoon into that first dipped flour. You need your own butter, jelly and peanut butter containers seperate from others in the house. Mark them with your name.

Buy a new toaster, just for you. If you share a kitchen with others, you may want a pan just for your own pasta and a colander. I also replaced my teflon pan that was all scratched.

After a month or so, branch out your foods. Add one at a time and see how they sit with you.

ranger Enthusiast

I agree with all of the above. The processed food is expensive and, for the most part, just plain bad. Are you in Ohio? I live in Canton, Ohio. If you are around me, I can give you local connections. Do you cook? I buy most of my food at regular grocery stores. At first, keep it simple. Meat, fruits, veges, rice., potatoes, ect. I cook a lot, and after only 4 months, can cook about anything gluten-free. There are tons of recipes here and on the net. Let me know if you need anything.

Susan

HelpinOhio Explorer

Thank you all for the replies so far.

To ranger, I live around Cleveland.

mattathayde Apprentice

there are plenty of places that will happily take your money from gluten free baked goods and versions of stuff that normally are glutened but honestly dont waste your money for now. eat simply, meats, veggies, fruits, etc and just cut out the baked goods. cook for your self with simple ingredients that are gluten free naturally, get a good multi vitamin and go with that for a while.

like was kind of said before, eating this way first makes the diet easier later on when you find good gluten free versions of other stuff.

-matt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HelpinOhio Explorer

Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

mushroom Proficient
Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

Here are a couple of ideas:

There are gluten free mueslis or cereals, hemp, almond or gluten free rice milk, fruits (berries are full of nutrition--I use frozen blueberries a lot), gluten free toast and preserves. Or a scrambled egg on gluten free toast, with bacon done in the microwave (only takes a couple of minutes prep), with some take-with-you fruit like an apple or banana.

Or some leftovers from dinner the night before just popped in the microwave if you really don't want to do anything :)

HelpinOhio Explorer

I need some more help. Im trying to start the gluten free diet as all my testing is done, and getting the gluten free food is the only thing holding me back.

I heard someone mention something like a list of "90 gluten free things you can eat right away" or something similar to that. Does anyone have that list or that link? or anything similar to it?

Im having a very hard time finding a list of things that are gluten free. I need some food to start out with and then maybe after Im on that a while and start to feel better I can concentrate more on getting the food. This has just really taken all the energy and concentration out of me and its hard to do this. Its a vicious cycle.

Thanks if you can help.

psawyer Proficient

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.

Open Original Shared Link If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc."

I am not a supporter of lists--they are out of date the minute that you print them. Formulas are constantly changing. That is why I like to buy from companies who will label clearly (see the third link above). Always read the label.

Wenmin Enthusiast
I need some more help. Im trying to start the gluten free diet as all my testing is done, and getting the gluten free food is the only thing holding me back.

I heard someone mention something like a list of "90 gluten free things you can eat right away" or something similar to that. Does anyone have that list or that link? or anything similar to it?

Im having a very hard time finding a list of things that are gluten free. I need some food to start out with and then maybe after Im on that a while and start to feel better I can concentrate more on getting the food. This has just really taken all the energy and concentration out of me and its hard to do this. Its a vicious cycle.

Thanks if you can help.

This is a list of Gluten Free "mainstream" products available in any local grocery store. Don't know how to link it, (not that computer savy) just copy and paste in address box....

Hope this helps!

homepage.mac.com/sholland/celiac/GFfoodlist.pdf

Print you a copy and shop with it. Just don't try to find more than a few items each week. It becomes overwhelming. Once you buy something and eat it for a while, you remember what brand you can have and it becomes easier to shop.

Good Luck!

P.S. Just made thhe most delicious taco salad for supper...taco meat, lettuce, tomatoes, salsa (amy's), sour cream and cheese....YUM!

mattathayde Apprentice

i do want to note that oats are not necessarily off limits, they just do have a very high chance of getting cross contaminated in transport but you might be able to find a product that is safe for you

-matt

HelpinOhio Explorer

I noticed that some of those lists have products that they said were gluten free going back to 2002 (those are the dates they posted them on).

Will most of these products still be safe?

Wenmin Enthusiast

Most of the products on the "Mainstream" list are safe. Use the safe and unsafe list posted on this forum to check any ingredients you are unsure of. I really did not have any problems with any food product listed on this site, except Jif Peanut Butter. But, I did find an alternative to use. (Reese's Peanut Butter). Good Luck!

Wenmin

GottaSki Mentor
Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

There were great suggestions in the blog I linked below for breakfast...I tried the flourless egg muffin recipe someone suggested...they are easy to make in advance and then microwave when ready to eat. I like them with a gluten free english muffin ( I buy glutino's - these are expensive, but the only gluten-free prepared food I buy - gotta treat yourself once in a while!)

https://www.celiac.com/gluten-free/index.ph...c=57775&hl=

mattathayde Apprentice
I noticed that some of those lists have products that they said were gluten free going back to 2002 (those are the dates they posted them on).

Will most of these products still be safe?

like wenmin said ya they should be, but always check. i honestly dont check every time i buy stuff but i do look at ingredients again every once in a while unless i have an issue that arises

Most of the products on the "Mainstream" list are safe. Use the safe and unsafe list posted on this forum to check any ingredients you are unsure of. I really did not have any problems with any food product listed on this site, except Jif Peanut Butter. But, I did find an alternative to use. (Reese's Peanut Butter). Good Luck!

Wenmin

that had to be from a secondary issue or something, ive seemed to get pretty sensitive over the last few months and jif doesnt bother me as far as i can tell

-matt

HelpinOhio Explorer

So Jiff Peanut Butter isnt gluten free? I thought it was.

What are some peanut butters that are gluten free?

mattathayde Apprentice
So Jiff Peanut Butter isnt gluten free? I thought it was.

What are some peanut butters that are gluten free?

every source i see says its gluten-free and i eat it a decent amount and dont get sick from it, hence my response to Wenmin of it probably being a secondary issue

-matt

Wenmin Enthusiast
every source i see says its gluten-free and i eat it a decent amount and dont get sick from it, hence my response to Wenmin of it probably being a secondary issue

-matt

I didn't say it wasn't gluten free. I just had issues with it. I avoid Jif Peanut Butter becasue it does not sit well with me. Instead I use Reese's Peanut Butter. No difference in the taste at all....

mattathayde Apprentice
I didn't say it wasn't gluten free. I just had issues with it. I avoid Jif Peanut Butter becasue it does not sit well with me. Instead I use Reese's Peanut Butter. No difference in the taste at all....

got ya, thats what i was thinking you probably were getting at just wanted to make sure

-matt

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.