Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Start?

HelpinOhio

Recommended Posts

HelpinOhio Explorer
HelpinOhio
Posted

Its finally about time for me to go on the gluten free diet. I got the blood tests done (which came back negative) and now I got the upper endoscopy done, and the results for that should be back in a few days. I said after I got the tests done that whatever the results were I would go on the gluten free diet regardless, it is now about that time.

(Check my other topics/threads if you want to know my whole story.)

How do I go about starting the gluten free diet and getting all the food?

Right now Im thinking about just ordering a box of gluten free food from over the internet, and gradually learning what food is gluten free in normal stores and eating more raw fruits/vegetables/meat.

Thanks if you can help. This could be the biggest turning point of my life thus far. Exciting times.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted
Its finally about time for me to go on the gluten free diet. I got the blood tests done (which came back negative) and now I got the upper endoscopy done, and the results for that should be back in a few days. I said after I got the tests done that whatever the results were I would go on the gluten free diet regardless, it is now about that time.

(Check my other topics/threads if you want to know my whole story.)

How do I go about starting the gluten free diet and getting all the food?

Right now Im thinking about just ordering a box of gluten free food from over the internet, and gradually learning what food is gluten free in normal stores and eating more raw fruits/vegetables/meat.

Thanks if you can help. This could be the biggest turning point of my life thus far. Exciting times.

The best advice around here seems to be to forget about the box of gluten free processed food and just eat the fruits, vegetables, fish, meat, rice, nuts, seeds for a while. Often the gluten free grains are hard to digest and the products themselves are often laden with things we don't normally eat (like soy), so it's best to start shopping around the outside of the supermarket only. If you can handle casein you can do yogurt and cheese, but if you are not sure leave those out at first too. Then you can gradually work into the other products. Give your intestines a chance to heal from the gluten onslaught before venturing forth into processed gluten free foods.

Good luck on your new gluten free journey, and good health to you.

happygirl Collaborator
happygirl
Posted

Open Original Shared Link

Great info to get you started

ang1e0251 Contributor
ang1e0251
Posted

I agree with the above advice. Eat basic whole foods to begin with and give yourself a month or so to get used to eating that way. You can eat corn tortillas in place of any bread. I like them toasted.

It's time to do a kitchen purge. Look at every spice and package in your kitchen. Anything with gluten, goes. Also replace any spice you may have double dipped a measuring spoon into that first dipped flour. You need your own butter, jelly and peanut butter containers seperate from others in the house. Mark them with your name.

Buy a new toaster, just for you. If you share a kitchen with others, you may want a pan just for your own pasta and a colander. I also replaced my teflon pan that was all scratched.

After a month or so, branch out your foods. Add one at a time and see how they sit with you.

ranger Enthusiast
ranger
Posted

I agree with all of the above. The processed food is expensive and, for the most part, just plain bad. Are you in Ohio? I live in Canton, Ohio. If you are around me, I can give you local connections. Do you cook? I buy most of my food at regular grocery stores. At first, keep it simple. Meat, fruits, veges, rice., potatoes, ect. I cook a lot, and after only 4 months, can cook about anything gluten-free. There are tons of recipes here and on the net. Let me know if you need anything.

Susan

HelpinOhio Explorer
HelpinOhio
Posted
  • Author

Thank you all for the replies so far.

To ranger, I live around Cleveland.

mattathayde Apprentice
mattathayde
Posted

there are plenty of places that will happily take your money from gluten free baked goods and versions of stuff that normally are glutened but honestly dont waste your money for now. eat simply, meats, veggies, fruits, etc and just cut out the baked goods. cook for your self with simple ingredients that are gluten free naturally, get a good multi vitamin and go with that for a while.

like was kind of said before, eating this way first makes the diet easier later on when you find good gluten free versions of other stuff.

-matt

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


HelpinOhio Explorer
HelpinOhio
Posted
  • Author

Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

mushroom Proficient
mushroom
Posted
Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

Here are a couple of ideas:

There are gluten free mueslis or cereals, hemp, almond or gluten free rice milk, fruits (berries are full of nutrition--I use frozen blueberries a lot), gluten free toast and preserves. Or a scrambled egg on gluten free toast, with bacon done in the microwave (only takes a couple of minutes prep), with some take-with-you fruit like an apple or banana.

Or some leftovers from dinner the night before just popped in the microwave if you really don't want to do anything :)

HelpinOhio Explorer
HelpinOhio
Posted
  • Author

I need some more help. Im trying to start the gluten free diet as all my testing is done, and getting the gluten free food is the only thing holding me back.

I heard someone mention something like a list of "90 gluten free things you can eat right away" or something similar to that. Does anyone have that list or that link? or anything similar to it?

Im having a very hard time finding a list of things that are gluten free. I need some food to start out with and then maybe after Im on that a while and start to feel better I can concentrate more on getting the food. This has just really taken all the energy and concentration out of me and its hard to do this. Its a vicious cycle.

Thanks if you can help.

psawyer Proficient
psawyer
Posted

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.

Open Original Shared Link If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc."

I am not a supporter of lists--they are out of date the minute that you print them. Formulas are constantly changing. That is why I like to buy from companies who will label clearly (see the third link above). Always read the label.

Wenmin Enthusiast
Wenmin
Posted
I need some more help. Im trying to start the gluten free diet as all my testing is done, and getting the gluten free food is the only thing holding me back.

I heard someone mention something like a list of "90 gluten free things you can eat right away" or something similar to that. Does anyone have that list or that link? or anything similar to it?

Im having a very hard time finding a list of things that are gluten free. I need some food to start out with and then maybe after Im on that a while and start to feel better I can concentrate more on getting the food. This has just really taken all the energy and concentration out of me and its hard to do this. Its a vicious cycle.

Thanks if you can help.

This is a list of Gluten Free "mainstream" products available in any local grocery store. Don't know how to link it, (not that computer savy) just copy and paste in address box....

Hope this helps!

homepage.mac.com/sholland/celiac/GFfoodlist.pdf

Print you a copy and shop with it. Just don't try to find more than a few items each week. It becomes overwhelming. Once you buy something and eat it for a while, you remember what brand you can have and it becomes easier to shop.

Good Luck!

P.S. Just made thhe most delicious taco salad for supper...taco meat, lettuce, tomatoes, salsa (amy's), sour cream and cheese....YUM!

mattathayde Apprentice
mattathayde
Posted

i do want to note that oats are not necessarily off limits, they just do have a very high chance of getting cross contaminated in transport but you might be able to find a product that is safe for you

-matt

HelpinOhio Explorer
HelpinOhio
Posted
  • Author

I noticed that some of those lists have products that they said were gluten free going back to 2002 (those are the dates they posted them on).

Will most of these products still be safe?

Wenmin Enthusiast
Wenmin
Posted

Most of the products on the "Mainstream" list are safe. Use the safe and unsafe list posted on this forum to check any ingredients you are unsure of. I really did not have any problems with any food product listed on this site, except Jif Peanut Butter. But, I did find an alternative to use. (Reese's Peanut Butter). Good Luck!

Wenmin

GottaSki Mentor
GottaSki
Posted
Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

There were great suggestions in the blog I linked below for breakfast...I tried the flourless egg muffin recipe someone suggested...they are easy to make in advance and then microwave when ready to eat. I like them with a gluten free english muffin ( I buy glutino's - these are expensive, but the only gluten-free prepared food I buy - gotta treat yourself once in a while!)

https://www.celiac.com/gluten-free/index.ph...c=57775&hl=

mattathayde Apprentice
mattathayde
Posted
I noticed that some of those lists have products that they said were gluten free going back to 2002 (those are the dates they posted them on).

Will most of these products still be safe?

like wenmin said ya they should be, but always check. i honestly dont check every time i buy stuff but i do look at ingredients again every once in a while unless i have an issue that arises

Most of the products on the "Mainstream" list are safe. Use the safe and unsafe list posted on this forum to check any ingredients you are unsure of. I really did not have any problems with any food product listed on this site, except Jif Peanut Butter. But, I did find an alternative to use. (Reese's Peanut Butter). Good Luck!

Wenmin

that had to be from a secondary issue or something, ive seemed to get pretty sensitive over the last few months and jif doesnt bother me as far as i can tell

-matt

HelpinOhio Explorer
HelpinOhio
Posted
  • Author

So Jiff Peanut Butter isnt gluten free? I thought it was.

What are some peanut butters that are gluten free?

mattathayde Apprentice
mattathayde
Posted
So Jiff Peanut Butter isnt gluten free? I thought it was.

What are some peanut butters that are gluten free?

every source i see says its gluten-free and i eat it a decent amount and dont get sick from it, hence my response to Wenmin of it probably being a secondary issue

-matt

Wenmin Enthusiast
Wenmin
Posted
every source i see says its gluten-free and i eat it a decent amount and dont get sick from it, hence my response to Wenmin of it probably being a secondary issue

-matt

I didn't say it wasn't gluten free. I just had issues with it. I avoid Jif Peanut Butter becasue it does not sit well with me. Instead I use Reese's Peanut Butter. No difference in the taste at all....

mattathayde Apprentice
mattathayde
Posted
I didn't say it wasn't gluten free. I just had issues with it. I avoid Jif Peanut Butter becasue it does not sit well with me. Instead I use Reese's Peanut Butter. No difference in the taste at all....

got ya, thats what i was thinking you probably were getting at just wanted to make sure

-matt

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.