Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be Diabetes Instead?


invalidcharacter

Recommended Posts

invalidcharacter Newbie

I haven't been diagnosed, since my health insurance doesn't kick in until August, but I was feeling so poorly that I began an elimination diet nonetheless. I'm subsisting mostly on avacados, meat, rice, and vegetables.

Recently, I've noticed that I'm incredibly thirsty (I always chalked it up to chronic dehydration), and am going to the bathroom at least once an hour.

In addition to this, I get very sleepy and befuddled after eating, despite the lack of wheat.

I have some symptoms of diabetes, but I'm also somewhat thin. My BMI is only 22 and at 5'8'', my waist is 26''. I'm 28 years old.

Are the symptoms I've been experiencing typical of beginning an elimination diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
Recently, I've noticed that I'm incredibly thirsty (I always chalked it up to chronic dehydration), and am going to the bathroom at least once an hour.

That combination is a huge red flag for diabetes.

But diabetes would not have to be "instead" -- it could very well be "as well." Type I diabetes and celiac have a positive correlation. I am an example of someone with both.

invalidcharacter Newbie
That combination is a huge red flag for diabetes.

But diabetes would not have to be "instead" -- it could very well be "as well." Type I diabetes and celiac have a positive correlation. I am an example of someone with both.

Poor fellow, that sounds terrible.

I'm still hoping that the whole ordeal can be chalked up to my reluctant thyroid and a dash of boredom-induced somatization.

Here's hoping.

invalidcharacter Newbie

I forgot to mention this: I also have developed a small, white patch in the back of my throat and my lymph node is tender and enlarged. This may just be the result of my body fighting off a head cold, though.

missy'smom Collaborator

As Peter said, those are red flag symptoms for diabetes. Far better to get tested and find that it's not that, than to go undiagnosed. Early detection and awareness is KEY and makes a HUGE difference, which is why I strongly urge anyone with symptoms to get tested. Noone wants to face that diagnosis, not even doctors, it's much easier and more comfortable to put it off, but knowledge is power! There is a type of diabetes that is commonly found in thin people. It is a slow progressing autoimmune form. I am thin and so was dismissed by my doctors for decades because I didn't fit the profile, but after finally insisting on testing, I found that I was right all along and it appears that I am catching it at near end stage so my choices are now very limited. Even so, it's not the end of the world, but I might have had more choices if it had been caught earlier. Be aware that a glucose tolerance test will provide more information than just a fasting blood sugar reading and the more info you have, the better it can be assesed and treated. If I had gone by just a fasting number I would most likely have gone undiagnosed and ended up in an ER with full blown type 1. I had frequent urination for years and thought that was just me or normal, or chalked it up to being female or dehydrated. Now that I manage by blood sugar, I go about as often as anyone else. I never could understand how someone could visit my home, stay for hours, even eating or drinking and not use the restroom once! Now I can do the same.

invalidcharacter Newbie
As Peter said, those are red flag symptoms for diabetes. Far better to get tested and find that it's not that, than to go undiagnosed. Early detection and awareness is KEY and makes a HUGE difference, which is why I strongly urge anyone with symptoms to get tested. Noone wants to face that diagnosis, not even doctors, it's much easier and more comfortable to put it off, but knowledge is power! There is a type of diabetes that is commonly found in thin people. It is a slow progressing autoimmune form. I am thin and so was dismissed by my doctors for decades because I didn't fit the profile, but after finally insisting on testing, I found that I was right all along and it appears that I am catching it at near end stage so my choices are now very limited. Even so, it's not the end of the world, but I might have had more choices if it had been caught earlier. Be aware that a glucose tolerance test will provide more information than just a fasting blood sugar reading and the more info you have, the better it can be assesed and treated. If I had gone by just a fasting number I would most likely have gone undiagnosed and ended up in an ER with full blown type 1. I had frequent urination for years and thought that was just me or normal, or chalked it up to being female or dehydrated. Now that I manage by blood sugar, I go about as often as anyone else. I never could understand how someone could visit my home, stay for hours, even eating or drinking and not use the restroom once! Now I can do the same.

Thank you for the input. As soon as my insurance kicks in, I'll be able to discuss my concerns with a doctor and request a glucose tolerance test.

ravenwoodglass Mentor
Thank you for the input. As soon as my insurance kicks in, I'll be able to discuss my concerns with a doctor and request a glucose tolerance test.

You might want to see if you can find a clinic in your area. If you call your local Health Dept they can tell you where one is located. Many will charge on a sliding fee scale.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
Thank you for the input. As soon as my insurance kicks in, I'll be able to discuss my concerns with a doctor and request a glucose tolerance test.

As ravenwoodglass said, diabetes is nothing to fool around with. Please don't wait months to be seen. Diabetes can be controlled, but there can be serious side effects from lack of control, and these are permanent. Some people only become aware that they are diabetic when they lose their eyesight to glaucoma. Please do not wait.

ravenwoodglass Mentor
As ravenwoodglass said, diabetes is nothing to fool around with. Please don't wait months to be seen. Diabetes can be controlled, but there can be serious side effects from lack of control, and these are permanent. Some people only become aware that they are diabetic when they lose their eyesight to glaucoma. Please do not wait.

Peter is right about the risks to vision. One of the most serious is diabetic retinopathy which is permanent and progressive. Here is a link to info on it from the NIH

Open Original Shared Link

RollingAlong Explorer

I understand that folks are worried about your vision, but I am actually more concerned that you could end up in the hospital.

Could you afford to have a T1 diabetes dx as a pre-existing condition? Probably not. It is best to avoid getting a dx until you are insured and you could get an ER dx at this rate. You need to get your blood sugar under control until you get health insurance and have your appointment. (You're already on the wait list for the endo, right? It takes months to get in with those guys....)

Bloodsugar101.com has a lot of basic info and get a copy of Bernsteins book - you can read parts of it online.

Also get over to the forum

www.diabetes-book.com/cgi-bin/yabb2/YaBB.pl

The forum has been down this weekend (maintenance?) but will be up shortly.

If you want to be sure that we're all a bunch of over-involved worry warts... go buy a glucose meter. You can often get them free after rebate. I think Bernstein is recommending the Accucheck Aviva.

Keep us posted!

glutenfreejenny Apprentice

Since I've gone gluten free I've noticed I've been really dehydrated. A few times I've rushed to the drugstore to get some Gatorade to help. And I do also have frequent urination. But I am a normal weight. Do you have to be underweight?

missy'smom Collaborator
Since I've gone gluten free I've noticed I've been really dehydrated. A few times I've rushed to the drugstore to get some Gatorade to help. And I do also have frequent urination. But I am a normal weight. Do you have to be underweight?

The prevailing assumtion is that diabetes occurs most often in those who are overweight. The truth is that there are several kinds of diabetes and it can occur in people of any weight. Also sudden weight loss can be a warning sign of diabetes.

Nancym Enthusiast

Just as an aside, you can be slender and have type 2 diabetes also. It isn't all that rare actually.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    2. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.