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Doctor Or Dietician/nutritinist?


JBaby

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JBaby Enthusiast

Whats the best route to take to manage this. I figure with a Doctor, I would be a gunea pig for science sake but a dietician/nutritionaist may not be fully knowlegdable. I am in the middle of appealing my insurance companies decision to drop me from the plan. Without it definitely no doctor. My doctor an D.O. doctor misdiagnosed me for 2+ years. I need to find someone knowledgable. I am in Pittsburgh, PA

JBaby


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Jestgar Rising Star

I think I would try to find a good Naturopath. They are trained in whole body health and should be able to guide you through diet changes as well as being aware of what might be causing other issues. Get recommendations from people you respect. Check the docs accreditation, don't go back to someone who recommends a handful of supplements without trying lifestyle modifications first.

A good ND will send you to a Western Medicine doc if he or she finds conditions that are not treatable with natural means.

happygirl Collaborator

You may want to contact a local Celiac support group and ask them for recommendations of health practitioners that their members use, so that you go to someone that is experienced with Celiac/gluten.

daphniela Explorer

Insurance won't cover a dietitician or a nutritionist. It is best to find a doctor that specializes in Celiac unless you want to pay out of pocket.

sbj Rookie

Some insurance will cover a dietitian - mine did (Kaiser). I hope that you can remain insured - that would be a pity to be dropped. I would recommend a dietitian over a nutritionist for sure - anyone can call themselves a nutritionist. OTOH, a dietitian is not going to tell you anything about any of your symptoms - they won't be diagnosing anything.

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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