Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tried Regular Oatmeal Twice


sixtytwo

Recommended Posts

sixtytwo Apprentice

Last Thursday and this Tuesday, I tried regular oatmeal and it tasted so good with a little brown sugar and milk. However, I was so sick on Saturday night and last night which for me is extreme nausea, light headedness, and exaustion so bad that I could not stand up, I had to go to bed. I used to have these incidents before going gluten-free five years ago and have not had one since going gluten-free. Do you think eating oatmeal could have caused this? On Saturday I thought it was just overdoing it last week, but now that it happened again yesterday, I suspect the oatmeal. FOR SURE, I won't be eating it again and if it never happens again, I will know oatmeal and I do not get along. Do you think it could have been from Thursday to Saturday for the first batch to have caught up with me?

Barbara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I would say it is definitely the oatmeal. Technically oats are gluten free, however oats are generally grown in the same fields as wheat and processed, shipping, etc. in the same facilities. The potential for cross contamination is much higher than most other products. Personally I will only eat oats that come from a dedicated field and facility.

Also, there are many people with celiac, who aren't able to tolerate oats. I'm not sure how common that is, but I have heard people say they aren't able to tolerate them.

If you are looking for an instant gluten-free Oatmeal, I recently found Glutenfreeda's Instant Oatmeal. It's delicious. It comes in 3 varities. Apple Cinnamon with Flax, Maple Raisin with Flax and Banana Maple with Flax.

For baking, I use the Cream Hill Estates oats.

Juliebove Rising Star

Regular oatmeal is not considered gluten free. Because of the way it is grown, transported, etc. it is prone to cross contamination. Get some gluten free oatmeal. Costs more but it's worth it.

happygirl Collaborator

I definitely think its the oatmeal since regular oatmeal, due to processing, is not gluten free. I hope you feel better.

There are gluten free oatmeal options, including a new instant gluten-free oatmeal.

tarnalberry Community Regular

it's worth adding that since avenin, the oat protein, and gliadin, the wheat protein, are structurally so similar, approximately 10% of celiacs DO react to pure, truly wheat free,oats exactly the same as they do to wheat.

dilettantesteph Collaborator

I believe that I am one of those that react to oatmeal. I had gluten free oatmeal once and got so sick that I am not going to try it again to be sure.

loco-ladi Contributor

Bobs red mill makes something called "wicked good hot cereal" or something like that anywaqys, lol its kinda a cross between oatmeal and cream of wheat which I like when I have an oatmeal craving.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mattathayde Apprentice

im surprised if it takes 48 hours for a reaction, personally i get reactions in 2-3 hours tops, given mine are lower GI but i still would expect your reactions a bit quicker

i dont eat oat meal ever but my mom makes sun flower seed cookies with quaker oatmeal cookies and while i dont know honestly if they hit me or not i dont think they gave me much of an issue if any

-matt

LuvMoosic4life Collaborator

I have had a horrible reaction to gluten-free oats. Not to be too descriptive, but basically the whole day after was cramping and yellow D non stop.... :ph34r:

mysecretcurse Contributor
it's worth adding that since avenin, the oat protein, and gliadin, the wheat protein, are structurally so similar, approximately 10% of celiacs DO react to pure, truly wheat free,oats exactly the same as they do to wheat.

I agree. I consider oats the same as wheat and wouldn't trust gluten free oats any more than the regular.

I ate oats once and got really sick and after that I would never do it again. Exact same reaction as to wheat.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,293
    • Most Online (within 30 mins)
      7,748

    Jschwind351
    Newest Member
    Jschwind351
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      I should point out that iodine is known to exasperate dermatitis herpetiformis blistering. It can take several months or even years of a strict gluten-free diet for the IgA-TG3 deposits to clear from the skin. After the skin completely heals, iodine may no longer trigger symptoms. "The circulating antibodies disappear and skin symptoms resolve as a result of gluten-free diet but the cutaneous anti-TG3 IgA deposits may persist for several years. " Missing Insight Into T and B Cell Responses in Dermatitis Herpetiformis
    • Wheatwacked
      I get my supplements f from Pipingrock.com close to 10 years now. Good quality, prices, ship  worldwide.  My 25(OH)D is at 93 ng/ml after 10 years taking. In 2019 it had still only gotten to 47 ng/ml.  Celiac Disease causes low D from malabsorption. High Potency Vitamin D3, 10,000 IU, 250 Quick Release Softgels 4.8 out of 5 stars, average rating value. Read 1662 Reviews. Sale price$10.70 Regular price$21.39 Basil Carcinoma.  Basil cell carcinoma is the result of failure of the immune system to recognize fauty DNA in cells. It is iodine that causes apoptosis, killing old and defective cells.  Not enough vitamin D to control the immune system and not enough iodine to do the job.  I had a sebaceous cyst, my seventh facial cyst, in 2014.  It started looking like a blackhead, but grew (Third eye blind).  All my 7 previous cysts had drained and healed normally.  When I drained this, there was a hairball the size of a BB and it would not heal.  This was one of many reasons I started Gluten Free.  I chose to not have it surgically removed, because I realized I had nutrient deficiencies that were causing slow healing.  By 2015 I realized it was Iodine deficiency and started eating seaweed, which helped my muscle tone, but not the healing.  The warnings on iodine from the gov't were so scary, I was afraid to use them.  Turns out it is all based on one study on rats in 1948. "The Wolff-Chaikoff Effect:   Crying Wolf?"   Last year I started taking 600 mcg a day and it is reversing my glaucoma and fixing muscle tone, hair nails and skin all returning to healthy,  Brain fog, which had improved dramatically on Gluten Free diet, my thinking got even clearer with the iodine. Finally the cyst my bellwether since 2014, began to heal.  So I had it biopsied  in July 2025, came back basal cell carcinoma.  With the Iodine (Piping Rock Liquid Iodine 12 drops a day 😃 = 600 mcg) is healing normally and I have a follow up in December.  By then it will have healed.  It is scabbing over like a normal wound.  In 1970 the US stopped using Iodine as a dough modifier.  The daily intake of Iodine dropped in the US 50% between 1970 and 1984.  Also, prescriptions for thyroxine have doubled.  150 mcg the RDA is not enough for anything more than preventing goiter.  Growing up in the sixties just 2 slices of bread had 200 micrograms of iodine, add a glass of milk and iodized salt and you're at 300 mcg a day.  The safe upper tolerable limit in the US is 1000 mcg.  In Japan it is 3000 mcg and the average Japanese, traditional diet, averages above 1000 mcg.  Remember when in the 80's our schools were loosing competitions to Japanese schools?  Iodine.  And Japan has 50% less breast cancer.  Nicer hair nails and skin.  It the US our kids are getting dumber, more flabby.  Fertility is dependant on enough iodine, also. 600 mcg.
    • numike
      69yo M I have had skin cancer basal  I use a higher quality Vit D https://www.amazon.com/Biotech-D3-5-5000iu-Capsules-Count/dp/B00NGMJRTE
    • Wheatwacked
      Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom.  You likely have low vitamin D, another symptom.  Unless you get lots of sun.   Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies.  A lot of people have these symptoms just before an acute phase of Celiac Disease.  Each of the symptoms can have multiple causes that are not celiac disease,  but when you start having multiple symptoms,  and each symptom is treated as a separate disease,  you have to think, maybe these are all one cause. celiac disease. There is a misconception that Celiac Disease is  a gastrointestinal disease and symptoms are only gastro related.  Wrong.  It is an autoimmune disease and has many symptoms that usually are disregarded.  I made that mistake until 63 y.o.  It can cause a dermatitis herpetiformis rash,  white spots on the brain.  It caused my alcoholism, arthritis, congested sineses, protein spots on my contacts lenses, swollen prostate, symptoms that are "part of aging". You may be tolerating gluten, the damage will happen. Of curiosity though, your age, sex, are you outside a lot without sunscreen?  
    • trents
      It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
×
×
  • Create New...