Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Else Sensitve To Light


srthomas21

Recommended Posts

srthomas21 Explorer

especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.

Do you get the halo effect, where the light seems to fractionate into hundreds of little lights around the light source?

This happened to me immediately after the event which I am sure triggered my celiac response. My eyes then became sensitive to light during the day despite sunglasses all the time and would just stream in response. They told me I had "inadequate tears". Of course at the time they made this diagnosis I was also taking a medication that also had a side effect of potentially "making you blind" so I am assuming it had significant effect upon the eyes and muddied the waters. After I stopped the medication and stopped eating gluten this sensitivity and fractionation has gone away and driving at night is no longer such a nightmare. I no longer have to put the "adequate" tears in my eyes to stop them tearing. You figure it out because I can't. I do believe the gluten had a lot to do with it :rolleyes:

ravenwoodglass Mentor

The light sensitivity and night blindness could be a result of your not absorbing nutrients from your food. The night blindness can also be related to aging. Make sure you are getting enough vitamin A in your diet or in supplements. For me the light sensitivity has improved a bit but I am still effected by night blindness enough to have trouble driving at night but at my age the night blindness is unlikely to improve.

TrillumHunter Enthusiast

That's something that cleared up for me as I have healed. I do think it was related to deficiencies.

mommida Enthusiast

I had the sensitivity to light and fractionation of light after I had chicken pox at the age of 23. This had lasted for 2 years. I did have blood work done and found out I had an undiagnosed case of Mono with the antibodies in my system.

tarnalberry Community Regular

I am light sensitive, but I suspect it's related to me having fibro, as that is a central nervous system sensitization thing. I'm also sound sensitive. I'm not always equally sensitive to these things, but it can be pretty annoying sometimes. Stress levels affect it for me, and I try to do my best about moderating light levels - introduce myself to brightness gradually, make it darker gradually, in whatever way possible. (Traffic tunnels in sunny weather are the worst for me - that relatively sudden change from dark to *BRIGHT*.)

srthomas21 Explorer

Yes, I get that crappy fractional light thing. It stinks. I'm not sure what it is but it drives me crazy. Also, when a person is standing at a window and I'm facing the window talking to them the light from the window bothers me and it's hard to focus in on the person.

Whats the best way to check for nutritional d deficiencies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



monkeypoo Newbie

YES!! I am very sensitive to light and have found I am more sensitive after having consumed peppers, tomatoes, potatoes or especially oranges or anything containing orange rind.

The Fluffy Assassin Enthusiast
especially at night. Car lights and street lights are especially bothersome. Been to optometrist and opthamologis and given clean bill of eye health. Seem to start when all the other weird symptoms started.

Very. In my case, it's more likely the Asperger's than the celiac sprue. Biggest problem is getting to sleep, rather than night blindness or fractionalization. I slept with my head under the blankets or under a pillow for decades. Finally got a decent sleep mask a few years ago and things have been much better.

As to finding out about nutritional deficiencies (your question in your own reply), a simple blood test takes care of that. Or an array of blood tests, but they only need one sample of blood, so from your point of view it's one test.

Nadia2009 Enthusiast

I have light sensitivity and also sunlight sensitivity but only since last year for the later. After a bad sinus infection that went on for weeks and after 2 months of migraines (doctors said it was all due to the sinuses), I started having sunlight sensitivity. Now, I grew up in Africa and sunlight was never a problem actually I craved sunlight but now I need my sunglasses so much.

TinyOrchid Newbie

Yes! I'm incredibly night blind, especially when driving, headlights and street lights. Even the reflectors on the road etc...

crazy.

Dustda18 Rookie

I see starburst around lights at night, and when its sunny outside I must wear glasses cause it hurts my eyes to the point i almost close them. Got better though on a gluten free diet

nasalady Contributor

Yep....sensitive to light, loud noise. Mainly due to my fibromyalgia though.

  • 6 months later...
srthomas21 Explorer

Reviving an old thread.

Gluten free now for 6 months. The light fractionization thing is still bugging me.

The best way to describe it is when looking at a street lamp or headlights if you squint your eyes you can see many light rays that protrude from the light source. This is normal when you squint but I see these light rays without squinting. I can make them go away by opening my eyes really wide but I can't go around like that all the time.

Im not as sensitve to light since gluten free but definately more than normal people are. I have to wear a hat to sporting events such as pro basketball games and college football games because the lighting bothers me.

I wonder if this is a brain issue that will take more time to heal or maybe never get better. It sure is annoying.

Anyone else out there still with this or something similar?

  • 2 weeks later...
kayo Explorer

I have this as well and I believe it is due to Sjogren's which can be co-morbid with celiac and RA (and other auto immune illnesses).

In my case it causes severe dry eyes and I don't make enough tears. I also have dry mouth too. The lack of tears cause the corneas to dry and you get fractional light and sometimes foggy vision. Sometime you can have 20/20 vision but the dryness in the cornea causes sight issues. I went to see a cornea specialist and he's been a godsend. I use drops throughout the day and have had tiny little plugs (look like wine corks) placed in the tear ducts. They're called puntcal plugs. It's an easy in the office procedure and it's not painful or as scary as it sounds. This keeps the eyes moist as the tears don't drain out. I no longer need glasses because my cornea issues have been cleared up and I don't get the fractional light or foggy sight. In one eye the plug wouldn't stay so that tear duct was cauterized. Though that was NOT a pleasant experience that eye is doing amazingly well, better than my other eye that has the plugs.

I also believe my gluten and soy free diet is allowing me to make more tears. I noticed a slight increase when going gluten free and a bigger difference when I went soy free.

JillianLindsay Enthusiast

I am very sensitive to light! I also got a clean bill of eye-health from my optometrist. Someone (not an expert) told me a long time ago that it's simply because I have blue eyes and people with blue eyes are more sensitive to light. I have no idea if there is any truth in that. I've also never heard of vitamin deficiencies causing the sensitivity, that sounds much more plausible, perhaps I shall look into that further.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,548
    • Most Online (within 30 mins)
      7,748

    KandiWoods
    Newest Member
    KandiWoods
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.