Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Visiting Friends


Googles

Recommended Posts

Googles Community Regular

A lot of my good friends live in other states. I want to be able to visit them, but how do I do that with Celiac disease? Do I bring my own food? Do I only invite them to my place? How do I explain it to them? How do I explain it to new friends when I move next month?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

if something needs to be said about it, I go with "I'm gluten intolerant, so I can't have wheat, barley, rye, or oats."

explained. :)

if someone who deserves more explanation asks, I say "I have celiac disease, so eating those foods triggers an autoimmune reaction that damages my intestines."

no more explanation needed.

if someone says "well, can't you have just a tiny bit?" I just say "no." .

Googles Community Regular

Thanks for that, but I guess my question was more about how do I deal with eating when I visit? Do I buy and cook all my own food? That seems like it would be awkward. But if I was visiting for a couple of days or more I would need to eat.

Amyleigh0007 Enthusiast

I am vacationing with friends at their condo for a week with my kids. I am bringing all of our food and I will purchase fresh fruit, meat, and veggies when I get there. It's not a big deal to my friends. I am bringing mostly frozen microwavable food so I don't have to use my friends "contaminated" pots and pans. I will bring foil for the oven so I don't have to set our gluten free pizza on their "contaminated" racks. I will also bring plastic plates, bowls, and utensils.

Darn210 Enthusiast

When we go visiting . . . we give our host a grocery list prior to arrival . . . regular grocery store stuff, not the specialty items, with the name brands listed. We bring our own specialty stuff like the pasta or bread or brownies/cookies or pancake mix. If it's somebody that you don't feel comfortable asking them to have things on hand already, then just tell them that you are going to need to hit a grocery store when you get there.

I should say that these are all people that understand that my daughter must maintain a special diet. They understand that a lot of her food can be purchased at the regular grocery store as long as the correct brands are purchased.

I help with all meal preparation so that I can keep an eye on everything . . . this is also a good time to "educate" our family and friends on what all it takes to maintain this diet. We are fortunate that our family and friends really do try to do what they can and are interested in learning about Celiac.

Switch2GF Rookie

Stay positive about it. Don't make it sound like a burden on yourself or your hosts, they will feed off your attitude. I always give a simple explanation... anything natural, such as meats, veggies, and fruits are a safe bet.

Mango04 Enthusiast

You can always stick a bag of Tinkayada in your suitcase and have a pasta night with your friends. I've done it and nobody ever minds it. :) People also usually don't mind if you want to run to the grocery store when you get to town. You could also always suggest restaurants such as Outback or PF Changs if eveyone wants to eat out. Easy :)

Oh and yeah.....have at least some snacks on hand at all times, in case you're in a situation where others want to eat and you can't find anything safe on the menu. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

I go to Michigan to visit with family every year. My sister is gluten free, as is our dad, yet I am intolerant of so much, I take my own with me. This year I froze meals, and I always take my own pan along. I can buy food, stores are stores, no matter where you go. At first my family had a hard time understanding why I do what I do, now, they know it's just my way. I have not been glutened on vacation in a very long time, so I guess it works.

Googles Community Regular

Thank you all for your advice. I don't know when exactly I will be able to visit friends, but want to be prepared.

:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    2. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    3. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    4. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    5. - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.