Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lost A Lot Of Weight After Going Gluten Free


MomOf2PrettyGirls

Recommended Posts

MomOf2PrettyGirls Rookie

I've been semi over weight my entire life, however after self diagnosing myself a few months ago, i've dropped a lot of weight very easily.

I've never been able to lose weight easily. Actually, I couldn't lose weight at all, even with strenuous excercise. Since going Gluten Free (also Dairy Free(gives me stomach cramps and D), Corn Free(gives me headaches and sinus infections), and Cane Sugar Free(gives me heart palpitations and sweats)) i've lost about 12-15lbs. I don't feel bad, my stomach never hurts anymore and i have more energy, but it's just a bit scary to me.

I'm always terrified something major is wrong. I have such extreme acid reflux or GERD that i'm taking 2 Ranitidine at bedtime every night and sometimes I still have flare ups. I haven't been diagnosed by a GI, but rather my general physician. I do have a GI appt at the end of this month, so i'm anxious about that.

I was bulimic for almost 3 years when I was a teenager and i'm always terrified that that caused esophagus damage. Now that I have such bad reflux and pain, and not losing weight makes me automatically think cancer :( I hate being a worry wart. Any words of advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator

I know we always assume the worst! But I bet you may need something stronger than zantac. There are MUCH better acid reflux medications out there that actually help your esophagus heal (nexium is what I'm on. I took 4 zantac a day and still had problems. It's good that you're going to see a GI.

After going gluten-free, some people gain, some people lose weight. Could it be that you're eating healthier, less processed foods? dairy has a lot of calories and cutting out that with sugar couold easily cause weight loss. I lost 20 pounds after giving up the 8 glasses of milk I used to drink every day.

Don't worry, just follow up with the GI and keep us posted.

MomOf2PrettyGirls Rookie

Thank you! I am such a worry wart and always assume the worst.

My family told me the same thing. I cut out all processed foods, sweets, caffeine, snacks, dairy, etc.. and that was mainly what I previously ate. A LOT of cheese and sweets and bread!

ravenwoodglass Mentor

You say you went on the diet a few months ago. I would not be concerned. If the weight loss has come about during a very short time frame, like a week or two, and you have not increased your activiity level and are consuming the same calories then you might want to get checked out. Otherwise I would relax.

I lost about 15 lbs myself in just the month after diagnosis, but in my case it was mostly water weight. I went from a size 12 to a 4 during that time, mostly due to losing the bloat. I have now held steady at a good weight for my frame for the 7 years since diagnosis.

bittykitty Rookie

Mom I completely understand.I've probably lost 30 pounds since the end of Febuary, and it's still coming off.I actually had to cut back on my exercise a month ago,because I wasn't eating enough to keep up with my old hour a day routine.(my appetite is lesss than half of what it was, and, now that most dairy is out,consists of tea,produce,fish and chicken).Strange to flip from"I can't lose weight" to "I can't keep it on" so quickly.

mamaesq Rookie

I was diagnosed on October 2 and have lost nearly 30 lbs since then. I ran anywhere up to 7 miles at a time 4-6 times a week last summer and kept gaining instead of losing. Once I was diagnosed, I stopped running (mainly because of weather and laziness), but that's when my weight began to drop. Within two weeks I was down over 5 lbs and by December I had lost 20 lbs. I've slowly lost the rest over the last 7 months, and would probably have lost more if M&Ms weren't gluten free. I really only need to lose another 10-15 lb, but I'm back into a 4/6 from a 12/14 so I'm not complaining!

In Gluten Free for Dummies it says that overweight celiacs tend to lose and underweight celiacs tend to gain because as the intestine starts to heal, the body begins absorbing nutrients properly. In my case, I think my body got out of starvation mode and finally started to let go of all the excess baby weight.

I think it's an added benefit of being gluten free!!

EJR Rookie
I've been semi over weight my entire life, however after self diagnosing myself a few months ago, i've dropped a lot of weight very easily.

I've never been able to lose weight easily. Actually, I couldn't lose weight at all, even with strenuous excercise. Since going Gluten Free (also Dairy Free(gives me stomach cramps and D), Corn Free(gives me headaches and sinus infections), and Cane Sugar Free(gives me heart palpitations and sweats)) i've lost about 12-15lbs. I don't feel bad, my stomach never hurts anymore and i have more energy, but it's just a bit scary to me.

I'm always terrified something major is wrong. I have such extreme acid reflux or GERD that i'm taking 2 Ranitidine at bedtime every night and sometimes I still have flare ups. I haven't been diagnosed by a GI, but rather my general physician. I do have a GI appt at the end of this month, so i'm anxious about that.

I was bulimic for almost 3 years when I was a teenager and i'm always terrified that that caused esophagus damage. Now that I have such bad reflux and pain, and not losing weight makes me automatically think cancer :( I hate being a worry wart. Any words of advice?

Hi,

Just wanted to let you know that I also have developed almost all of my digestive problems since having gall bladder surgery (Dec. 07). Prior to that I had a problem with dairy (diarrhea & some bloating) and an allergy to eggs.

Since the surgery everything has gone crazy. I don't seem to be able to eat gluten now and many, many other foods. I have lost a total of 50 pounds since my gall bladder surgery. I was 168 lbs. (slightly overweight) and now weigh in at 118. I'm 5'7" so I'm now slightly underweight. I'm 63 years old and am fighting real hard not to loose anymore weight. It is very hard though with so many dietary restrictions.

I have a 'hiatal hernia' and have found that as long as I sleep with the head raised on my bed this stops a lot of the regurge for me. Have you tried any of the proton pump inhibitors? They helped me for a few weeks but then started to give me a lot of bowel pain so I stopped them. For some reason I'm not having much problem with regurge anymore like I used to. Perhaps it is the change in diet? my new bed with a head that can be raised? or perhaps my weight loss.

Sure hope you find some relief for your regurge. Have you had an upper endoscopy to have your esophagus checked?

Joyce


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beanpot Apprentice

I lost about 10lbs off of my small frame, but I don't feel bad and I think its mostly a good thing. I've developed a liking for baking gluten-free - muffins, cookies, quick breads, pancakes, which I think stabilizes my weight now and is very fun and satisfying.

You can try looking up what your weight should be based on your height, and just make sure you aren't too far off the mark with that. Also your doctor should be able to determine if you are too thin.

MomOf2PrettyGirls Rookie

Thank yo uall so much. That really eases my nerves. I keep telling myself it has to be the change in diet. I was so used to smothering everything in cheese and eating lots of sweets and breads. Now I basically eat raw fruits, veggies, lean meats, and everything made of rice (rice tortillas, rice milk etc..)

That is interesting to hear that overweight tend to lose weight and underweight tend to gain. It makes sense though.

Joyce that is so strange isn't it? I had a few problems after my daughter was born in Oct, but nothing like what occurred after my gallbladder surgery. It's awful now!

Thank you all again!

EJR Rookie
Thank yo uall so much. That really eases my nerves. I keep telling myself it has to be the change in diet. I was so used to smothering everything in cheese and eating lots of sweets and breads. Now I basically eat raw fruits, veggies, lean meats, and everything made of rice (rice tortillas, rice milk etc..)

That is interesting to hear that overweight tend to lose weight and underweight tend to gain. It makes sense though.

Joyce that is so strange isn't it? I had a few problems after my daughter was born in Oct, but nothing like what occurred after my gallbladder surgery. It's awful now!

Thank you all again!

Hi again,

Going back to the gall bladder surgery and the problems it can cause in some people. One specialist that I saw actually says that the digestive problems that I am having (including the very sore lower bowel) are likely caused by the gall bladder surgery. He said it can take a very long time for the digestive system to readjust after this surgery in some people. You are probably aware that the gall bladder acted as a 'holding tank' for bile and released bile when fat was eaten to enable proper digestion. When it is removed the bile from the liver drips into the large intestine. Bile is very alkaline and in some people causes diarrhea and bloating. They give people Questeran (cholestyramine) for this problem. It is supposed to soak up the excess bile in the bowel. Unfortunately I can't take the stuff as it makes me very stomach sick. For about 8 months after the surgery I had constant diarrhea but now I seem to have developed alternating very loose bowels and constipation. Questeran is quite constipating. Has your doctor ever suggested this to you?

Joyce

MomOf2PrettyGirls Rookie

No, I haven't seen my doctor again. I have never heard of that either..hmm. I agree it is taking a long time to recover from the surgery. So many told me it was a breeze, but mine was painful for a long time.

When you say sore lower bowel, what do you mean (sorry if that is to personal) My stomach is tender to touch right above my belly button and below my stomach. What would that be? Could that be where a possible Ulcer would be located? It is only tender at certain times. (early in the morning, when i'm very hungry, when laying on my back and one of my kids plops down on my stomach) I think it sounds like an Ulcer, but i'm not sure.

Korwyn Explorer
I was diagnosed on October 2 and have lost nearly 30 lbs since then. I ran anywhere up to 7 miles at a time 4-6 times a week last summer and kept gaining instead of losing. Once I was diagnosed, I stopped running (mainly because of weather and laziness), but that's when my weight began to drop. Within two weeks I was down over 5 lbs and by December I had lost 20 lbs. I've slowly lost the rest over the last 7 months, and would probably have lost more if M&Ms weren't gluten free. I really only need to lose another 10-15 lb, but I'm back into a 4/6 from a 12/14 so I'm not complaining!

In Gluten Free for Dummies it says that overweight celiacs tend to lose and underweight celiacs tend to gain because as the intestine starts to heal, the body begins absorbing nutrients properly. In my case, I think my body got out of starvation mode and finally started to let go of all the excess baby weight.

I think it's an added benefit of being gluten free!!

Looking back on it now, my symptoms began showing up when I was about 19. I also started gradually gaining weight. When I was in my early 20's I was actively (heavily) studying and pursuing Martial Arts. I was going to class 4 nights a week and on Saturday (a total of 11 2 1/2 to 3 hour classes). It was all I could to to maintain my weight at 190 lbs. When I was 18 I weighed 178.

EJR Rookie
No, I haven't seen my doctor again. I have never heard of that either..hmm. I agree it is taking a long time to recover from the surgery. So many told me it was a breeze, but mine was painful for a long time.

When you say sore lower bowel, what do you mean (sorry if that is to personal) My stomach is tender to touch right above my belly button and below my stomach. What would that be? Could that be where a possible Ulcer would be located? It is only tender at certain times. (early in the morning, when i'm very hungry, when laying on my back and one of my kids plops down on my stomach) I think it sounds like an Ulcer, but i'm not sure.

Hi Again,

When I say lower bowel pain, I'm referring to the colon and large bowel rather than stomach and small intestine. And yes, apparently for most people gall bladder surgery is a breeze but for about 2 or 3 of the patients develop long term diarrhea/bloating and other digestive problems.

The pain that you are describing sounds like it is either stomach or small intestine or possibly the transverse large bowel. Apparently the damage in celiac disease is in the small intestine. Ulcer pain is often reduced by eating so it sounds possible.

Joyce

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.