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Bowel Incontinence

Lynayah

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Lynayah Enthusiast
Lynayah
Posted

Hello,

I know that diarrhea is a symptom of Celiac disease, but I am wondering: Has anyone here also suffered from bowel incontinence -- leaks that occur? Augh! Gross, I know. Sorry about that, but I just have to know if I'm not alone.

Thank you for any assistance.

Best,

Lyn

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digmom1014 Enthusiast
digmom1014
Posted

Definately! Especially when I get into glutten somehow. I have been gluten-free for almost 2 yrs. and it still happen's occasionally. Give yourself a chance to heal and check for hidden gluten in your foods. I also recently have started doing kegel excercises-you know the one's your supposed to do to get your muscle tone back after pregnancy. I read somewhere that they are supposed to help so, I figured it couldn't hurt to try.

Sometimes, it is just nice knowing that other's are struggling with the same problem's you are.

daphniela Explorer
daphniela
Posted

I had that after my gallbladder was removed. I always thought that was why I had issues.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes it can, especially if it has attacked the nervous system. I got a lot of help with this from a physical therapist who specialized in patients with issues of that type. My nerve damage was severe so I do have some residual issues but I am much better than I was. Your doctor can give you a script for the PT and insurance should cover it.

Lynayah Enthusiast
Lynayah
Posted
  • Author
Yes it can, especially if it has attacked the nervous system. I got a lot of help with this from a physical therapist who specialized in patients with issues of that type. My nerve damage was severe so I do have some residual issues but I am much better than I was. Your doctor can give you a script for the PT and insurance should cover it.

Thank you so much for this information. I do probably have nerve damage - numbness in toes and tingling in legs and arms. Told carpal tunnel for years, and perhaps that's true but I'm wondering if Celiac might have more to do with it. Time will tell.

I would be interested in hearing more about your nervous system issues.

Wow, can't believe how long you went without a proper diagnosis . . . or maybe I can . . . I'm 55 and just now beginning to understand what might have been wrong with me for so many years, including dangerously low Vit. D count - chronic, less than 6 (50 - 70 is good), which also caused problems.

Not sure if the Vit D thing caused the possible Celiac or vice/versa. So much to learn, here.

THANK YOU SO MUCH! I hope others will post here as well.

sixtytwo Apprentice
sixtytwo
Posted

Glad to hear there are other people with this problem. It seems to happen to me if I get glutened or if I eat a lot of things with artificial sugar, like candy that is sugar free. It is so uncomfortable that it can happen and we are out among the public.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you so much for this information. I do probably have nerve damage - numbness in toes and tingling in legs and arms. Told carpal tunnel for years, and perhaps that's true but I'm wondering if Celiac might have more to do with it. Time will tell.

I would be interested in hearing more about your nervous system issues.

Wow, can't believe how long you went without a proper diagnosis . . . or maybe I can . . . I'm 55 and just now beginning to understand what might have been wrong with me for so many years, including dangerously low Vit. D count - chronic, less than 6 (50 - 70 is good), which also caused problems.

Not sure if the Vit D thing caused the possible Celiac or vice/versa. So much to learn, here.

THANK YOU SO MUCH! I hope others will post here as well.

With the numbness and the tingling going on you should get some sublingual B12. Make sure it is gluten free and make sure it is sublingual (dissolves under the tongue). The B12 should help with that and it will help your nerves 'heal' more quickly as it helps them to fire correctly.

My nervous system issues impacted me much like MS, in part because I have gluten ataxia and because of that I have issues with balance. I also had memory problems and mood issues, some of which has resolved but not completely.

Celiac can cause nutrient deficincies so it is likely the celiac caused the low D not vice versa.

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Lynayah Enthusiast
Lynayah
Posted
  • Author
With the numbness and the tingling going on you should get some sublingual B12. Make sure it is gluten free and make sure it is sublingual (dissolves under the tongue). The B12 should help with that and it will help your nerves 'heal' more quickly as it helps them to fire correctly.

My nervous system issues impacted me much like MS, in part because I have gluten ataxia and because of that I have issues with balance. I also had memory problems and mood issues, some of which has resolved but not completely.

Celiac can cause nutrient deficincies so it is likely the celiac caused the low D not vice versa.

Thank you for the advice on the sublingual B12. I will try it.

Counting the days here until I see the Doc. I just want to know!

Lynayah Enthusiast
Lynayah
Posted
  • Author
Glad to hear there are other people with this problem. It seems to happen to me if I get glutened or if I eat a lot of things with artificial sugar, like candy that is sugar free. It is so uncomfortable that it can happen and we are out among the public.

Yes, it can be a real nightmare. You're soooooo not alone!

Lynayah Enthusiast
Lynayah
Posted
  • Author

Ravenwoodglass,

I want to thank you most dearly for all your posts -- here and elsewhere. They have helped me so much.

ravenwoodglass Mentor
ravenwoodglass
Posted
Ravenwoodglass,

I want to thank you most dearly for all your posts -- here and elsewhere. They have helped me so much.

Your welcome. I had such a long road to diagnosis and so much damage. Trying to help others not have to go through the same thing makes it seem those years of pain had a purpose. I hope the B12 helps you and if the incontinence continues even after your bowels are more regular do not be afraid to ask for a referral to a physical therapist that specializes in those issues. The PT I went to was the one who was really responsible for my finally getting a diagnosis. I had given up by then and she nagged me for over a month to see an allergist. His prescribed elimination diet was able to pinpoint the gluten issue and then my GI finally listened and I was able to be diagnosed.

  • 3 weeks later...
Lynayah Enthusiast
Lynayah
Posted
  • Author
Glad to hear there are other people with this problem. It seems to happen to me if I get glutened or if I eat a lot of things with artificial sugar, like candy that is sugar free. It is so uncomfortable that it can happen and we are out among the public.

I've since talked with others who have the same problem. We're sooooooo not alone. Problem is, we never want to talk about it, so it goes hidden. I'm so glad for the responses to this post.

Thanks again.

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