Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attending A Paid Catered Event

captaincrab55

Recommended Posts

captaincrab55 Collaborator
captaincrab55
Posted

Hi All, New here, diagnosed about 7 weeks ago witn DH (biopsy) & celiac disease several days latter (blood test)..

I was planing on attending a picnic for IBEW#24 at Conrad's Ruth Villa in Middle River Maryland on 8-9-09. I called the caterer, spoke with Brad and requested a list of foods that may contain Gluten or are gluten-free. He could only list the foods being served and recommended that I don't attend!...

I have several Questions; Do I have a right to know what's in the food being served?

Would this be a violation of the ADA laws?

Thanks, Tom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Is there a reason you HAVE to attend? If not, I wouldn't give them my business. If you need to go, then ask if they can reduce the price since they can't serve you. You can always throw in the ADA thing and they might cooperate but it seems like they don't really care. Good luck!

captaincrab55 Collaborator
captaincrab55
Posted
  • Author
Is there a reason you HAVE to attend? If not, I wouldn't give them my business. If you need to go, then ask if they can reduce the price since they can't serve you. You can always throw in the ADA thing and they might cooperate but it seems like they don't really care. Good luck!

Attending the event is at will and I won't attend unless I get some cooperation from the Caterer (in this case, the Owner too). This event usually brings out (weather permitting) between 2000 to 3000 people of all ages. With a group that size, I can easily see 20 to 30 people (maybe more) that can group together to make a difference in the future...

All seemed so easy to locate food out until this event.. I went to a wedding 2 weeks ago and Atlantic Caterers bent over backwards to assist me, even offered to make a special meal... Hershey Park was very helpful and easy to deal with. Out Back Steakhouse has a seperate gluten-free menu...

Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights?

Thanks, Tom

Gemini Experienced
Gemini
Posted

Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights?

Thanks, Tom

tarnalberry Community Regular
tarnalberry
Posted

As far as I know, private events are not in any way covered by the ADA. (This is why you don't have to have wheelchair access to your house, for instance.) It's always best to check with a lawyer, but the ADA generally covers public (city/state/federal) sources and "generally accessible to the public, and big enough" sorts of things.

Mskedi Newbie
Mskedi
Posted

Like others have said, you don't have any rights in this instance, but you do have a voice. This company has heard your needs. Maybe in the future they will here from other people with Celiacs or allergies. Then they may decide it would be a good business decision to charge a bit extra for a special plate for such people. Maybe you won't make a difference right now with this company, but the more exposure people like us get (especially if it is polite exposure), the more likely companies are to see us as customers whose business they want.

modiddly16 Enthusiast
modiddly16
Posted

No caterer is obligated to cater to you and your food illnesses or allergies but I'll be honest with you. I don't know a good one that wouldn't want to make sure you were taken care of. I've been working in event planning in DC and Baltimore for the past few months and we are working with Classic Catering in Owings Mills right now. If you're looking for a good caterer who truly cares, I recommend them for sure. Not that I'm trying make a sales pitch, just my experience up here!

If it's an event that you'd like to attend, since it seems like it's pretty big and would be fun. I'd express my disappointment in the catering company to whomever its appropriate to do so and just either eat before or bring my own food. Celiacs shouldn't have to miss out on fun things because other people don't get it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I would bring my own food and when people asked why I wasn't eating the catered food I would be honest. I would say I tried to explain to the caterer my special dietary needs but they were very rude and unwilling to work with me. Maybe if they get business taken away from them (who wants to have rude caterers?) they will be more open minded in the future.

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Attending the event is at will and I won't attend unless I get some cooperation from the Caterer (in this case, the Owner too). This event usually brings out (weather permitting) between 2000 to 3000 people of all ages. With a group that size, I can easily see 20 to 30 people (maybe more) that can group together to make a difference in the future...

All seemed so easy to locate food out until this event.. I went to a wedding 2 weeks ago and Atlantic Caterers bent over backwards to assist me, even offered to make a special meal... Hershey Park was very helpful and easy to deal with. Out Back Steakhouse has a seperate gluten-free menu...

Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights?

Thanks, Tom

I think you should write a letter to your local's leadership pointing out the failure of this caterer to be accommodating (ironic, since that's what "catering" means) and suggest switching to Atlantic Caterers who did such a good job at the wedding you intended, and cc to the bad catering company's owner/manager/boss/whoever you can get. My fabulous psychic powers suggest that you'll find the bad caterers suddenly willing to cater to you a lot more readily than if you mention the ADA, which as mentioned above doesn't apply.

captaincrab55 Collaborator
captaincrab55
Posted
  • Author

Let me start by saying Thanks to All that chimed in with advice... One could read for weeks elsewhere and still not get the knowledge that one Topic here can bring to one dealing with DH and celiac disease..

After reading the replies, it looks like I'll back off on using the ADA... My State Legislator did send me an ADA link. I did reply to the link early yesterday, but will drop it... I will start writing letters to Praise food services that have helped me identify food ingredients and cc: the ones that aren't help-full. Hopefully, Conrad's Ruth Villa will get the message about helping one identify foods that contain GLUTEN by this time next year..

I was never known for my writing skills, but I will attempt an article for the IBEW LOCAL#24 newsletter and possibly get it printed in the International's IBEW newsletter.. Maybe someone can chime in with a good title for the article. I was thinking about, " Living With CELIAC Disease" as a title. Any help will be appreciated...

BTW, When I called Conrad's Ruth Villa inquiring about food ingredients, I never requested a special meal.

My intent was to locate a few foods that I could safely eat and bring other foods to make a complete meal. Instead of helping me with food ingredients, Brad Rudly Recommended that I don't attend the event. Keep in mind that I was required to pay for all that attended with me, including myself.

www Newbie
www
Posted

My opinion....you are going about this the wrong way. The squeaky wheel gets the grease. Whether in politics, the media, gay rights issues it applies everywhere. Approach the caterer with the idea you WILL get what you want. If it si before the event, call them and tell them to make something you can eat. No threat, just state you EXPECT them to comply. After all, you stated you are required to pay for it.

If you come the day of the event, then come early and see the catering manager and state the same things. You WILL accommodate me. I paid for the meal, I will be accommodated.

In America, we've become for to PC and mousy. The folks who get paid attention to are usually in the minority and they get everything they ask for at the majorities expense. I have at events like this and have been served at the very least an overflowing fruit plate that is the envy of the other guests at my tabel. Find a spine for goodness sake!

Gemini Experienced
Gemini
Posted
My opinion....you are going about this the wrong way. The squeaky wheel gets the grease. Whether in politics, the media, gay rights issues it applies everywhere. Approach the caterer with the idea you WILL get what you want. If it si before the event, call them and tell them to make something you can eat. No threat, just state you EXPECT them to comply. After all, you stated you are required to pay for it.

If you come the day of the event, then come early and see the catering manager and state the same things. You WILL accommodate me. I paid for the meal, I will be accommodated.

In America, we've become for to PC and mousy. The folks who get paid attention to are usually in the minority and they get everything they ask for at the majorities expense. I have at events like this and have been served at the very least an overflowing fruit plate that is the envy of the other guests at my tabel. Find a spine for goodness sake!

My opinion....very bad idea and my spine is fully intact, thank you! <_<

All those obnoxious, squeaky wheels may get their way short term but there is back lash and it will come. Nothing more arrogant than demanding that someone accommodate you or else. I also wouldn't be so stupid as to do so in anything food related because God only knows what will end up in YOUR meal!

I have no problems bringing my own food when finding something gluten-free at a catered event is not happenin'. My food is always way better than theirs and then people won't get the dopey idea that Celiacs are actually disabled whiners. I also don't like being sick because someone with little experience or food knowledge screws up my plate. I think that most Celiacs receive much better treatment trying to be nice to begin with when inquiring about obtaining a gluten-free meal. I know I have.

Gemini Experienced
Gemini
Posted

BTW, When I called Conrad's Ruth Villa inquiring about food ingredients, I never requested a special meal.

My intent was to locate a few foods that I could safely eat and bring other foods to make a complete meal. Instead of helping me with food ingredients, Brad Rudly Recommended that I don't attend the event. Keep in mind that I was required to pay for all that attended with me, including myself.

Mskedi Newbie
Mskedi
Posted
He should have been dope slapped with a stale, gluten-free roll!

:lol:

modiddly16 Enthusiast
modiddly16
Posted

You certainly can't walk into a place and demand that they accommodate you. I'd be afraid of what would end up in my food as well and it's not the caterers fault that you have to pay for the event, it's the event planner. Sometimes you can contact them and explain your situation and they'll just charge you less. I've done this several times and usually if you're kind, patient and pleasant about it...people are willing to help you. Being spiteful and demanding won't help our cause at all!

www Newbie
www
Posted

Everyone misunderstood my post. No demands or threats should be made. I did not write the words threaten or demand. You should instead ACT like your diet needs should be accommodated. If asking nicely is not well received, then you might consider an attitude change of you "expect" to be accommodated.

When a person wears jeans, t-shirt and flip flops you are judged by your appearance and taken less seriously than someone wearing better clothes and more dressed up.

Hey folks...calm down.

Gemini Experienced
Gemini
Posted
Approach the caterer with the idea you WILL get what you want. If it si before the event, call them and tell them to make something you can eat. No threat, just state you EXPECT them to comply. After all, you stated you are required to pay for it.

If you come the day of the event, then come early and see the catering manager and state the same things. You WILL accommodate me. I paid for the meal, I will be accommodated.

If you re-read your original post here above, you stated you EXPECT them to comply and they WILL accommodate you. I saw you added no threat but those 2 sentences sounded awfully arrogant to me and it is not an attitude I would ever use on anyone. As for the appearance thing, that's comparing apples to oranges, even though your basic opinion is correct....you are treated better if you are well dressed and groomed. I am just trying to figure out how that has anything to do with a food issue.

Would you really eat anything prepared, unseen, by a catering company after saying something like that? You are a bigger risk taker than I am! ;)

No one is getting upset about this so we don't need to be told to calm down. I just think you have to walk a fine line when asking for a food intolerance to be accommodated. If there is initial resistance, I drop it because I figure they are idiots and don't know enough about food to get it right. :lol: There will be more and more folks who do gluten free catering in future so it won't be long before things become easier on that front. Whoever would have thought that a company as mainstream as Betty Crocker would do a gluten-free line?

lovegrov Collaborator
lovegrov
Posted
Hi All, New here, diagnosed about 7 weeks ago witn DH (biopsy) & celiac disease several days latter (blood test)..

I was planing on attending a picnic for IBEW#24 at Conrad's Ruth Villa in Middle River Maryland on 8-9-09. I called the caterer, spoke with Brad and requested a list of foods that may contain Gluten or are gluten-free. He could only list the foods being served and recommended that I don't attend!...

I have several Questions; Do I have a right to know what's in the food being served?

Would this be a violation of the ADA laws?

Thanks, Tom

Maybe I missed it, but who is Brad? Is he the owner or the chef? If not, move up the chain to somebody who really knows something.

richard

captaincrab55 Collaborator
captaincrab55
Posted
  • Author
Maybe I missed it, but who is Brad? Is he the owner or the chef? If not, move up the chain to somebody who really knows something.

richard

Brad is the person @ Conrad's Ruth Villa located in Middle River, Maryland that answered the phone. I did ask for a manager and Brad recommended that I don't attend.. It was like he was afraid of catching CELIAC Disease

captaincrab55 Collaborator
captaincrab55
Posted
  • Author

Little Up-date that I didn't include in my last Post.

I sent a CERTIFIED Return Receipt letter to Conrad's Ruth Villa yesterday.. I did cc: a few people, including; Friends with CELIAC Disease. They should get the letter today.

captaincrab55 Collaborator
captaincrab55
Posted
  • Author

The letter I wrote to Conrad's Ruth Villa yesterday arrived today. Fred Conrad called the Local #24 officer that I cc: the letter, so he could contact me.. First off he informed me that he didn't employee anyone by the name of Brad and apologized that someone gave a fictitious name. He then went on to inquire about CELIAC Disease and the Gluten Free diet..

Long story short, Conrad's Ruth Villa will check with their food vendors for ingredients and relay that information to me early next week. There was also an offer to special batter and fry up some chicken just for me. I declined, knowing that cross contamination could easily happen.

The call ended with Fred Conrad Thanking me for bringing CELIAC Awareness to Conrad's Ruth Villa.

Mskedi Newbie
Mskedi
Posted

Sounds like it's good you wrote the letter! :)

captaincrab55 Collaborator
captaincrab55
Posted
  • Author
Sounds like it's good you wrote the letter! :)

The letter did turn out as a, "WIN WIN for CELIAC Disease Awareness".. It did cost $5.54 to send the letter Certified Return Receipt, but it assured me that my message would be delivered to someone that could be held accountable. In this case, the letter reached the property owner / caterer (same person)..

Now I must offer a, "Big Thanks" to all that "Chimed In" on this Topic...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.