Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Go Slowly Off Gluten Vs. Cold Turkey?


MKat

Recommended Posts

MKat Explorer

I've been reading about gluten withdrawal symptoms (like fatigue and depression). When I did a mostly gluten free test for 3 weeks this spring I was extremely exhausted. I was also having thyroid issues - so it was one or the other or a combination of the 2 but I was a mess. BUT, my stomach was GREAT!! I went back on gluten for about 2 months to be tested and was miserable.

I have tested negative w/blood work and biopsy. My doc might do a genetic test at some point.

Anyway, to avoid the major gluten withdrawl symptoms again, is it possible to slowly go off gluten rather than go cold turkey? I realize this might not work because the longer you're off gluten it seems the more problems you have when you have some.

I also wonder how you tell if you have a gluten intolerance or just a wheat intolerance?? I was really hoping for a positive test result so I wouldn't have to play around w/stuff so much :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

if I were you I would just stop eating it all togejther. The more you eat it the more damage you do..so I would just face the withdrawal knowing you'll be a brand new healthy person soon

runningcrazy Contributor

Plus, since you've done it before the switch may be easier because you've already gone tjrouh withdrawal!

ravenwoodglass Mentor

I also think that you should do the cold turkey. One thing that might help with the withdrawl is some sublingual B12. By going off it slowly you are simply keeping the antibodies going until you finally quit. Be gentle with yourself and try to make sure you are doing things that you enjoy during the withdrawl period. The withdrawl should only last a week or so if you are not getting CC'd so make sure you read as much as you can about everything you need to be careful of.

modiddly16 Enthusiast

cold turkey!!! the longer you let gluten linger in your diet, the longer it will take for your body to heal itself! the sooner you eliminate the stuff from your diet, the sooner you'll start to feel better!! the withdrawal symptoms are nothing compared to the aftermath of a glutening in my opinion

Mskedi Newbie

I think when quitting anything it's easier to go cold turkey. Otherwise you can keep telling yourself "this is the last one!" indefinitely. Because this is a health issue, it's all the more important to quit right away.

Gemini Experienced
I've been reading about gluten withdrawal symptoms (like fatigue and depression). When I did a mostly gluten free test for 3 weeks this spring I was extremely exhausted. I was also having thyroid issues - so it was one or the other or a combination of the 2 but I was a mess. BUT, my stomach was GREAT!! I went back on gluten for about 2 months to be tested and was miserable.

I have tested negative w/blood work and biopsy. My doc might do a genetic test at some point.

Anyway, to avoid the major gluten withdrawl symptoms again, is it possible to slowly go off gluten rather than go cold turkey? I realize this might not work because the longer you're off gluten it seems the more problems you have when you have some.

I also wonder how you tell if you have a gluten intolerance or just a wheat intolerance?? I was really hoping for a positive test result so I wouldn't have to play around w/stuff so much :)

If you have a gluten intolerance or sensitivity, just stop eating gluten....period. It's not heroin you are trying to dump, just gluten. If you suffered from exhaustion, that is not a symptom of stopping gluten as you should start feeling better immediately, if you have truly gone gluten-free. It may take time to heal, but you should feel better in many ways, right away. The exhaustion was most likely from your thyroid problems. I have Hashi's and by the time I was diagnosed, the exhaustion was mind-boggling, it was so extreme. The exhaustion from Celiac paled in comparison to the exhaustion from low thyroid and I was severely anemic with multiple vitamin deficiencies to boot!

Have you treated the thyroid problem? It makes such a profound difference!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Cold turkey, without question.

richard

cas has MMMhope Newbie

Ohh I'm going to be the one person to say I slowly went off it. I had read about how some people had crazy reactions to cold turkey, and I just felt better by slowly going off for that reason and others. I felt like everyday I got more comfortable with it. I weened it out for 3 weeks and at the start of the 4 week I was 100% gluten free. In that 3 week time, I set up "my" kitchen, bought gluten-free food, bought the new flour, bought cookbooks, books about celiac disease/gluten-free, found store that carried gluten-free foods, went to a celiac disease chapter meeting in my area ect.. At this point for me there was so much I just couldn't stomach that it was never a "one more" it was time for me to mentally deal with all these changes that were happing.

I'm not sure what or if there is the right way or best way to do this, I just know that I eased into and I have felt 100% better.

darlindeb25 Collaborator

Cold turkey, absolutely. Even if you feel bad for another week or two, you will soon feel so much better, you will wonder what took you so long!

Northern Celiac Newbie

Cold Turkey, I was so sick that before I had my biopsy I was told don't worry about eating a gluten-free diet. So I was eating gluten-free without a problem.

Best of luck

mysecretcurse Contributor

Definitely cold turkey, but there is such a learning curve with figuring out what does and doesnt have gluten in it in the beginning that most likely it will take awhile to be 100% free anyway (at least for me thats how it was).

:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,643
    • Most Online (within 30 mins)
      7,748

    James W.
    Newest Member
    James W.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.