Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh On My Scalp

Lawspike

By Lawspike
in Dermatitis Herpetiformis

Recommended Posts

Lawspike Rookie
Lawspike
Posted

I was diagnosed 7/10/09 with Celiac. Almost immediately after, I got confirming biopsy for dh on my scalp, back and forehead. The back and forehead had JUST started, and thankfully - and is going away, FAST!

I can't remember in the last 15-20 years, or more, when I was not trying to control a *psoriasis* outbreak on my scalp. Special shampoos, creams and WEARING GLOVES - in order to avoid scratching my scalp and what skin was left that was actually not raw, bleeding or worse. July 22 was the beginning of my gluten/casein/soy/eggs free elimination.

I AM SHOCKED. This is the FIRST TIME in almost two decades that I have nothing - NOTHING - on my scalp, EXCEPT HAIR!!!!!!!!!!!!! NO LUMPS, no p%$#@# bumps, no bleeding under my nails when I scratch an itch (and I have barely even scratched an itch, at that, in nine days!

I AM SO ECSTATIC! I know I have a LOOOOOOOOONG way to go with the rest of my horrible Celiac ailments, due to YEARS of misdiagnoses... BUT, I HAD to share this! I am almost brought to tears, by the simple fact that my head is almost completely cleared up... And, I have not even noticed that brushing it does not even hurt!! :D

:D :D :D :D :D :D :D :D :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I'm so happy for you!! :D It's wonderful, isn't it, when we finally have an answer--and better still that there's something we can do about it.

ravenwoodglass Mentor
ravenwoodglass
Posted

I felt like jumping for joy too. I had the sores all over my face also and it is soooo wonderful when they are gone. I am so glad you had a quick response, I did to.

YoloGx Rookie
YoloGx
Posted

Yay for you!

Bea

rpinette Newbie
rpinette
Posted

Hi Lawspike,

I'd love to know where you're located. I'm looking for a Doctor in the LA area to determine if I too have DH as I've had the SAME symptoms on my scalp for over 2 years now & would LOVE to find out what it is!!

Thanks!!!

Lawspike Rookie
Lawspike
Posted
  • Author
Hi Lawspike,

I'd love to know where you're located. I'm looking for a Doctor in the LA area to determine if I too have DH as I've had the SAME symptoms on my scalp for over 2 years now & would LOVE to find out what it is!!

Thanks!!!

Hi! I am in TN. The armpit of the south! LOL.... was relocated for husband's career - from South Florida! I actually marched back into the HARVARD trained dermatologist I was seeing here - AFTER my Celiac biopsy and follow up bloodtests came back SCREAMING CELIAC... and DEMANDED he biopsy the scabby things... on my scalp. One way to tell if it is DH. SURE AS ANYTHING... it was! I wanted to knock him out. 20 creams and hundreds of dollars in visits... over 2.5 years...

tell your dermatologist you have Celiac and want a biopsy... they should have NO problem... they just scraped one of my things on the scalp... a few days I waited and WHALAH!

declan Newbie
declan
Posted
I was diagnosed 7/10/09 with Celiac. Almost immediately after, I got confirming biopsy for dh on my scalp, back and forehead. The back and forehead had JUST started, and thankfully - and is going away, FAST!

I can't remember in the last 15-20 years, or more, when I was not trying to control a *psoriasis* outbreak on my scalp. Special shampoos, creams and WEARING GLOVES - in order to avoid scratching my scalp and what skin was left that was actually not raw, bleeding or worse. July 22 was the beginning of my gluten/casein/soy/eggs free elimination.

I AM SHOCKED. This is the FIRST TIME in almost two decades that I have nothing - NOTHING - on my scalp, EXCEPT HAIR!!!!!!!!!!!!! NO LUMPS, no p%$#@# bumps, no bleeding under my nails when I scratch an itch (and I have barely even scratched an itch, at that, in nine days!

I AM SO ECSTATIC! I know I have a LOOOOOOOOONG way to go with the rest of my horrible Celiac ailments, due to YEARS of misdiagnoses... BUT, I HAD to share this! I am almost brought to tears, by the simple fact that my head is almost completely cleared up... And, I have not even noticed that brushing it does not even hurt!! :D

:D :D :D :D :D :D :D :D :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


declan Newbie
declan
Posted

I am so glad for you Very many of us know the joy of finding out what is wrong and finding a solution. Good luck.

declan

Bonnie Bryant Newbie
Bonnie Bryant
Posted

Hi There,

Congrats on finally having an answer and a solution to the problem. My name is Bonnie Bryant and I have a friend who just found out she has Celiac Disease and she needs special shampoo to keep her hair from drying out and body washes to keep her skin from getting irritated. I sell AVon and she asked me if they Have Gluten free Product like shampoo, body wash conditioner makeup. etc. And i have a list of all that they have that IS GLUTEN FREE. I was shocked myself asd i did just start working with Avon. They have an amaxing amount of Gluten Free Products. If you need any way of finding out let me know...my email is Bonnie@mulelighting.com and my Avon web siite is:

Open Original Shared Link

Thanks for sharing !!

Bonnie bryant

angieInCA Apprentice
angieInCA
Posted

Congrats! I can relate to your elation on realizing what has really been going on all these years and can now take control and regain your heath. Life is Good!

romi Newbie
romi
Posted

Could someone tell me if you can still get this dermatitis if you are already on a gluten free diet? I was diagnosed about 7 years ago, but have this dermatitis very bad in my scalp and forehead. What does anyone if anything use for this condition?

ravenwoodglass Mentor
ravenwoodglass
Posted
Could someone tell me if you can still get this dermatitis if you are already on a gluten free diet? I was diagnosed about 7 years ago, but have this dermatitis very bad in my scalp and forehead. What does anyone if anything use for this condition?

Have you checked whether your shampoos etc are safe? What has you dermatologist said about it and have they tested it and confirmed it is DH? If they have then gluten may be sneaking in somewhere.

YoloGx Rookie
YoloGx
Posted

You could also have some other allergen...or even candida overgrowth showing on your skin. But do check, maybe the other respondent is right and some gluten has snuck in somewhere or other...

Bea

  • 2 weeks later...
rpinette Newbie
rpinette
Posted
Hi! I am in TN. The armpit of the south! LOL.... was relocated for husband's career - from South Florida! I actually marched back into the HARVARD trained dermatologist I was seeing here - AFTER my Celiac biopsy and follow up bloodtests came back SCREAMING CELIAC... and DEMANDED he biopsy the scabby things... on my scalp. One way to tell if it is DH. SURE AS ANYTHING... it was! I wanted to knock him out. 20 creams and hundreds of dollars in visits... over 2.5 years...

tell your dermatologist you have Celiac and want a biopsy... they should have NO problem... they just scraped one of my things on the scalp... a few days I waited and WHALAH!

THANK YOU LAWSPIKE. I am going to ask my Dermatologist to do a biopsy & check for DH.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,691
    • Most Online (within 30 mins)
      7,748
    Gigi2025
    Newest Member
    Gigi2025
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.