Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor Actually Listened To Me This Time!


Amyleigh0007

Recommended Posts

Amyleigh0007 Enthusiast

I showed him my gene test results. He said 30 years ago he would have laughed at gene testing. But his daughter is going through med school right now and she said that everything is being dx by gene testing. He said based on the gene testing and my positive response to the diet that he can comfortably diagnose me with Celiac. He said he was shocked that people now can order gene testing over the internet without a doctor's permission. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

"He said he was shocked that people now can order gene testing over the internet without a doctor's permission. laugh."

:lol::lol::lol:

This man still has much to learn. The noive of it, to take away from doctors the key to the vault that contains medical information. :lol:

He would probably be horrified to learn that in New Zealand you can refer yourself to a physical therapist, too. As for the idea that you can self-diagnose and actually be right..... it defies the imagination.

Jonbo Apprentice
"He said he was shocked that people now can order gene testing over the internet without a doctor's permission. laugh."

:lol::lol::lol:

This man still has much to learn. The noive of it, to take away from doctors the key to the vault that contains medical information. :lol:

He would probably be horrified to learn that in New Zealand you can refer yourself to a physical therapist, too. As for the idea that you can self-diagnose and actually be right..... it defies the imagination.

Well, he has been in the profession for at least 30 years ;) So he probably doesn't quite grasp just what you can fully do online yet :lol:

Congrats though for the "official what you already knew" diagnosis! (sounds weird congratulating someone for being diagnosed with Celiac...)

Gfresh404 Enthusiast

Congratulations!

It must feel good to finally get an "official" diagnosis.

I'm just curious, what genes came up positive through EnteroLab? Because I had all tests come up negative (including the genetic tests the doctor ordered). And would also like an official diagnosis just for s$#&s and giggles.

Thanks

ravenwoodglass Mentor

I am glad the visit went well and you were able to teach your doctor something. Now on to the business of healing!!!!!!

ang1e0251 Contributor

Congratulations! Now you can keep your dr and kudos to him for changing with the science and not being stubborn.

Amyleigh0007 Enthusiast
Congratulations!

It must feel good to finally get an "official" diagnosis.

I'm just curious, what genes came up positive through EnteroLab? Because I had all tests come up negative (including the genetic tests the doctor ordered). And would also like an official diagnosis just for s$#&s and giggles.

Thanks

Thanks everyone! I feel vindicated! He seemed much more open minded then the previous times I had seen him. I think a lot has to do with his daughter going through med school and updating him on what's going on right now.

Gfresh- I had gluten sensitivity gene testing done through Enterolab (no doctors order needed). It turns out I have a Celiac gene (DQ 8) and a gluten sensitivity gene (I'm not sure what that is specifically). Because I have both genes I have an even greater chance of developing Celiac/gluten sensitivity. Going through Enterolab was a very easy process. It took about 16 days to get my results.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast

I am happy for you that your Doctor has finally seen the light! Happy Healing!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748

    dalimoda
    Newest Member
    dalimoda
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.