Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like A Yo-yo


KathiSharpe

Recommended Posts

KathiSharpe Apprentice

I'd previously been gluten-free for several years until the GI doc told me I absolutely, positively, was NOT celiac. So I went back to eating gluten and (some quickly and some over time) my overt symptoms went completely away... especially the odd feeling I always got in my mouth after eating gluten (it felt like my mouth was burned by hot hot coffee).

However I did have occasional tummy trouble and fatty poops, alternating d/c (but not BAD), HUGE weight gain, and my hormones are out of control. The docs I've seen in the interim dismissed it all as "normal" or me being flighty or an assortment of other illnesses (none of which bore out, in spite of tens of thousands of dollars in testing)

So - due to research related to the thyroid and female hormone issues, I decided about 10 or 12 days ago to go gluten-free again, "just to see".

My body's response was pretty incredible - I've lost nearly 13lbs and feel felt great. It was like someone flipped a switch, the difference is that dramatic. The skin rash on my chest is was almost gone, my foot is clearing up, and so are my fingers now (none of which actually looks like pics of DH, so I'm not sure).

BUT - a couple days ago, not thinking, I tossed the hambone (left over in the freezer from my pre-gluten-free days) into a pot of beans. I knew immediately after eating that I'd made a mistake... my mouth felt burned! The next morning my belly was huge and rumbly, and I've spent the last couple days with outrageous and painful diarrhea. In fact yesterday I travelled with a friend on business and had to keep close tabs on the nearest bathroom. And the rash on my chest is back!

Needless to say I'm tightening up on my diet and carefully sorting through my frozen meat to be sure I don't get glutened again!

So here's my question - how could I go for several years, eating gluten every day, and not be overtly affected... then stop eating it entirely and WHAM my "glutened" symptoms are so incredibly severe?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

There is something that doctors call the 'honeymoon' effect and was the reason why doctors thought that children could outgrow celiac. I think after you have healed and your body had been cleared of the antibodies it can take some time for them to reappear to the extent where symptoms are severe again. Your antibodies did build up though and your body was really happy when you stopped eating gluten. It is now trying to let you know just how much it doesn't want to be poisoned anymore and is showing you through the strength of your reactions.

KathiSharpe Apprentice

OH!

Now that makes sense. Thank you!

Tabasco Apprentice

Kathi,

Can you share your research on hormones and thyroid issues? I believe that my weight and gluten issues are also connected to hormones. After watching something on TLC about the science of obesity I think it as all more connected than we realize. (ie I didn't realize it was hormones that tell your brain that you're hungry.) I also didn't know that Cushings Disease is a pituitary problem.

It just seems that the older I get the harder it is to lose but it sure is easy to gain!

Also...when I gain weight, my libido decreases. I realize that this can be psychcological as well but hormones seem to be the answer to most everything!

I think that we get worse after abstaining for a while is like what we see in the nedical field as a rebound effect.

Rebound effect is the tendency of a medication, when discontinued, to cause a return of the symptoms being treated more severe than before.

We also see this in repeated exposures to allergens such as latex. (Which I am allergic to.) You are exposed on a regualr basis then all of a sudden, one day...BAM! You break out in a rash and can't breathe.

Lynayah Enthusiast
Kathi,

Can you share your research on hormones and thyroid issues? I believe that my weight and gluten issues are also connected to hormones. After watching something on TLC about the science of obesity I think it as all more connected than we realize. (ie I didn't realize it was hormones that tell your brain that you're hungry.) I also didn't know that Cushings Disease is a pituitary problem.

It just seems that the older I get the harder it is to lose but it sure is easy to gain!

Also...when I gain weight, my libido decreases. I realize that this can be psychcological as well but hormones seem to be the answer to most everything!

I think that we get worse after abstaining for a while is like what we see in the nedical field as a rebound effect.

Rebound effect is the tendency of a medication, when discontinued, to cause a return of the symptoms being treated more severe than before.

We also see this in repeated exposures to allergens such as latex. (Which I am allergic to.) You are exposed on a regualr basis then all of a sudden, one day...BAM! You break out in a rash and can't breathe.

Tobasco,

You might enjoy reading Jillian Michael's Master Your Metabolism: The 3 Diet Secrets to Naturally Balancing Your Hormones for a Hot and Healthy Body. It addresses some of the issues you mention.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      7

      Burning Sensation in the small intestine

    2. - cristiana replied to pilber309's topic in Related Issues & Disorders
      7

      Burning Sensation in the small intestine

    3. - trents replied to pilber309's topic in Related Issues & Disorders
      7

      Burning Sensation in the small intestine

    4. - Scott Adams commented on Scott Adams's article in Winter 2026 Issue
      3

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    5. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      7

      Burning Sensation in the small intestine

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    Avi Salmon
    Newest Member
    Avi Salmon
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • pilber309
      Last one was about 2 yrs ago nothing untoward was seen  
    • cristiana
      I agree with @trents, could be worth having another scope. Oddly enough I'm in the same boat except my current odd sensation is near my appendix, I think I'll request a colonoscopy for peace of mind.
    • trents
      Yes, take this up with your GI doc during the next visit. It might be a good idea to get an upper GI scoping done if you haven't had one done since diagnosis.
    • pilber309
      I will be doing in the new year. I had a thought that it might be Diverticulitis but I have no other symptoms related to that.
    • cristiana
      Have you mentioned it to your gastroenterologist?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.