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Wearing Medical Alert Bracelet?


mytummyhurts

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Kurly Newbie

SKBird I would highly reccomend you get a medID bracelet, I am currently going to school for EKG and phlebotomy and one of the antiseptics frequently used it betadine. If for any reason you are not conscience and they need to start an IV you don't want them to use the betadine, plus all the other antibiotics that you are also allergic to. Although your reactions until recently have been just hives, if you are having a crisis, that reaction could be hightened and you don't want any added complications. The celiac part of the medID is the least of your concern, but once getting one, might as well add it.

Kaiti, I had a very interesting allergy testing experiences. I had done many years ago the skin prick test and had been told that I was allergic to some airborn stuff (mold, dust, cockroaches, ragweed...), recently when I got sick I saw a new allergist who did a blood test. The weirdest thing... I came back as being allergic to NOTHING! It turns out I have very reactive skin but not actually allergic to anything. I have reactive airways and apparently gluten sensitivity (extremely sensitive!) My skin reacts to almost anything and everything! The new allergist said that for people like me with reactive skin the prick test gives false negatives. So happy to hear you are having the blood tests.


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psawyer Proficient

*** Old Topic Alert ***

This topic was dormant for more than six years. The post above revived it. Please be aware that information here may be out of date, and most of the previous participants are no longer active members of the board.

  • 1 month later...
Betty Wheaton Newbie

I picked up a frozen Amy's mac and cheese,thinking it was the gluten free which I always buy.The container looked the same,but I hadn't notice that it didn't say gluten free. I went into shock a while later,was alone,scared,and couldn't move to get to the phone.Finally I was able to get to the bed,and laid there until I felt better. I had never read about this,and have been a Celiac for most of my life.I also have followed a gluten free diet,and had never eaten a meal of gluten until recently. Is it necessary to keep an epi-pen with me from now on,and also being very careful with my diet?

sariesue Explorer

I picked up a frozen Amy's mac and cheese,thinking it was the gluten free which I always buy.The container looked the same,but I hadn't notice that it didn't say gluten free. I went into shock a while later,was alone,scared,and couldn't move to get to the phone.Finally I was able to get to the bed,and laid there until I felt better. I had never read about this,and have been a Celiac for most of my life.I also have followed a gluten free diet,and had never eaten a meal of gluten until recently. Is it necessary to keep an epi-pen with me from now on,and also being very careful with my diet?

Epi-pens only work for allergic reactions so it would not be helpful in a celiac reaction unless you also have a wheat, barley, or rye allergy.

mamaw Community Regular

I purchased the Care USB bracklet for other serious life threating allergies I have. I do carry a epi-pen for my angio lymphatic edema that happens quickly as well.As an adult I wouldn't have even considered the bracklet if my only issue was celiacbut since I had other severe issues I decided & my doc thought it would be a good idea. Esp.if I was alone or in a car accident & there was no one who could speak for me...

I do agree with another poster that small kids need to use a brackletif they react strongly to gluten. I know a small child that becomes violently ill from gluten & ends up in the hospital every time...not a normal case for sure but the bracklet states the violent

reaction...They also have asthma ...

I believe if a person is not following the gluten free lifestyle they have no reason to understand the issues with gluten.. which I think is understandable...

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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