Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Solve My Mystery!


RideAllWays

Recommended Posts

RideAllWays Enthusiast

Okay, so I am now inbetween puke-breaks and I thuoght I would try and figure this out. I had a migraine all morning since around 9, slept from noon until four, have been throwing up and D, feeling depressed and teary as well. I have no idea what could have made me feel this way.

Dinner last night

Baked potato topped with stir-fried (in water) peppers and onion, black beans. 1/2 chicken breast cooked in lime and garlic.

Breakfast this morning

Bowl of koala krisp (gluten-free) with lactose-free milk

Brown rice cake with goat cream cheese spread

Migraine starts, I start feeling lethargic, extremely tired, and weak. (When I say weak, I mean I was putting away dishes and had a hard time lifting plates)

Lunch

1 piece gluten-free toast (rice bread from Whole Foods) with peanut butter, my own jar.

Dinner-ish

So I tried to have some food, thinking I might be feeling sick because I was hungry.

gluten-free, dairy-free, soy-free, corn-free pancakes from TJ's. Used my own margarine in the pan, had pure maple syrup on top. Ingredients were not listed, it just said "100% pure maple syrup".

After this snack (ten minuets) I had a rush of D followed by violent throwing up. My migraine is back and I feel disgusting. To top it all off, I am in a house full of strangers 5 hours from home.

I have been being extra careful this last week because I am not staying in my home. All of my food is clearly labeled, as well as my toaster and cutting board. I just want to start feeling better and figure out what may have bothered me this much.

Sorry for the novel! Thanks for trying to help, any suggestions are appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Are you using your own pan? I always take my own pan along. I get glutened every time I try to use someone else's pan. Could someone have used one of your products and CC'd it? Sometimes, even when you clearly mark your own things, others will use them and not realize what they are doing.

Migraines on their own upset my stomach.

I'm sorry this has happened to you...feel better.

Lisa Mentor

I don't see any thing that jumps out at me. The longer you are gluten free, you may find that your reaction time varies, which make it really, really hard to pinpoint a problem. :blink:

mamaw Community Regular

I hope you get to feeling better soon. It could be just the plain old flu .My daughter had the same symptoms for about three days. Still weak but improving alot.

If you are super-sensitive it could be just being around others that eat wheat & the crumbs ....nerves can also put one into a mild panic that can make a person ill ....

get better soon.

mamaw

jerseyangel Proficient

You poor thing :(

Nothing in your diet sounds suspicious--I'm thinking you either have a virus or somehow got cross contaminated from the shared kitchen--pans, dish cloths/towels, etc.

In any event, feel better! Having this happen away from home sounds miserable.

lizard00 Enthusiast

The only other thing that I question is the milk. I noticed you didn't use any other dairy products, so maybe casein bothers you rather than or in addition to lactose?

Otherwise, I get a migraine a couple times a year. They make me sick on my stomach also, and aren't usually food related. I got one this spring that seemed to be triggered by my allergies.

Hope you feel better soon!!!

RideAllWays Enthusiast

I have been using their pans and cloths..this is the only day ive been sick and Ive used the fry pan twice (well, dinner, and then again today). I'm thinking that's it. Thanks for the suggestions, it's comforting knowing there are sympathetic people out there who understand waht im going through.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748

    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.