Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Solve My Mystery!


RideAllWays

Recommended Posts

RideAllWays Enthusiast

Okay, so I am now inbetween puke-breaks and I thuoght I would try and figure this out. I had a migraine all morning since around 9, slept from noon until four, have been throwing up and D, feeling depressed and teary as well. I have no idea what could have made me feel this way.

Dinner last night

Baked potato topped with stir-fried (in water) peppers and onion, black beans. 1/2 chicken breast cooked in lime and garlic.

Breakfast this morning

Bowl of koala krisp (gluten-free) with lactose-free milk

Brown rice cake with goat cream cheese spread

Migraine starts, I start feeling lethargic, extremely tired, and weak. (When I say weak, I mean I was putting away dishes and had a hard time lifting plates)

Lunch

1 piece gluten-free toast (rice bread from Whole Foods) with peanut butter, my own jar.

Dinner-ish

So I tried to have some food, thinking I might be feeling sick because I was hungry.

gluten-free, dairy-free, soy-free, corn-free pancakes from TJ's. Used my own margarine in the pan, had pure maple syrup on top. Ingredients were not listed, it just said "100% pure maple syrup".

After this snack (ten minuets) I had a rush of D followed by violent throwing up. My migraine is back and I feel disgusting. To top it all off, I am in a house full of strangers 5 hours from home.

I have been being extra careful this last week because I am not staying in my home. All of my food is clearly labeled, as well as my toaster and cutting board. I just want to start feeling better and figure out what may have bothered me this much.

Sorry for the novel! Thanks for trying to help, any suggestions are appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Are you using your own pan? I always take my own pan along. I get glutened every time I try to use someone else's pan. Could someone have used one of your products and CC'd it? Sometimes, even when you clearly mark your own things, others will use them and not realize what they are doing.

Migraines on their own upset my stomach.

I'm sorry this has happened to you...feel better.

Lisa Mentor

I don't see any thing that jumps out at me. The longer you are gluten free, you may find that your reaction time varies, which make it really, really hard to pinpoint a problem. :blink:

mamaw Community Regular

I hope you get to feeling better soon. It could be just the plain old flu .My daughter had the same symptoms for about three days. Still weak but improving alot.

If you are super-sensitive it could be just being around others that eat wheat & the crumbs ....nerves can also put one into a mild panic that can make a person ill ....

get better soon.

mamaw

jerseyangel Proficient

You poor thing :(

Nothing in your diet sounds suspicious--I'm thinking you either have a virus or somehow got cross contaminated from the shared kitchen--pans, dish cloths/towels, etc.

In any event, feel better! Having this happen away from home sounds miserable.

lizard00 Enthusiast

The only other thing that I question is the milk. I noticed you didn't use any other dairy products, so maybe casein bothers you rather than or in addition to lactose?

Otherwise, I get a migraine a couple times a year. They make me sick on my stomach also, and aren't usually food related. I got one this spring that seemed to be triggered by my allergies.

Hope you feel better soon!!!

RideAllWays Enthusiast

I have been using their pans and cloths..this is the only day ive been sick and Ive used the fry pan twice (well, dinner, and then again today). I'm thinking that's it. Thanks for the suggestions, it's comforting knowing there are sympathetic people out there who understand waht im going through.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    3. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    5. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.