Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Urticaria And Celiac

jello5

By jello5
in Related Issues & Disorders

Recommended Posts

jello5 Apprentice
jello5
Posted

Hi

I have cold induced urticaria. It started six years ago two months after I had given birth to my youngest child. I have never played in the snow with him as I will break out in hives after being exposed to the snow. Or wind or anything under sixty degrees. Or I will get hives if there is a slight breeze. Anyway, I have been searching to find the cause of this until earlier this year when I found a study done in Madrid. Basically it said that in a case of cold induced uticaria, celiac disease should be ruled out. Well, I went to a very reputable naturapathic dr. who found that I have a gluten and dairy intolerence. (as well as soy and corn). I have eliminated all dairy and gluten from my diet since august 5 of this year. After many nights of reading about celiac, I am so convinced I have found the answer to my hives-and that I truly am celiac. My family has a history of lymphoma as well. From what I have been reading, I know I need to be patient and that it could take months or years for my symptoms to clear. (I also developed eczema on my hands while pregnant-then the cold urticaria-then a year later, asthma). I am feeling good since going gluten-free/CF. I sleep really well now, am no longer bloated and have tremendous energy and am no longer lethargic. My question to those of you out there is how long did it take for your symptoms to clear? Has anyone had hives and celiac and has it resolved? After taking a walk this evening in the beautiful midwest in 64 degree temps, I had hives WORSE then ever. I am a bit confused. ( I have been tested for lupus and RA, both negative)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Yours seems to be an extreme case with any temperature under 60 degrees. My husband has this problem but it doesn't kick in until the temperature is below freezing. He is also celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

I had cold induced asthma and pressure hives prediagnosis. Thankfully I didn't have cold induced hives as I wouldn't be able to leave my house for months at a time where I live. The hives took a couple of months to resolve and I have only had them a few times in the last 7 years. The only time I get them now is when I get 'soyed' but thankfully they don't appear when glutened. I should note that I have both an allergy and an intolerance to soy that appears with both injestion and if applied topically.

jello5 Apprentice
jello5
Posted
  • Author

Thank you both for the input. I also have the intolerence to soy and corn as well. I figured I would eliminate gluten and dairy first. Then soy, and then the corn. It seems eliminating gluten and dairy is quite a job but I have been vigilent about it and am doing ok. Soy and corn seem to be in everything. I am avoiding them but havent eliminated them 100% yet. Maybe it is the intolerence to those two as well that could very well be contributing to the hives. I am also taking the multi-vitamins as well as other supplements-b-12, folic, etc.

  • 4 years later...
Glutens gotta go Newbie
Glutens gotta go
Posted

coincidental that these 2 subjects are listed together....because  i have had cold urticaria since my teens, i am now 32. also, i tested positive for the dq8 celiac gene (in the process of other testing to get diagnosis). Also, around the same time , my 6 year old son started showing signs of cold urticaria- although his is much worse than mine ever was. he has since been diagnosed with allergies to grass, dog dander and cold. His ped started him on a daily allergy pill around one month ago, but he is still showing signs of celiac....most obvious hands and feet tingling and headache. i want to have him tested for gluten allergy, as my gut (no pun intended) tells me that he has celiac too. what are your thoughts

cyclinglady Grand Master
cyclinglady
Posted

His symptoms could be just related to his allergies. I have cold urticaria too since I was a baby. Swelling and huge itchy hives that would last until I thawed. Horrible looking and itchy in a bathing suit (wetsuit solved that) and I only ski in warm conditions (feet swell so much that I can not remove my boots). I was the only girl allowed to wear pants to school (back in the day), but I had to remove them in class and put them back on for recess and I live in a mild climate. It was handy getting out of school when I was injured in sports! The school nurse would have me sit with an ice pack and then I would get the hives and swell up! The nurse always called my Mom who would pick me up and take me shopping or to the library. (Thanks, Mom for being so cool!)

I would not link it to celiac disease, but to my many other allergies.

If you really think he might have celiac disease, It would be easier to get testing done (insurance) once you have a confirmed diagnosis. Many others here might have more input. You both should be consuming gluten until all testing is complete.

Good luck!

Kelsie Apprentice
Kelsie
Posted

Hi, I also have cold urticaria. I am 33 and currently waiting for a gastroscopy for celiac diagnosis. I started having problems with wheat about 6 years ago. Around the same time I developed cold urticaria. Mine can also be severe 10 degree (50 f) can cause hives, itching, bright red, burning fingers. I can swim in any lakes, or pools, unless they are heated to 90 degrees or so.

I have also started wondering if this is related to my gluten/wheat problem. I'm starting to think it is.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
across Contributor
across
Posted

Have you ever seen the documentary "Fat, Sick, and Nearly Dead"? In that, two guys with urticaria both stopped having outbreaks and were able to get off their steroids after going on 60 day juice fasts. It makes me wonder if it wasn't the juice fasting that was effective, but perhaps the elimination of gluten? 

 

I'm not at all telling you about the movie because I think juice fasting is a cure for urticaria. I know that we're all very complex, and different people respond (and don't respond) to different things. I don't do juice fasting myself, as I'm not really a believer in it. I just found it to be an extremely inspiring documentary (especially the second half), and well worth watching. It's also quite entertaining. Anytime I'm getting ready to do a Whole 30 again or do anything to try to improve my health, I like to watch it, as it gets me inspired seeing how much these two men's health (especially the second man's) changed over 60 days.

  • 8 months later...
dzrtrz Newbie
dzrtrz
Posted

With the cold weather I went outside to play with my daughter and broke out in hives.  This happened a couple of other times while I was working outdoors at a chemical plant. At the time the plant nurse practitioner blamed it on a chemical exposure.  I googled my symptoms and came up with Cold Uticaria.  One article referenced Celiac so my next googling was Celiac and Cold Uticaria and I found a bunch of articles relating the two.  My Celiac diagnosis was unclear. The gluten antibodies that I tested positive for was not the big one that is associated with Celiac.  I also tested negative for the two Celiac genes which 97% of the Celiac patients have.  Ive had digestive problems all my life that come and go, but got worse 3 months after having a baby.  My doctor concluded that he "didn't think I had Celiac" but all signs keep pointing that way.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    CRae
    Newest Member
    CRae
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Outgrow celiac?

      By Riley. · Posted

      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.