Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's Or Something Else....?

vampkestrel

By vampkestrel
in Related Issues & Disorders

Recommended Posts

vampkestrel Rookie
vampkestrel
Posted

Isn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Have you brought these symotoms to the attention of your doctor and insisted that they do a full work up for other autoimmune diseases? Autoimmune diseases can come more than one at a time. The weakness that goes away in an short time and the blue arm and leg are the most concerning to me. Especially if you already know you are prone to blood clots these symptoms should not be ignored. If possible the next time these occur you should be seen while the symptoms are active.

vampkestrel Rookie
vampkestrel
Posted
  • Author

well i currently see my gp, a neurolgist, and a rhemalogist (please forgive spelling there) it finally took me insisting my gp to test for celiac disease to even get that diagnosis other then that they say they have no idea and without swelling it's propably not a blood clot. oh for the record i'm a 27 year old female... it's very frustrating over all since none of my docs know what's going on and i have to rely more on diagnosing my self and the demanding the tests to back it up.

txplowgirl Enthusiast
txplowgirl
Posted

Extreme sensitivity to sunlight and heat intolerance. I had a cousin who started out with these symptoms. Have you been checked for Lupus? That is an autoimmune disease that runs along with Celiac and Thyroid problems.

vampkestrel Rookie
vampkestrel
Posted
  • Author

yes i a few times my ana is always a little off but they said not enough for lupus. I also had a crazy high sed rate but i'm guessing the ana and sed could just be part of celiac disease as well since apparently my doctors have no clue....sigh...my mother does have lupus though but it's not suppose to be hereditary per se

mushroom Proficient
mushroom
Posted
yes i a few times my ana is always a little off but they said not enough for lupus. I also had a crazy high sed rate but i'm guessing the ana and sed could just be part of celiac disease as well since apparently my doctors have no clue....sigh...my mother does have lupus though but it's not suppose to be hereditary per se

I had a high sed rate and a CRP of 81; neither of these figures budged on a gluten free diet or on the standard DMARD drugs for rheumatoid arthritis. It was only when I started taking Humira, a TNF inhibitor, for my psoriatic arthritis, that my CRP dropped to normal. Sed rate and CRP are both measures of inflammation, and I had been telling myself that my inflammation was coming from my gut and from my other food intolerances that flared into itchy rashes, but t'weren't so.

Your crazy high sed rate needs to be investigated further IMHO.

vampkestrel Rookie
vampkestrel
Posted
  • Author

ah yes me too i thought the sed rate was from my intestines and my doc said it "propably" was but he doesn't know anyting about celicas other then to send off for a blood test.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,344
    • Most Online (within 30 mins)
      7,748
    GFBB95
    Newest Member
    GFBB95
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.