Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease As Well As Other Problems?

willabec

By willabec
in Related Issues & Disorders

Recommended Posts

willabec Contributor
willabec
Posted

Ok, I have been gluten-free for 7 years now (i'm 39 yrs. old). last year had issues with loose stool. went to gi dr. and told me to lay off dairy and take fiber supplement. I did that for a little bit and things got better. I am now back to the same issue. Sorry for being so graphic, but sometimes it's explosive. went back to Gi dr. a couple of weeks ago. i have been writing down what i eat, when i go to the bathroom and what it's like and i can't come up with a pattern, although there probably is one. the dr. told me to take a pancreatic enzyme...seemed to help only a little, also stayed away from too much fat in diet. his office just called and wants me to have a CT scan. I am getting nervous b/c it could be so many other issues. has anyone ever had this problem, being on a gluten-free diet and it not really working? i am going to take the fiber supplement again tomorrow just to see. can a person with celiac also have ibs? i am just concerned that it could be something serious. any help would be appreciated. thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ahorsesoul Enthusiast
Ahorsesoul
Posted

1. Are you really sure your diet is gluten free? As a nurse I thought I was doing ok until I found this site!

2. Is the fiber supplement gluten free?

3. Are you having problems with another food intolerance?

If you keep a diary of everything that goes into your mouth you should find our what is bothering you.

JillianLindsay Enthusiast
JillianLindsay
Posted

Of course, the obvious is to make sure 100% you are not somehow getting glutened.

Has your DR done a lactose intolerance test? A food allergies test?

As you know, many people with celiac disease also have lactose intolerance or casein allergy (or other food allergies or intolerances).

Stress and poor diet can also cause D.

I'm sure other people can contribute further ideas :) The best thing is to try not to worry too much (easy to say, tough to do, I appreciate that) and wait to see what your DR says. I went through every test in the book over the last year when I started having seizures and it ended up being celiac disease, a perfectly manageable condition! Hopefully you'll find out it's nothing serious and something within your control.

Good luck!

Jillian

ang1e0251 Contributor
ang1e0251
Posted

Does this seem like a typical gluten response to you? What are your normal reactions to gluten? You could have developed a secondary food sensitivity but it's tough to pinpoint it with your food diary. Have you had a celiac disease blood panel recently? It might be good to check on your antibodies and see if you're getting sneaky gluten anywhere.

willabec Contributor
willabec
Posted
  • Author
1. Are you really sure your diet is gluten free? As a nurse I thought I was doing ok until I found this site!

2. Is the fiber supplement gluten free?

3. Are you having problems with another food intolerance?

If you keep a diary of everything that goes into your mouth you should find our what is bothering you.

I am 99% sure my diet is gluten free, especially with the list i have been making. i have not started the fiber supplement and many are gluten free. i cancelled my ct scan...want to try to see if it is a food that is making me like this. i must say that the past few days have been much better. i have been trying to stay away from higher fat foods (not that i really ate alot of them anyway) and not using butter and trying not to eat ice cream. i am thinking maybe lactose sensitivity. if i do eat ice cream, i don't notice anything until the next day. i know each person has a different response time with that. I did reschedule my ct scan for next week. we shall see. i guess what makes me a little nervous is that the dr. did a stool sample and it came back with undigested food in it. i know there are times when this does happen, but i am not sure if i should be concerned, not sure if it's always like that.

willabec Contributor
willabec
Posted
  • Author
Does this seem like a typical gluten response to you? What are your normal reactions to gluten? You could have developed a secondary food sensitivity but it's tough to pinpoint it with your food diary. Have you had a celiac disease blood panel recently? It might be good to check on your antibodies and see if you're getting sneaky gluten anywhere.

i am not sure....i try very hard not to eat gluten, so i don't know what my typical response is. i am going to try to cut out as much dairy as possible ( i really don't eat alot of it, mostly cheese and ice cream and butter and take some fiber and see if that helps). the past few days i have been better. i asked the dr. about blood work, he said to wait. not sure why, i would think that would be a less invasive proceedure!

mommida Enthusiast
mommida
Posted

Keep up with monitoring your diet.

By any chance are your falling into the gallbladder risk zone? The four "F" 's Female, Fair, Fat (sorry this is not my wording, and please don't take offense) Forty/Fertile.

Please find a doctor you feel comfortable with and continue testing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


willabec Contributor
willabec
Posted
  • Author
Keep up with monitoring your diet.

By any chance are your falling into the gallbladder risk zone? The four "F" 's Female, Fair, Fat (sorry this is not my wording, and please don't take offense) Forty/Fertile.

Please find a doctor you feel comfortable with and continue testing.

i am going to keep monitoring, trying the fiber and lactaid, you never know! i am near forty, not fat, female and fair...could be gallbladder? i will do more testing soon, just to be on the safe side. thanks!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Before I went gluten-free I always had undigested food in my stool.

willabec Contributor
willabec
Posted
  • Author
Before I went gluten-free I always had undigested food in my stool.

i really have been gluten free (at least 99.9%) for 7 years....any ideas?

ravenwoodglass Mentor
ravenwoodglass
Posted
i really have been gluten free (at least 99.9%) for 7 years....any ideas?

Have you checked with companies to make certain that every med and supplement OTC and script are gluten-free? How about non food items, craft items, household repair materials, pet foods and litters, lotions, shampoos everything you come in contact with?

nasalady Contributor
nasalady
Posted
Have you checked with companies to make certain that every med and supplement OTC and script are gluten-free? How about non food items, craft items, household repair materials, pet foods and litters, lotions, shampoos everything you come in contact with?

I concur with ravenwoodglass, you should double-check everything.

I truly believed I was OK in the non-food department (I've been gluten free for nearly one year now)....until last week when my husband found that both my shampoo and conditioner had WHEAT in them! I absolutely do not know how I missed it but I did. I'm normally very careful; for example I spent days calling and emailing companies to check every one of my meds (and I take a LOT of meds).

Good luck!

  • 3 weeks later...
willabec Contributor
willabec
Posted
  • Author

Anyone out there....with regard to my previous post and "problem"- i never had the ct scan b/c my symptoms got better, better stools, ache or burning sensation in belly was better. this all got a little better before taking lactaid (just wanted to see if it would help) and a fiber supplement to help bind stool. however, now it seems like my problems is coming back....any suggestions/thoughts as to what it might be? i have a somewhat constant "ache" in the lower left abdominal area that sometimes goes to the lower left of my back, the loose stool seems to be back, although the frequency of how often i go has gotten better as well. i am going to my PCP for my annual check up on friday. will be having routine bloodwork- GI dr. said to have a standard celiac serology done...any other tests you think? food allergy blood test? i am very concerned that it is colon cancer. i know the internet can be good but it can also be bad- but almost all the symptoms for colon cancer is what i have. help= anyone??

Wolicki Enthusiast
Wolicki
Posted

Ask your doc to check your gallbladder. Also, couldn't hurt to have your"baseline" colonoscopy. I had my first at forty because my dad had colon cancer. I think it's good for anyone over 40 to have one.

willabec Contributor
willabec
Posted
  • Author
Ask your doc to check your gallbladder. Also, couldn't hurt to have your"baseline" colonoscopy. I had my first at forty because my dad had colon cancer. I think it's good for anyone over 40 to have one.

thanks for your advice...what is involved with checking the gallbladder? i had read that gallbladder problems/pain were felt more in the upper portion of the "stomach/belly region". mine is lower left. so of course when i typed in lower left abdomen pain, etc. it came up with colitis, which of course it could be, it could be alot of things. i am getting stressed over this whic of course doees not help either! i will have whatever blood work on friday and then go from there i guess. thanks again!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.