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I'm Back, And I Have Celiac Disease!

Frances03

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Frances03 Enthusiast
Frances03
Posted

so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

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sussarliv Newbie
sussarliv
Posted
so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Glad to hear that you finally have answers!

Susan

happygirl Collaborator
happygirl
Posted

Wonderful that you know now. I hope you stick around...this is a great resource!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

"I feel FANTASTIC!!!"

That sure does say it all! You are now an official member of the gluten free club! It's so nice to finally figure out what's wrong that we do cartwheels to find out we are celiacs. lol

Roda Rising Star
Roda
Posted

Sounds like he turned out to be alright. Now he needs to educate his nurse practitioner. Hope you feel better soon. Also after my confirmed diagnosis I asked my kids ped to screen and explained that I just had gotten a diagnosis. He refused to order the blood tests, saying they were fine. I was so mad! :angry: I had to call their allergist/immunologist in a town 70 miles away to get it orderd and they had no problem doing it. My oldest has been screened twice since all of the tests were not done the first time(lab problem). Good luck and be persistant.

Brooklyn528 Apprentice
Brooklyn528
Posted
so am I a Gold Star Celiac now?? LOL

I had my colonoscopy and it was FINE FINE FINE

I had my endoscopy and he said he could "see damage consistent with Celiac Disease" just from looking, of course he is sending all my stuff to be biopsied. But, I got so lucky, because he actually KNEW something about Celiac and said his former wife had written a book on the diet! I also have a hiatal hernia, and a lot of damage from heartburn type stuff, acid backing up my esophagus etc. So, I am to go gluten free right away, and get an appt with a dietician, and also he wants to recheck my anitbody levels to make sure I'm doing well on the diet!! I feel FANTASTIC!!! All these years of garbage and I finally have something I can TREAT! I will be HAPPY to eat gluten free the rest of my life!!! Thank you so much for your prayers and kind thoughts today also. I appreciate them all. And thank you for the support on this board. I will be sticking around and trying to educate everyone I know about Celiac Disease. Next, I will be getting my 3 children tested.

Just wanted to say that I am very happy to hear of your great doctors. Finding a good one is always a positive. I hope things start going your way. Also, good luck with your children. I just started working on getting things taken care of concerning my children. I can't bear the thought of them having to deal with the things I have had to already. Good luck in all you do! :P

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you were able to get a definate answer. Welcome to the family. I hope you are feeling great soon. Make sure you let all your first degree relatives know, brothers, sisters etc as well as doing the testing on your children.

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ang1e0251 Contributor
ang1e0251
Posted

I'm so glad you have the answers! Now for a new life of great health for you and your family. Welcome into the group, hope you get the results for your children that they need.

Nadia2009 Enthusiast
Nadia2009
Posted

I am so happy for you not happy you have celiac but it feels good to have answers. I am just expecting the same diagnostic. I did the celiac blood test for the second time this year and this time, I made sure it is the whole panel. My blood test was done in late September and it seems like I can't have results until late October and I am wondering if that means something.

Nadia

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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