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Someone To Talk To

sequoiacyclist

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sequoiacyclist Newbie
sequoiacyclist
Posted

Hey everyone,

I am a college student who was recently diagnosed with celiac's disease. Often I find myself frustrated and dissapointed with friends and family members because they have a hard time understanding the things I struggle with in regards to living the gluten free lifestyle (fear of restaurants, cooking in other kitchens, and insisting on preparing my own foods for the holidays to name a few!). It would be nice if I had someone else my age to talk to about these issues, but I seem to be the only one in this area (Central California) with celiac disease. Is there anyone else out there needing someone to talk to too?

Sarah

sequoiacyclist@yahoo.com

  • 3 weeks later...
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CeliacAlli Apprentice
CeliacAlli
Posted
Hey everyone,

I am a college student who was recently diagnosed with celiac's disease. Often I find myself frustrated and dissapointed with friends and family members because they have a hard time understanding the things I struggle with in regards to living the gluten free lifestyle (fear of restaurants, cooking in other kitchens, and insisting on preparing my own foods for the holidays to name a few!). It would be nice if I had someone else my age to talk to about these issues, but I seem to be the only one in this area (Central California) with celiac disease. Is there anyone else out there needing someone to talk to too?

Sarah

sequoiacyclist@yahoo.com

Hey :)! First off welcome to the forum! I don't live in california and I'm only 15 but I'd love to talk with you!! If you have any questions, ask away!! You can message me on here anytime or just add to this discussion :)

Look forward to talking with you :)!!

Allison

RideAllWays Enthusiast
RideAllWays
Posted

I'm in university too...it's hard, eh? If you want to chat email me at d.hoholuk@hotmail.com or add me to msn :)

RideAllWays Enthusiast
RideAllWays
Posted

I'm in university too...it's hard, eh? If you want to chat email me at d.hoholuk@hotmail.com or add me to msn :)

  • 2 weeks later...
AKcollegestudent Apprentice
AKcollegestudent
Posted

I'm a college student in Massachusetts, but trust me, I know the feeling.

Fitze082 Newbie
Fitze082
Posted
Hey everyone,

I am a college student who was recently diagnosed with celiac's disease. Often I find myself frustrated and dissapointed with friends and family members because they have a hard time understanding the things I struggle with in regards to living the gluten free lifestyle (fear of restaurants, cooking in other kitchens, and insisting on preparing my own foods for the holidays to name a few!). It would be nice if I had someone else my age to talk to about these issues, but I seem to be the only one in this area (Central California) with celiac disease. Is there anyone else out there needing someone to talk to too?

Sarah

sequoiacyclist@yahoo.com

Hey. Well I guess my situation is extremely different from yours. I live with my mom and sister both of which have celiac disease too. But I understand when it comes to my dad. He has gotten better over the last year or so, even though i have been diagnosed for almost 6 years. He buys gluten free soy sauce and pasta but he still seems to not understand some things. Its hard when people want to go out to italian restaurants because its one of the hardest places to eat and they dont seem to understand. OR he definitely doesnt understand when i get sick from cross contamination. Are you living on campus? Food is one of my biggest fears when it comes to college. I'm at a local one right now

  • 2 weeks later...
Sarenha Newbie
Sarenha
Posted

I'm 20, a college student (sort've, I took a break to get healthy once I got really bad), and tooootally know what you mean.

My family didn't want me cooking my own food for my birthday dinner, and so we went out, even though I insisted I really REALLY would rather eat in.

They made reservations at an Italian place. I guess they forgot. *sigh*

It does get better. My room mate has been my best friend since Junior year in high school. He silently started doing things, without remark, like putting a label on the things he cooks with all the ingredients, because he knows I don't trust gluten-free labels without double checking. His hobby is making artisan breads, and he's stopped doing that when I'm home too. I never said anything to him.

Some of your family and friends may make it a game- my mom and aunt play "find the gluten-free food items" like it's a scavenger hunt. Some will obsess about it- for me, that's my dad, who would drive ten hours to find a decent gluten-free pasta if he needed too.

Eventually they'll all get used to it in their own ways and you'll be able to trust them (sort've) enough to eat what they serve you at holiday meals or family dinners without looking over their shoulders the whole way.

Also, a bunch of people have celiac. We don't announce it everywhere, we don't talk about it out loud all the time, but if you pay attention, and if YOU talk about it, everyone knows someone, and one of those people is probably a friend just your age.

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Angels~Exist Newbie
Angels~Exist
Posted

Hey I am 16, diagnosed Celiac May 26, 2009 It can be hard sometimes trusting others to cook for you. Most of the time you only trust yourself to make food that won't hurt you. I have been glutened by people that only had the best of intentions. The only way to really avoid this is to bring food when you go anyplace that isn't home to eat. At first it may offend people but if you explain they will agree that your health comes first.

amberlink09 Apprentice
amberlink09
Posted

Hey! I am a freshman at UT (in Austin, TX). I was literally diagnosed with Celiac the day before I moved into my dorm. When I got to Austin I had to find a new doctor to do my biopsy, bone density tests, etc. It has been quite the semester. I don't know any other college student here with Celiac disease and my friends and family don't really understand how serious it is. I can't eat in the cafeteria so I'm pretty much forced to eat in my dorm all the time with whatever I can make in the microwave (I have gotten pretty creative). I'm still sick a lot from cross contamination and I'm still trying to heal, though I think my immune system is still not doing so well. But yeah, mostly I have found out that not being able to eat gluten or cheese has become a HUGE social block. It gets really hard and pretty lonely sometimes

Anna and Marie Newbie
Anna and Marie
Posted

hey Sarah,

I'm a little late to your post, sorry!, but I'm a college freshmen in KY. Not that you'll know where that is <_<

Any way, feel free to email me at acmiha01@louisville.edu any time. How long have you had it? I've known for about 5 years now - trust me, it gets easier :D

Anna

  • 6 months later...
Hineys <3 Newbie
Hineys <3
Posted

hey Sarah,

I'm a little late to your post, sorry!, but I'm a college freshmen in KY. Not that you'll know where that is <_<

Any way, feel free to email me at acmiha01@louisville.edu any time. How long have you had it? I've known for about 5 years now - trust me, it gets easier :D

Anna

Oh my goodness, Talking about late, Im late to this! But Im so happy to see someone from Kentucky! Im a Senior in high school and hate sitting in the cafeteria with my freinds that are eating pizza while im eating something gluten-free but after a few months it got easier.Especially with family that has helped so much!

  • 4 months later...
CJoy Newbie
CJoy
Posted

I was diagnosed two weeks before I moved back to school- let me just say I was very nervous about handling everything on my own. I seemed to be adjusting ok at the beginning of the year but now I find myself very self conscious, frustrated, and depressed. I hate standing out and being known as "that kid" and because of this I try not to talk to people about my issues or get help when I need it. That being said I know how you are feeling. And realizing that I

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  • Posts

    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

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    • knitty kitty
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      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
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    • RMJ
      Outgrow celiac?

      By RMJ · Posted

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      Outgrow celiac?

      By knitty kitty · Posted

      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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