Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream?


clarkje20

Recommended Posts

clarkje20 Newbie

Ok can somebody help me with the Rice dream???? It states on the box that its gluten free but people on here says its not and it contains barley??? So is Rice dream safe for celiacs?????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



climbmtwhitney Apprentice

Hi.

Rice Dream is processed with a barley enzyme. I suppose for some that's too minor an amount of gluten. However, my daughter & I have personally gotten very sick 2x from it. Once was early in the diet when I didn't know and made french toast with it. The second time someone else made us cornbread with it not realizing. Now we use Pacific brand.

Lisa Mentor

The legal standard for what can be called "gluten free" is not established at this point. The gluten in Rice Dream may be below the suggested 20ppm, which some consider a safe level of gluten for people with Celiac to consume.

Open Original Shared Link

Frances03 Enthusiast

I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water

organic brown rice

organic expeller pressed safflower and/or sunflower oil and/or canola oil

Tricalcium Phosphate

Sea Salt

Vitamin A Palmitate

Vitamin D2

Vitamin B12

Is anything in that gluten? I don't see anything.

jerseyangel Proficient
I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water

organic brown rice

organic expeller pressed safflower and/or sunflower oil and/or canola oil

Tricalcium Phosphate

Sea Salt

Vitamin A Palmitate

Vitamin D2

Vitamin B12

Is anything in that gluten? I don't see anything.

The barley enzyme is used in the processing of the milk, not added to it, so it doesn't have to be listed as an ingredient. It's always been prepared the same way, and the label used to disclose this--the label has changed but they still use the barley (I verified this with a phone call to the company). I reacted to it, as many others here. I'm sure that the amount is so low that many will also be able to tolerate it fine. :)

Frances03 Enthusiast

Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"

clarkje20 Newbie
Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"

This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... uggg I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... ug I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....

I would recommend that you read this article:

https://www.celiac.com/articles/21655/1/How...ease/Page1.html

The progress I have seen over the past five years had been tremendous! And I expect that the next five will even exceed that.

If a product does not sit well with you, put it on your "don't go there again" list. Trust your instincts. And what may not work for you, might be okay for others. Sometimes you have to individualize your gluten free choices.

ksymonds84 Enthusiast

I am one that does NOT react to Rice Milk and can't wait for the egg nog rice dream to hit the shelves! :) I agree with Lisa that everyone is different especially with their level of sensitivity.

KristaleeJane Contributor

I agree that it should not be labeled gluten free, I also bought and had to return it after having a reaction, but I am very sensitive. I believe that even the smallest amount of gluten can harm you. I have been drinking Ryza Rice Milk, which is Gluten Free. Its really good and no Reaction.

OptimisticMom42 Apprentice

Any problems with Westsoy Rice Milk?

  • 2 weeks later...
clarkje20 Newbie

I have recently purchased Hemp Milk and it taste great and is dairy free and gluten free with NO barley!!! Im sooo excited!!!

  • 2 weeks later...
earthtoneNJ Rookie

this is what i got from the company. I didn't realize the same company made so many different products (arrowhead mills, deboles, celestial). I'll be taking everything they say with a grain of salt now:

Thank you for taking the time to contact us regarding our Rice Dream Beverage. We strive to maintain the highest quality products and appreciate your patronage.

Analytical testing methods and detection limits have improved over the years. Recent testing shows that the Rice Dream Beverages, as well as the barley protein used to make the product, meet gluten free requirements. We have always maintained a conservative stance regarding gluten in the beverages. The same rigorous standards now allow us to declare them gluten free.

Thank you for your continued support. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time.

Sarah

Consumer Relations Representative

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.

grainfree Newbie

The percentage barley protein printed on the Rice Dream rice milk box I purchased is .002. I had a reaction.

ksymonds84 Enthusiast

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.