Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream?


clarkje20

Recommended Posts

clarkje20 Newbie

Ok can somebody help me with the Rice dream???? It states on the box that its gluten free but people on here says its not and it contains barley??? So is Rice dream safe for celiacs?????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



climbmtwhitney Apprentice

Hi.

Rice Dream is processed with a barley enzyme. I suppose for some that's too minor an amount of gluten. However, my daughter & I have personally gotten very sick 2x from it. Once was early in the diet when I didn't know and made french toast with it. The second time someone else made us cornbread with it not realizing. Now we use Pacific brand.

Lisa Mentor

The legal standard for what can be called "gluten free" is not established at this point. The gluten in Rice Dream may be below the suggested 20ppm, which some consider a safe level of gluten for people with Celiac to consume.

Open Original Shared Link

Frances03 Enthusiast

I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water

organic brown rice

organic expeller pressed safflower and/or sunflower oil and/or canola oil

Tricalcium Phosphate

Sea Salt

Vitamin A Palmitate

Vitamin D2

Vitamin B12

Is anything in that gluten? I don't see anything.

jerseyangel Proficient
I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water

organic brown rice

organic expeller pressed safflower and/or sunflower oil and/or canola oil

Tricalcium Phosphate

Sea Salt

Vitamin A Palmitate

Vitamin D2

Vitamin B12

Is anything in that gluten? I don't see anything.

The barley enzyme is used in the processing of the milk, not added to it, so it doesn't have to be listed as an ingredient. It's always been prepared the same way, and the label used to disclose this--the label has changed but they still use the barley (I verified this with a phone call to the company). I reacted to it, as many others here. I'm sure that the amount is so low that many will also be able to tolerate it fine. :)

Frances03 Enthusiast

Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"

clarkje20 Newbie
Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"

This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... uggg I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... ug I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....

I would recommend that you read this article:

https://www.celiac.com/articles/21655/1/How...ease/Page1.html

The progress I have seen over the past five years had been tremendous! And I expect that the next five will even exceed that.

If a product does not sit well with you, put it on your "don't go there again" list. Trust your instincts. And what may not work for you, might be okay for others. Sometimes you have to individualize your gluten free choices.

ksymonds84 Enthusiast

I am one that does NOT react to Rice Milk and can't wait for the egg nog rice dream to hit the shelves! :) I agree with Lisa that everyone is different especially with their level of sensitivity.

KristaleeJane Contributor

I agree that it should not be labeled gluten free, I also bought and had to return it after having a reaction, but I am very sensitive. I believe that even the smallest amount of gluten can harm you. I have been drinking Ryza Rice Milk, which is Gluten Free. Its really good and no Reaction.

OptimisticMom42 Apprentice

Any problems with Westsoy Rice Milk?

  • 2 weeks later...
clarkje20 Newbie

I have recently purchased Hemp Milk and it taste great and is dairy free and gluten free with NO barley!!! Im sooo excited!!!

  • 2 weeks later...
earthtoneNJ Rookie

this is what i got from the company. I didn't realize the same company made so many different products (arrowhead mills, deboles, celestial). I'll be taking everything they say with a grain of salt now:

Thank you for taking the time to contact us regarding our Rice Dream Beverage. We strive to maintain the highest quality products and appreciate your patronage.

Analytical testing methods and detection limits have improved over the years. Recent testing shows that the Rice Dream Beverages, as well as the barley protein used to make the product, meet gluten free requirements. We have always maintained a conservative stance regarding gluten in the beverages. The same rigorous standards now allow us to declare them gluten free.

Thank you for your continued support. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time.

Sarah

Consumer Relations Representative

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.

grainfree Newbie

The percentage barley protein printed on the Rice Dream rice milk box I purchased is .002. I had a reaction.

ksymonds84 Enthusiast

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.