Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet And Relief Of Chronic Joint Pain

schicker45

By schicker45
in Sports and Fitness

Recommended Posts

schicker45 Newbie
schicker45
Posted

Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

My joint pain improved - went away, but it took a long while. I can't remember exactly how long anymore. It's been two years now. Hang in there.

Wolicki Enthusiast
Wolicki
Posted

I had chronic joint pain, to the pornt wheres ometimes it hurt too much to get out of bed. I had immediate improvement(within a couple of days). iT's much better now at 4 months gluten-free, but it still hurts some. A contact sport like Hockey can really put a lot of pressure on your joints. Perhaps you could do something else for a bit til you improve more?

Shess0816 Apprentice
Shess0816
Posted
Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

Hello. I used to have horrible joint pain all the time. It was almost to the point sometimes where I could hardly walk or use my hands to do anything because it just hurt so bad to put any pressure at all on them. I would just lay awake in bed a lot of nights just crying because my knees and shoulders and wrists and fingers and ankles hurt so bad. I know exactly how you feel with that. After starting the gluten free diet (March 2009) I did notice a little improvement almost within a week. Then it kind of plateued and I was still experiencing a lot of pain probably 5 days a week or so. Now that I've been on the gluten free diet for almost 8 months now, I would say I only have one of those extreme pain episodes maybe once a month, if that. I haven't had one for over a month now. The last one I had was because I accidently glutened myself. Just so you know, though, the couple times I have accidently ingested gluten since going gluten free, the first three things I notice with my reaction to the gluten is 1) headache 2) brain fog 3) my joints start aching...(then comes all the fun stomach pain and other issues....). But, it DEFINITELY got better for me. It took months of diligently following the gluten free diet, but I can clearly tell a difference. Hopefully you start noticing also!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Many people with rheumatoid arthritis react not only to gluten but to dairy: Open Original Shared Link

In addition, many celiacs find that their intestines do not heal until they stop consuming dairy as well as gluten. Apparently, the casein (the protein in dairy products) irritate the damaged villi (which are supposed to produce lactase, the enzyme that digests lactose, the sugar in milk), and then the damaged villi don't heal.

schicker45 Newbie
schicker45
Posted
  • Author
Hello. I used to have horrible joint pain all the time. It was almost to the point sometimes where I could hardly walk or use my hands to do anything because it just hurt so bad to put any pressure at all on them. I would just lay awake in bed a lot of nights just crying because my knees and shoulders and wrists and fingers and ankles hurt so bad. I know exactly how you feel with that. After starting the gluten free diet (March 2009) I did notice a little improvement almost within a week. Then it kind of plateued and I was still experiencing a lot of pain probably 5 days a week or so. Now that I've been on the gluten free diet for almost 8 months now, I would say I only have one of those extreme pain episodes maybe once a month, if that. I haven't had one for over a month now. The last one I had was because I accidently glutened myself. Just so you know, though, the couple times I have accidently ingested gluten since going gluten free, the first three things I notice with my reaction to the gluten is 1) headache 2) brain fog 3) my joints start aching...(then comes all the fun stomach pain and other issues....). But, it DEFINITELY got better for me. It took months of diligently following the gluten free diet, but I can clearly tell a difference. Hopefully you start noticing also!

Thanks... For giving me an idea of what to expect. Hopefully, my body reacts similiarly to yours as if it's another 3-4 months the end is in sight.

Swimmr Contributor
Swimmr
Posted
Hi,

I was diagnosed at the end of August and have started the gluten free diet on August 18th (about 2 months on the diet). I had thyroid cancer which may or may not be related to my celiac disease other then that my worst problems have been fatigue and joint pain. Since starting the diet I have experienced a huge improvement for the fatigue but the joint pain is still be unbareable. I take a steady dose of Lodene (anti-inflamatory) help manage the pain. I love playing hockey and the continued pain is very discourageing. I'm trying to be patient and and stay positive. If you have had a similiar experience to mine, how long did it take for your joint pain to improve?

Thanks,

Steve

I recently posted on a similar subject.

Started in 08 with an unexplained pain ON my knee, or rather on the bone it seemed. Very weird and was gone the next day.

Then the next one was my elbow.

Next it was my right hip just like 4 months ago and appeared overnight and so intense I fell to the floor when I got out of bed and cried. I could put NO pressure at all on my right leg all day long. I don't cry from pain unless I'm really hurt. I took an anti-inflammatory which made the constant pains subside...the only pain I would feel is if I had to walk or lay or move my leg.

Then I had it in my neck. It hurt SOOOO bad.

Then again in my hip. I was thinking it was migratory arthritis which is arthritis that literally migrates from one joint to the next. But since I have been MORE careful in my food intake I've had no more painful joint issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

So Steve, do still have your thyroid? I have a few thyroid issues and earlier this year found my joints were aching/sore. I ended up taking thyroid pills and my sore joints got a better after a little while. Hypothyroid can cause joint pain per the Mayo Clinic dudes:

Open Original Shared Link

schicker45 Newbie
schicker45
Posted
  • Author
So Steve, do still have your thyroid? I have a few thyroid issues and earlier this year found my joints were aching/sore. I ended up taking thyroid pills and my sore joints got a better after a little while. Hypothyroid can cause joint pain per the Mayo Clinic dudes:

Open Original Shared Link

Thyroid gland has been completely removed... Don't think it's thyroid related.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.