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twe0708

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twe0708 Community Regular

I was dx with celiac disease a little over 3 months ago. My dad had childhood diabetes and died from it at 56. My Dad's dad has two sisters (one died from cancer and the other is currently dying from cancer). Plus he had a brother who died of cancer as well as his father. Just wondering if it would be a good idea to ask my grandfathers sister who is currently battling cancer to get tested to see if she has this Celiac gene too and maybe they all were allergic to wheat and didn't know it and ended up with cancer because of it. Am I correct on thinking this is how it works. Maybe their cancer is due to the gene, so have one of them tested to see if this is the case? Or could I just ask my grandfather (their brother who hasn't had any problems) get tested. Which would be the best test to request or am I wasting my time?


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Lisa Mentor
I was dx with celiac disease a little over 3 months ago. My dad had childhood diabetes and died from it at 56. My Dad's dad has two sisters (one died from cancer and the other is currently dying from cancer). Plus he had a brother who died of cancer as well as his father. Just wondering if it would be a good idea to ask my grandfathers sister who is currently battling cancer to get tested to see if she has this Celiac gene too and maybe they all were allergic to wheat and didn't know it and ended up with cancer because of it. Am I correct on thinking this is how it works. Maybe their cancer is due to the gene, so have one of them tested to see if this is the case? Or could I just ask my grandfather (their brother who hasn't had any problems) get tested. Which would be the best test to request or am I wasting my time?

I would start with the Celiac Blood Panel:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

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    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
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    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
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