Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutend Last Night Really Bad.


Mey Marie

Recommended Posts

Mey Marie Explorer

For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

:(

Not sure what's making you sick. I do know that for my first few months most food still made me slightly ill -- this improved about month 5.

How long have you been healing?

Hope you feel better today!

cmg4835 Newbie

YOU CAN'T GIVE UP !!!! I feel the same way. I eat Cherrtos and M&M for lunch. As soon as my tummy bloats up I eat whatever I want - maybe not the best advice. But survive of the mind is most important....don't give up ....

Mey Marie Explorer
YOU CAN'T GIVE UP !!!! I feel the same way. I eat Cherrtos and M&M for lunch. As soon as my tummy bloats up I eat whatever I want - maybe not the best advice. But survive of the mind is most important....don't give up ....

It's just so hard because I am doing everything I am supposed to do. I have my kitchen set up just rite and now I don't know what else to give up. If I give up any more foods, I won't be eating any more.

ravenwoodglass Mentor

I would start keeping a food and symptom diary. Gluten can be sneaky and the symptoms can sometimes be delayed. A diary will help you pinpoint what is getting you a bit easier. It is hard at first and we do have some ups and downs but hang in there and eat as much whole unprocessed foods as you can. I hope you feel better soon.

Mey Marie Explorer
I would start keeping a food and symptom diary. Gluten can be sneaky and the symptoms can sometimes be delayed. A diary will help you pinpoint what is getting you a bit easier. It is hard at first and we do have some ups and downs but hang in there and eat as much whole unprocessed foods as you can. I hope you feel better soon.

Thank you guys.

ang1e0251 Contributor

You can do it! There are just a lot of ups and downs when you start out. I agree with the simple whole foods. The frozen prepared foods or mixes are hard on you in the beginning. Just simple foods you prepare yourself then note down in your food journal. If you have symptoms, then note them too. This seems simplistic but it really will help you pinpoint any problems.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Northern Celiac Newbie
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

Yup,

don't give up. But forget the prepackaged stuff like the amy's sheppards pie. The only safe prepackaged products I have found out there are GLUTINO. they are definately gluten free. Keep a diary tho, I have found that is a huge help. Also I live by a very simple motto"WHEN IN DOUBT, LEAVE IT OUT".

There's a couple of receipe site's out there as well

www.glutenfreeonashoestring.com

www.glutenfreegodess.blogspot.com

The big thing is that there's lots of hidden gluten out there and you need to take the time to read the labels. I know because I had problems this summer after my diagnosis. I glutened myself more than once.

Best wishes

Mike

P.S.

Stick it out you w2ill feel better and remember

"YOU ARE NOT ALONE"

ksymonds84 Enthusiast
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

Everything you ate (yes even the mayo) has soy except the artichoke. took me almost two years to discover soy was a problem too. Otherwise, my GI who is also gluten intolerant said that Amy's is notorious for cc (based on what patients tell him). Hope you figure it out, I know its frusterating!

AKcollegestudent Apprentice

It will get better, but that's not to say it'll be fun getting there. Have you tried eating meat, vegetables, and carbs? (Quinoa as a grain/carb to replace rice comes to mind.) Eating unprocessed foods without any other possible allergens was how I survived on an elimination diet for months.

And I know that even if I didn't react violently to soy and dairy, I would recommend giving up both (I know; you've already done that for dairy) for a while. Even before we knew that I have severe reactions to the two, my nutritionist pointed out that gluten, soy, and dairy irritate the immune system in the same manner, especially when the body is still healing.

Good luck and hang in there.

Switch2GF Rookie
It will get better, but that's not to say it'll be fun getting there. Have you tried eating meat, vegetables, and carbs? (Quinoa as a grain/carb to replace rice comes to mind.) Eating unprocessed foods without any other possible allergens was how I survived on an elimination diet for months.

This is how I stared out as I was learning, plus it is very healthy.

I would stick to: chicken, rice, corn chips, peanuts, fruits and veggies. Just make some really basic meals. Don't add anything like BBQ sauce, or anything processed that you are uncertain about. Keep it SIMPLE.

Then, expand from there. I would eat chicken and rice with some BBQ sauce, and it would bother me... so I cut out the BBQ sauce(and then found one that was 100% gluten-free).

Glamour Explorer

I agree with the fact that the body must be super sensitive to many other things if one has been celiac for a while. The DH rash seems to react to the smallest amount of gluten (maybe the villi are damaged and the antibodies are concentrated in the skin to a point that set backs are frequent.

I am not giving up. I feel better. I am starting to sleep better. Brain fog and depression are lifting.

I am about to go all non-prepared/fresh/raw foods, because of CC. Maybe after being gluten-free for a while the body can handle small amounts of CC.

I need to find beans and rice that guarantee being gluten free, as well as corn grits.

I also think fresh raw fruits and vegetables and spices might help to flush the body, skin, organs and all and get digestive enzymes functioning again. I think out of balance yeast and other flora is most likely an issue with celiac .

eatingganesh Newbie

Increasing sensitivity seems fairly common when a gluten-free diet is first adopted. ALOT of people complain about discovering new levels of sensitivity and new "intolerances" during the first few months (and up to a year and beyond). I've been gluten-free since the end of July and am now becoming more sensitive than ever before and to new and exciting things. Dairy is one... eggs... MSG is another.

I think there are a few things going on:

1. Increased awareness of your bodily functions is making you more sensitive to your responses to certain foods. Corn seems to mess me up now - it always had... but now I recognize that the reaction is not normal whereas before I would've just shrugged it off as 'bad gas'.

2. Once on a gluten-free diet, the intestinal tract is healing and as it does so it becomes more sensitive than usual... just like if you have a scrape, if you scrape the scrape it hurts like hell - way worse than the original scrape! My healer recommended a live culture yogurt to help speading that along... and I will attest that one Activia a day has helped me tremendously. See Open Original Shared Link for info on the utility of live culture for healing.

3. As the body withdraws and heals from gluten poisoning, it becomes more reactive to smaller and even diluted 'doses' of gluten. Other posts are pointing you in that direction, and its been my experience too. When I first started on this gluten-free diet I could handle soy sauce that had some wheat in it... I won't go near the stuff now. Over time and GFreeness we just get more sensitive.

I have recently found it very helpful to make a list of meals I can have, rather than focusing on what I cannot. When I find a meal that digests well with no symptoms, I add it to the list. The list is growing!

Mtndog Collaborator
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

Hang in there! I got sick very easily at first. I had to eliminate dairy, soy and then eventually all legumes (including my beloved peanut butter) at first. Keeping a food journal was key in helping me identify what caused problems and then posting here helped me put it all together.

Some Amy's products ARE made on shared equipment (the Shepherd's Pie is) and they used to make me very sick. Now that I have healed I eat the rice crust pizza with no problem.

Another thing I wanted to ask you was is your mayo shared? If so, it could be contaminated and that would certainly cause a reaction.

Hang in there, keep asking questions and keep a food diary! You'll make it. The beginning is the hardest- now it's a piece of gluten-free cake (most of the time)!

eatingganesh Newbie

Forgot to say that... after the body has healed and adjusted to the new diet, many people find that they become able to eat dairy etc again. I know soy is not dairy, but the point is that all manner of things will upset your stomach and GI tract while adjusting to gluten-free.

Try not to get discouraged! Many of us our basically following the paleolithic diet to get through this, so you are not alone in feeling like there will soon be nothing left that you can eat. Just give your body time to adjust and heal and all will be well.

Mey Marie Explorer
Hang in there! I got sick very easily at first. I had to eliminate dairy, soy and then eventually all legumes (including my beloved peanut butter) at first. Keeping a food journal was key in helping me identify what caused problems and then posting here helped me put it all together.

Some Amy's products ARE made on shared equipment (the Shepherd's Pie is) and they used to make me very sick. Now that I have healed I eat the rice crust pizza with no problem.

Another thing I wanted to ask you was is your mayo shared? If so, it could be contaminated and that would certainly cause a reaction.

Hang in there, keep asking questions and keep a food diary! You'll make it. The beginning is the hardest- now it's a piece of gluten-free cake (most of the time)!

You know?.... I have my own peanut butter in my special cupboard, But I never thought of the Mayo. Thank you. I can't believe I never thought about that.
momofcdson Rookie
For dinner I had Soy yogurt, I don't think I have a problem with soy.... Then an Amy's Shepherds Pie, And a friend told me later in the night that Amy's products are made on shared equipment and she gets sick from Amy's??? And then an artichoke with Just Mayo.

I have been getting sick so easy that I have now been staying away from Dairy, Rice, Corn, GLUTEN, And now possibly Soy. I can't stop getting sick. WTF. I am ready to say forget it. I don't know what is left to do. I think I give up. My dietitian was wrong about almost everything.

My son has been gluten free for nine months. He seems to get stomach aches and diarrhea every couple weeks or so. Is this cross contamination? He first started having the symptoms a year ago, and was diagnosed within six months! I feel very fortuante for that. He is 24 years old. He has noticed a huge improvement since going gluten free. He suffered from brain fog, hair loss, tired all the time. These have all improved.

ravenwoodglass Mentor
My son has been gluten free for nine months. He seems to get stomach aches and diarrhea every couple weeks or so. Is this cross contamination? He first started having the symptoms a year ago, and was diagnosed within six months! I feel very fortuante for that. He is 24 years old. He has noticed a huge improvement since going gluten free. He suffered from brain fog, hair loss, tired all the time. These have all improved.

Hi and welcome to the board. It certainly could be CC depending on what he typically eats. If he eats out a lot that may be an issue. Does he go out with freinds for drinks? He needs to be careful with mixers and some of us have issues with distilled gluten grains also. Some of us also have other intolerances that come to the forefront once gluten is avoided. It can be hard to figure out.

He was diagnosed within 6 months! That is great as it often takes a while for us to get a diagnosis. I am glad he is improving. You might want to start a new topic and let us know what he is eating and perhaps we can assist a little better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.