Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious About This


briar

Recommended Posts

briar Newbie

hi guys! i'm new to the gluten-free diet and i've never been diagnosied with celiac disease but since i've been gluten free i've gained around ten pounds and i've been feeling GREAT! when i did eat gluten after 50 days of being gluten-free i lost eight lbs in a very short amount of time and as soon as i was back to not eating gluten i started gaining the weight back. i am really curious about if i could have celiac disease... i looked at all the common symptoms and i have a few but any pro help would be awesome!!! please reply!!!! ((oh and i started all the gluten freeness because i'm engaged to a guy with celiac disease :D just in case anyone was curious!!!))


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Switch2GF Rookie

Eating gluten free is an extremely healthy way to live... celiac or not! There are lots of people who adopt the diet just for the benefits. You are cutting out a lot of unhealthy and/or processed foods and thinking twice about everything you eat.

My guess is NO, you don't have celiac, but are just getting the healthy benefits from eating a healthy diet.

If you really want to know, go have a blood test done. Blood work is not a 100% diagnosis, but at least a first screening to whether you should dig deeper(PUN :P ) and have an endoscopy.

mushroom Proficient
hi guys! i'm new to the gluten-free diet and i've never been diagnosied with celiac disease but since i've been gluten free i've gained around ten pounds and i've been feeling GREAT! when i did eat gluten after 50 days of being gluten-free i lost eight lbs in a very short amount of time and as soon as i was back to not eating gluten i started gaining the weight back. i am really curious about if i could have celiac disease... i looked at all the common symptoms and i have a few but any pro help would be awesome!!! please reply!!!! ((oh and i started all the gluten freeness because i'm engaged to a guy with celiac disease :D just in case anyone was curious!!!))

I would like to hear what your "common" symptoms are, just as a matter of interest. Also if the weight loss was good news or bad news, i.e., were you overweight before and trying to lose weight? Celiac produces two diammetrically opposed responses depending on your body's reaction. Some people lose weight drastically while eating gluten and cannot gain an ounce. With others, the body seems to go into defensive mode when it is not getting the nutrients it needs (i.e., thinks it needs to prepare for famine) so these people gain weight and cannot lose any until they heal from the gluten, start absorbing gluten again, and the body says, "Okay, no famine any longer."

briar Newbie
I would like to hear what your "common" symptoms are, just as a matter of interest. Also if the weight loss was good news or bad news, i.e., were you overweight before and trying to lose weight? Celiac produces two diammetrically opposed responses depending on your body's reaction. Some people lose weight drastically while eating gluten and cannot gain an ounce. With others, the body seems to go into defensive mode when it is not getting the nutrients it needs (i.e., thinks it needs to prepare for famine) so these people gain weight and cannot lose any until they heal from the gluten, start absorbing gluten again, and the body says, "Okay, no famine any longer."

well, i've always been really small. i never weighed over 110 until i quit eating gluten. losing weight for me was bad. i gained ten lbs when i first stopped eating gluten and i lost a bunch of weight when i did eat gluten and gained it back in the gluten free weeks that followed and have been gaining weight since then. my mom is going to set me up for a blood test even though i've heard from alot of people that its not 100% accurate. i just dread the thought of eating the gluten before hand. and i've looked online at the 300 symptoms but honestly with a list that long everyone is bound to have some of them right?

briar Newbie
Eating gluten free is an extremely healthy way to live... celiac or not! There are lots of people who adopt the diet just for the benefits. You are cutting out a lot of unhealthy and/or processed foods and thinking twice about everything you eat.

My guess is NO, you don't have celiac, but are just getting the healthy benefits from eating a healthy diet.

If you really want to know, go have a blood test done. Blood work is not a 100% diagnosis, but at least a first screening to whether you should dig deeper(PUN :P ) and have an endoscopy.

Thanks for the help!!! i talked to my mom and she's going to set me up with a blood test and i've done my homework on this stuff but what exactly is a "first screening"? is that like a pre doctor thing before the endoscopy? i'm going to google now. :D

i know its probably really silly to get a test done when i'm already gluten free but i'm really curious and i feel like i HAVE to know for sure.

Switch2GF Rookie
Thanks for the help!!! i talked to my mom and she's going to set me up with a blood test and i've done my homework on this stuff but what exactly is a "first screening"? is that like a pre doctor thing before the endoscopy? i'm going to google now. :D

i know its probably really silly to get a test done when i'm already gluten free but i'm really curious and i feel like i HAVE to know for sure.

I called the blood work a first screening, because, like you know, it really can't be used to officially diagnose celiac, but it is a good start. You will have to eat gluten the days prior to the blood work, so that they have some antibody to look for. If you weren't eating gluten, then the test would show up negative because your body isn't fighting gluten.

If your test came back positive or really inconclusive, then you follow up with an endoscopy. Start with the blood work, cause I wouldn't want to put myself through an endoscopy if I didn't have to(not b/c it is hard, just inconvenient to devote a day towards it and can be costly)

Good luck and keep us updated!

mushroom Proficient

You probably know that in order for the blood test (or endoscopy for that matter) to have any chance of validity you need to have been eating gluten (say 3 slices of bread a day or equivalent) for at least two months, some say three. Otherwise your body will not have made enough antibodies to show up on the tests or the damage to the small intestine may have healed too much. Often people are diagnosed with celiac who have been completely unaware that they had any symptoms, so it is not unusual.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



briar Newbie

so i've decided for sure to do a test. i've started eating gluten again and honestly i feel like crap. :( my sister never stopped eating gluten so she went ahead and got a blood test and her results come in either today or tomorrow. so if she comes back positive i might just skip to the endoscopy. i feel pretty sick; i guess it could all be in my head but i'll let yall know. see ya...

G-freegal12 Contributor

Here is a few tips for you while you eat gluten....

1) Never wander far from a near-by bathroom

2) Pretend that what you are eating is good for you

3) Don't stare at rice pasta in the store...staring isn't nice.

Good Luck!!!

GottaSki Mentor

You'll need to continue to eat gluten for a few months for either blood work or biopsy and even then many with Celiac Disease have negative tests.

You mentioned you already feel bad since adding gluten back into your diet. Do you feel strongly that you need an official diagnosis?

Your doctor may be able to diagnose you with the dietary response along with a gene test. You can have the gene testing done whether or not you are eating gluten. The celiac genes are DQ2 and DQ8 - if you carry either of these genes it is possible you have celiac - the genes alone do not mean you have celiac - only that it is possible for you to develop celiac.

Even if you are not Celiac - it is good that you found eating gluten-free is of benefit to your body at a relatively young age!

Good luck to you and your finance!

Fitze082 Newbie
You'll need to continue to eat gluten for a few months for either blood work or biopsy and even then many with Celiac Disease have negative tests.

You mentioned you already feel bad since adding gluten back into your diet. Do you feel strongly that you need an official diagnosis?

Your doctor may be able to diagnose you with the dietary response along with a gene test. You can have the gene testing done whether or not you are eating gluten. The celiac genes are DQ2 and DQ8 - if you carry either of these genes it is possible you have celiac - the genes alone do not mean you have celiac - only that it is possible for you to develop celiac.

Even if you are not Celiac - it is good that you found eating gluten-free is of benefit to your body at a relatively young age!

Good luck to you and your finance!

Since the weight loss is a good thing there is a decent chance that you have Celiac. Malnutrition is a symptom. Its smart of your sister to get tested since it is genetic. Even if you don't have celiac disease you may just have a gluten intolerance which is why you feel better when you avoid gluten

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.