Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-Free For A Couple Months - Still Diarrhea!

L13

Recommended Posts

L13 Rookie
L13
Posted

Ok - I have been on the diet and eliminated most dairy too but still have bad diarrhea. It is embarrassing and annoying. My doctor said to take Prilosec - but that was for heart burn (stomach acid)!???

How long does it take for NORMAL BMs - it is so lame to be asking this but where else can you ask other people!?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jststric Contributor
jststric
Posted

I can only speak of my experience with this. When all my problems started I had diarrhrea all the time. I was altready dairy-intolerant but it got alot worse. I couldn't get doctors to find a reason for anything so I did my own research and decided Iust have a 'leaky gut' which needed to be healed before I would see results from any elimination diet I was trying. My doc did say that I needed to replace the good bacteria in my intestines by eating yogurt. Being dairy-intolerant, that wasn't possible. I finally stumbled onto a vitamin and supplement company that has a very large segment of products that are allergen-free. See www.kirkmanlabs.com. I got some lactobassilus acidolphilus pills and took a double dose for 2 weeks and could really see an improvement in my stools. I still take 1 a day and if I feel like I've poisoned myself in some way I double up again for a few days. You could also have an allergy or intolerance to other food groups you haven't discovered yet. Start a journal and see if you could find other reasons.

Lisa Mentor
Lisa
Posted

Consider doing a food diary and document all foods, lotions, lip treatments, meds, vitamins, etc.... are all gluten free, or perhaps other food intolerances....as already mentioned.

Prilosec is as odd RX. Too much can give you bathroom issues too.

GottaSki Mentor
GottaSki
Posted

I agree Prilosec sounds like an odd solution. Best to start with the food log -- don't forget vitamins/supplements. Too much Magnesium gives me some issues.

Also, not sure how long you've been gluten-free -- it can take some time for everything to become more regular -- for years my problem was more C than D - think it took at least 3 months for me to begin to be more regular.

Good Luck!

Lynayah Enthusiast
Lynayah
Posted

Take a look at the Carbohydrate Specific Diet at Open Original Shared Link

The information there may help you (it helped me).

  • 2 weeks later...
jackay Enthusiast
jackay
Posted

I've been taking probiotics for a long time. Doubled my dose and when that didn't work, doubled the double dose. I still am not seeing much of an improvement. Some days it is a little better and I think the worse is over but then it starts in again.

I've eliminated nuts, soy, dairy and eggs and still have diarrhea. I'm guessing it is from gluten contamination. If it's not the wheat, it has to be some other food(s). I keep a food diary and can never pinpoint what other foods are bothering me.

I did try kefir a few times as my doctor thought I could possibly handle dairy that way since it has so many good strains of probioitics. My system is definitely not ready for that. It sure was delicious though. I definitely miss dairy more than I miss wheat. I do hope my dairy days can come back.

tunibell Rookie
tunibell
Posted

You might want to ask your doctor about testing for microscopic colitis. It's another autoimmune disease that can often occur in tandem with celiac disease. It requires a colonoscopy to diagnose (fun, I know), but it is very treatable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sunnybabi1986 Contributor
sunnybabi1986
Posted

I've been taking a probiotic since May and it eliminated my problem with D altogether. However, when I went gluten free in October, I thought I'd wait a bit and see if I could stop taking the probiotic, since I was off gluten. I stopped taking my probiotic 10 weeks after going gluten free and within 48 hours, was having D again, just like before I'd started the probiotic.

For me, my probiotic has been a lifesaver. Apparently my body needs them, and when I stop taking them, I get pretty sick with D. I would suggest trying a probiotic and see what happens. Also look at other foods that may be causing a reaction, like soy or eggs. Good luck!

Janie

  • 1 month later...
SaraLynnMusic Newbie
SaraLynnMusic
Posted

I don't think it's lame to ask that question. I have the same question. I've been on the gluten-free diet for 2 months now. I am EXTREMELY cautious about cross contamination and what is in the ingredients of anything I ingest right down to my toothpaste and the shampoo I use. I'm taking the soluble fibre stuff that a lot of IBS people take in the hopes that will help. So far still have the D. It's difficult for me to leave my house, to go to work etc. Because of that I'm experiencing extreme anxiety when I do leave the house.

Will the D ever stop? Could it be that my body is still healing after 2 months of being gluten free or is it more likely there is something else going on? Did it take anyone else this long to get rid of their D and then their BM's finally became normal again?

Tanya4444 Newbie
Tanya4444
Posted

Ok - I have been on the diet and eliminated most dairy too but still have bad diarrhea. It is embarrassing and annoying. My doctor said to take Prilosec - but that was for heart burn (stomach acid)!???

How long does it take for NORMAL BMs - it is so lame to be asking this but where else can you ask other people!?

Thanks

Tanya4444 Newbie
Tanya4444
Posted

Hi there! I have been gluten-free for about six months and it was not until two months ago that I finally felt normal in the BM department. It had been initially really good for about a month following gluten elimination and then off and on again with the diarrhea for the next three months. So....don't despair--I think it takes varying lengths of time for the vilii to repair from the damage. I have felt great for two months now and I haven't been able to say that in years and years!!!!

T.H. Community Regular
T.H.
Posted

re: the prilosec.

After having an allergic reaction to a food that landed me in the ER, I was given prilosec, too.

I was told that on top of the antacid properties, prilosec also acts as an anti-inflammatory in the gut, so it can help calm things down in that area of the body, for some people. I'm assuming maybe that's what they were thinking of?

Ok - I have been on the diet and eliminated most dairy too but still have bad diarrhea. It is embarrassing and annoying. My doctor said to take Prilosec - but that was for heart burn (stomach acid)!???

How long does it take for NORMAL BMs - it is so lame to be asking this but where else can you ask other people!?

Thanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.