Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Must-Do

happygirl

By happygirl
in Coping with Celiac Disease

Recommended Posts

happygirl Collaborator
happygirl
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Excellent article--thanks Happygirl ;)

CecilyF Rookie
CecilyF
Posted

After reading that article, I subscribed to the magazine! :D

jerseyangel Proficient
jerseyangel
Posted

After reading that article, I subscribed to the magazine! :D

It's a very good magazine--I think you'll enjoy it. :D

Lynayah Enthusiast
Lynayah
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Hi, Happy Girl . . . happy new year to you!

Thanks for your post. I get the mag. and had read the article, but there is a wonderful video featured on your link, too. I enjoyed watching it. Much appreciated.

PS: For those who do not subscribe to LIVING WITHOUT, it is wonderful.

Takala Enthusiast
Takala
Posted

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

Review of article.

Understand your disease. √

Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Join a support group. How about the internet as otherwise anything like this is too far away or just doesn't exist for many of us.

Check your pantry. √

Stock the basics. √ Okay, but as for using pre made mixes instead of from scratch, you have got to be kidding me.

Dust off your apron. No, WASH the apron. Wash the oven mitts. Throw out or give away some of your cookware, and buy new baking/cooking pans.

Buy a bread maker. Not unless you have all the allergies and intolerances figured out first, and even then, you may not need it. Your metabolism may not be geared for consuming high amounts of gluten free breads. Buy a 4" by 8" loaf pan.

Patronize local businesses. √ YES, with a caveat. Don't ever assume a big, name brand chain won't gluten you. A small local place, on the other hand, even without a gluten free menu, but with a smart, helpful waitstaff and chef, may be safer. If your local small grocery or health food store stocks gluten free items, praise them.

Don't settle. √ Of course our food is better. It's from scratch, and it tends to not have many additives.

Exhale. √ Yes.

happygirl Collaborator
happygirl
Posted
  • Author

Its a great magazine with lots of helpful, up-to-date information - I think you'll enjoy it, Cecily.

Happy New Year to you, Lynayah!

Hi Patti!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted

:ph34r: Uhm, what is that... scary thing that the woman is staring at in the accompanying photo ? It looks like compost on a plate.

LOL! Well, if it is REAL chocolate cake and not gluten-free, it sure as heck is compost waiting to happen!

mysecretcurse Contributor
mysecretcurse
Posted
Build a Medical Team. "medical team?!" " nutritionist who specialize celiac disease ?!" uh oh, let's not go into that one as we don't have time for the saga today.

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

lynnelise Apprentice
lynnelise
Posted

Haha... I like your posts Takala... I read that and had the same thought... my mind just went UGH.. PLEASE. I'm iffy about the rest of that article but some of it is good. The bread maker thing is annoying to me also because like you said so many people haven't figured out what their other intolerances are after going gluten free. The article is okay but it doesn't seem to address that most of us are intolerant to a lot of stuff due to our leaky gut damage from celiac...also I've read that magazine before and it has some good stuff in it but nothing compared to these boards or the interwebs in general. I also dislike the title, LIVING WITHOUT... just sounds so damn negative. I don't feel I'm "living without" ANYTHING other than a poisonous death.. I would prefer to see it called living free or finally free or something like that. Maybe its just me. :D

I definately enjoyed the article but I have always thought the title Living Without is depressing! lol!

New-To-This Rookie
New-To-This
Posted

This article was in the recent Living Without magazine. Its a great resource for newly diagnosed - and all - Celiacs and others with gluten intolerance.

Open Original Shared Link

Good article for someone just starting out. However it should have given a web site or something on how to locate a support group near your home. I live in the middle of no mans land and don't have a clue where to turn for a support group that isn't 2 or 3 hours away. So far this has been my support group and where I get some of my information. One other thing it missed was suggesting books like "The first year Celiac Disease and Living Gluten Free" by Jules E. Dowler Shepard It walks you through the first 7 days than next 3 weeks than monthly afterwards. I wish I had found it when we first started this, not by seeing it in a store and deciding I was going to check it out of the library first. Which gets to my next point. Do lots of research and ALWAYS check a cookbook out of the library before spending your hard earned money on a book that will only disappoint you. I am having a hard time finding a remake of my old faithful betty crocker cookbook and am finding tons of books with stuff I never ate before and my husband is say "You want me to eat what?!? to, lol! Needless to say I am fortunate enough to love to cook and resourcefull enough to find alternatives so I can alter our old favorites myself. I may even write a remake of the good old betty crocker cookbook type cookbook when I am a good long ways into altering my recipes, lol!

Best of luck to all those first starting and everyone else too. Your best resources are web sites like this one!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.