Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened?


Sanson

Recommended Posts

Sanson Newbie

I made a quinoa, veggie and tahini bowl for dinner tonight and I think I've been glutened. I'm new to gluten-free and waiting for blood work to come back. I'm on day 7 and I've been 'poisioned' twice so far...or so I think! (I've cleared out all the gluten in my house that is obvious to start) Half an hour after dinner I started getting symptoms that I equate to Gluten. Extremely tired, headache, a few hives, acidic stomach etc. The only other time I've gotten a headache like this was with another Asian product, Coconut Milk that claimed to only have one ingredient. The Tahini I have is also "100% Sesame Seeds" but is from Lebanon. I've researched Asian labelling laws and can't find anything. Anyone else experience anything similar? I was wondering if if could be MSG as well eventhough it says nothing on the label?!?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I don't know, it may not even be gluten. When you first go gluten free your gut is in a very fragile state and often has problems with things that would not normally be a problem. You really have to expect some unexpected reactions especially in the first couple of weeks. It could be that your digestive system did not like the quinoa--gluten free grains are often a problem to start with. Was this a full gluten reaction for you?

Mskedi Newbie

It's interesting that you mentioned coconut milk as a problem. I, too, react strongly to it though there seems to be no gluten at all (I read and reread the label). It's happened twice, both times on days where I only prepared foods in my gluten-free kitchen and used products I'm familiar with. A lot of other people develop intolerances besides gluten, so apparently gluten is my intolerance. It's no fun considering I love Tom Kha Het and it's ridiculously easy to make gluten-free. We used a Thai-brand can of coconut milk the first time and an American-brand can of it the second time, so I do think it is the coconut itself and not some false labeling. The first time was about a month into being gluten-free and the second about five or six months in. I think I'll try again in a year or so.

I haven't had any problems with Tahini, but there doesn't seem to be much logic to this at all.

Sanson Newbie

I don't know, it may not even be gluten. When you first go gluten free your gut is in a very fragile state and often has problems with things that would not normally be a problem. You really have to expect some unexpected reactions especially in the first couple of weeks. It could be that your digestive system did not like the quinoa--gluten free grains are often a problem to start with. Was this a full gluten reaction for you?

Thanks Mushroom. At this point I don't even know what my full gluten reaction would be. I have a lot of symptoms, digestively and elsewhere, some specific to eating wheat that I know of to start. I was wheat-free for years but still endured a lot of symptoms. Given that I'm not "food hungover" this morning I won't jump to conclusions whether or not it was gluten...just yet :) I do eat a varied diet and have had quinoa and other gluten-free grains for years. I'm just starting to track what I put in my mouth more closely. I do hear what you mean about 'unexpected reactions' as I seem to be all over the map this week!

Mskedi- I guess the only way to know is to try the same dish and see if it happens again? Ouch! I think it's a bit ironic that these two reactions came from over sea products. I tried the Coconut Milk twice to see if that was it and I won't be trying that again with the Tahini :) I am going to assume that this will all take a while to get to know what I react to and what I don't. I did have casein allergies as a child (that I'm not convinced I grew out of) and I avoid popcorn like the plague. So far so good I'd say.

Ahorsesoul Enthusiast

Sanson,

Remember about cross contamination. Wood, plastic and coated pans that have contained gluten items can make you sick. Sometimes cutting out dairy and soy for a few months can help.

Sanson Newbie

Sanson,

Remember about cross contamination. Wood, plastic and coated pans that have contained gluten items can make you sick. Sometimes cutting out dairy and soy for a few months can help.

I'm always surprised to learn that such small amounts could have such a huge effect. By what I've been reading I realize that it can! I'm waiting for blood work to come back as it would be 'nice' to have confirmation re celiac so I know what to look out for. Not necessary as I realize my symtoms will be the best Doctor. Thanks Ahorsesoul :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal

    2. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal

    3. - xxnonamexx replied to xxnonamexx's topic in Related Issues & Disorders
      5

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    4. - trents replied to xxnonamexx's topic in Related Issues & Disorders
      5

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,330
    • Most Online (within 30 mins)
      7,748

    Strider55
    Newest Member
    Strider55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
    • kpf
      Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. 
    • xxnonamexx
      I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
    • trents
      As ShariW explained, soy itself doesn't contain gluten but most soy sauces sold in stores and used in restaurants contain wheat as an ingredient so they are not gluten free. As I understand it, there are two traditional ways of making soy sauce. One way contains wheat and one doesn't. The most popular one found out there in the wild does contain wheat, however. Kikkoman offers a line of gluten-free soy sauce and Teriyaki products that are often sold by grocery store chains like Safeway. There are food allergy/food sensitivity tests available and your physician can order them or give you a referral. They fall into two categories, the skin prick kind and the blood test kind. One you might look into is called the ALCAT test which might be the most helpful for foods. However, the reliability of these things is questionable. The results can be helpful as a place to start but the results often don't match up with real life experience. There are reasons for this and you might do well to research food sensitivity testing reliability on the Internet. 
    • trents
      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods) that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.