Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Myself Slipping Into "That Place" Again

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

Hello All-

As some of you know I made some progress and have been feeling much better mentally & physically. However, these past few weeks have been a little stressful for me...I didn't get a job that I wanted and also went for an endoscopy, which in of itself was a bit intimidating. My results showed no evidence of celiac, but again i have been gluten free for a while. I guess its good that the bowel at least looks normal...means i healed or am healing.

All my other labs were ok, but unfortunately my liver ALT enzyme is still a bit elevated (has been for 6 months)...it actually dropped 10 points since the last test (went from 70 to 60) but im still concerned. I am negative for Hep A & B and am afraid to get the Hep C test...dont consider myself to be at risk but who the hell knows. I havent been taking any meds and am not a heavy drinker so I dont know what the problem is. My doc wants to run some more tests to see if there are any nutrient deficiencies so maybe that will shed some light.

On top of that I had a false positive HIV test which initially scared the crap out of me and was also diagnosed with Oral Lichen planus. So as you can see I havent been in a very peaceful state of mind lately.

I was really on the right track for a while and hit another snag on the road to happiness. Anyway, just venting on a freezing cold Saturday morning. Thanks for listening :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mskedi Newbie
Mskedi
Posted

Sounds like you've had good reason to be stressed. The good news is that, in my experience, once you've experienced being happier and healthier it's easier to return to that state. Congratulations on not having any evidence of Celiac anymore -- that means you've been doing quite well. :)

I hope you get all the answers you need about any deficiencies you have.

Could the Oral Lichen Planus be related to Celiac in any way since it's also an autoimmune reaction? What I read on it (I'll admit this is the first I've ever heard of it, so I googled) implied that they don't know the exact cause of it. It (the Mayo Clinic site) did say it often occurs with other autoimmune diseases and allergies, so that would make sense. In any case, I hope you are able to learn to manage it in some way. I wish you luck.

ravenwoodglass Mentor
ravenwoodglass
Posted

Im sorry you didn't get that job. These times are hard for anyone looking for work right now.

I am glad to hear the liver enzymes are going down. I wouldn't stress out about it too much if your doctor isn't overly concerned. Many of us do have elevated enzymes when diagnosed and they can take some time to get down to normal levels. Your doing the right thing by avoiding alcohol for now and taking care of yourself diet wise.

It is good that your doctor is checking you for nutrient issues, do make sure to let him know if you take any supplements as they can skew the results.

I think you have come a long way from the posts when you first joined us. This bump in the road will pass.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Jason,

So sorry you did not get the job you desired. Hopefully this will leave a opening for something better for you.

About your tests. Go for all you can. The more you know the better you will be able to deal with it. It's the thinking and worrying about it that gets all of us down. Attack it head on and wrestle it. No reason for it to stalk you.

Oral Lichen Planus, could be related to celiac, track any new spots in a food/symptom journal to see, otherwise consider them tattoos

Hep C, take the test, better to know than to keep worrying

Diseases are not something we have much control over, none of them are shameful, diseases happen, we just have to deal with them the best we can. Look how far you have come. I know you can do this.

Wolicki Enthusiast
Wolicki
Posted

Jason

Elevated liver enzymes are common with Celiac. I wouldn't worry too much about it. As far as the tests go, have them all. It's better to know than to worry. Sorry about the job, but this just means that something better is waiting for you in the future :rolleyes:

Keep a positive attitude, walk on the sunny side of the street. When you get bummed, just be thankful for the things you have, and try not to worry about things outside of your control.

Be well

Janie

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Jason,

About "that place", I just called there and they said they are full so you can't come in!!!

jerseyangel Proficient
jerseyangel
Posted

Jason,

About "that place", I just called there and they said they are full so you can't come in!!!

:D :D

Sorry about the job, Jason. I like to think that these things happen for a reason and that an even better one will come along ;)

I wouldn't be too concerned about the enzymes--they're headed in the right direction and Celiac can really affect them in some of us--I included. Also, be careful of NSAD's and or Tylenol (if you take them) they can have an effect on liver enzymes too.

There will always be challenges along the line--just when you think you're on top of it all something else can crop up. Take it from someone much older--such is life. Keep your wonderful new upbeat attitude, focus on the positive, and keep the faith! You've come a long way and I'm proud of you :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Ditto, to all previous posters. Once you've found the bright side, the gloomy side is not the place to be. Be a take charge kind of guy, and "don't let the bastards get you down." Stay warm and sunny. ^_^

jasonD2 Experienced
jasonD2
Posted
  • Author

You guys are the most supportive people in my life - thank you! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.