Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Other Food Intolerances Go Away On Their Own?


jackay

Recommended Posts

jackay Enthusiast

I just got back my blood test results for additional food intolerances. I tested intolerant to many, many foods. I am suppose to avoid them and be on a four day rotation diet. I can see avoiding all foods that I tested extremely and moderately intolerant to. However, I am wondering if it is necessary to avoid everything that I am mildly intolerant to.

I know a lot of people say that these blood tests aren't that accurate. I question that too since I had them done 18 months ago and gluten and gliadin didn't show up at that time. This time, there was no reaction to gliadin but a mild reaction to gluten. I tested positive to gliadin six months ago with a saliva test. Since I have eliminated gluten, would that cause the test result to be negative at this time?

No matter how I test for gluten, I know I have to avoid it. I am making progress in healing. My diarrhea and anxiety are gone and I am finally sleeping.

As my stomach continues to heal from avoiding gluten, will I be able to tolerate other foods without first giving them up?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I believe if your body is reacting to something, it will continue reacting as long a it is continually exposed. It is what you might call "reaction set" at the moment, on high alert, and it needs time to calm down and realize that it is not going to keep on being poisoned all the time. Once the sentries go off duty when you have healed, you can add back in those things that the body thought might be a problem, but it was only because the sentries were overzealous. :o

jackay Enthusiast

Mushroom,

Have you had experience with food intolerance testing? I question some my results.

One example is that I tested extremely sensitive to lemon, mildy sensitive to grapefruit and not sensitive to lime or orange.

Another example is extreme sensitivity to zucchini, moderate sensitivity to cucumber and pumpkin, mild sensitivity to yellow squash and no sensitivity to acorn squash. I wonder where butternut squash fits in there as there was no test done on it.

The third one in question is extreme sensitivity to mackerel, mild sensitivity to talapia and no sensitivity to other seafood.

I wasn't expecting such a range within food groups.

Jackay

mushroom Proficient

Mushroom,

Have you had experience with food intolerance testing? I question some my results.

The only intolerance testing I have had done was in the 90's--skin prick testing which showed mild soy and corn, and then post-(self) diagnosis of gluten intolerance, when I had stool testing done which showed a sensitivity to casein and eggs, both of which (as far as I can determine by reaction) were incorrect. I was lactose intolerant but not casein, and eggs have always been a "go-to" food when I was sick. So I do think intolerance testing to foods is overly sensitive whereas celiac testing is, I feel, undersensitive.

I do not recall what all was tested back in the 90's but I know I had about 25 skin pricks. Sorry I can't be of more help. By the way, corn remains a problem food for me. I used to be able to eat our non-GM corn here in New Zealand, but now even that gives me problems. I can eat our grass-fed beef here but not the corn-fed beef in the U.S., only organic there. I got into an argument once with Whole Foods when they sold me some ground beef as organic and as soon as I ate it I knew it wasn't. Just like you know when you've been glutened.

jackay Enthusiast

I did find in the booklet for the food intolerant tests that they are considered 83.4% accurate. I had been off eggs close to six months before I was tested. I only tested intolerant to egg yolks so may give egg whites a try.

I had a moderate intolerance to corn and there is corn starch in a prescription I take. I had a mild reaction to rice and that is in at least three of the supplements I take. Hopefully I won't need any of them too much longer. I see my doctor in a month so will see what he wants me to do about them.

mushroom Proficient

I can tolerate quite a bit of corn if it is, e.g., used as a binder in medications, some cornstarch in baking/cooking, so I guess I am saying if it is an ingredient in something. But I cannot eat a corn tortilla. So there are levels of tolerance/intolerance for me and maybe you (for everything but gluten!).

A lot of recipes call for just egg whites and egg replacer, or you can use applesauce in some cases, I understand.

jackay Enthusiast

Maybe the binders are O.K. since they are such small amounts. I'm still at the healing stage and haven't been able to pinpoint too many things that I think are culprits.

According to the last tests, I can bring back some dairy and soy. I really am not interested in soy but am looking forward to trying cheese. I already tried kefir but that was colored with beet juice, which is an intolerance. I finished it up even after I found out beets were a problem. Maybe that's why my muscles feel worse today.

I won't be doing any baking since I'm suppose to avoid yeast sweeteners and refined grains due to a reaction to candida. That is one test I'm questioning since it has never been a problem before. I've been taking probiotics for years so feel that should be under control. It did suggest taking garlic, caprylic acid, berberine, grapefruit seed extract or Chinese bitter herbs for this. I'll see what my doctor has to say about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I won't be doing any baking since I'm suppose to avoid yeast sweeteners and refined grains due to a reaction to candida. That is one test I'm questioning since it has never been a problem before. I've been taking probiotics for years so feel that should be under control. It did suggest taking garlic, caprylic acid, berberine, grapefruit seed extract or Chinese bitter herbs for this. I'll see what my doctor has to say about this.

Several forum members have taken caprylic acid with success; I remember some cautions about quantities of grapefruit seed extract???

Edit P.S. See this link:

https://www.celiac.com/gluten-free/index.php?showtopic=64801

  • 1 month later...
horsegirl Enthusiast

My Enterolab results showed intolerance to gluten, casein, soy, & eggs. I only suspected the gluten, so the others were shocking. I eliminated them all, & after a year I tried eggs again - no reaction at all! I have since eaten eggs many, many times with no adverse effects at all, which I'm so thankful about. I've inadvertently had soy (I didn't realize it was an ingredient in certain foods I had at Chipotle) & have gotten sick every time, so I think that one remains out. I want to reintroduce dairy in small portions to see if I can be successful as I was with eggs. However, I'm just recovering from what may turn out to be a corn intolerance, so I want my gut to heal a bit longer before I try yogurt or an aged cheese first.

Good luck! I think everyone's body is totally different in how it responds.

Keep us posted on what happens for you.

sandsurfgirl Collaborator

Were these food intolerance tests or allergy tests? Allergy is a histamine response, and intolerance means you are not digesting it properly, most likely because your body isn't producing enough enzymes for that food.

If you are mildly allergic, then yes you can heal that allergy with a rotation diet. It's the same concept as allergy shots. Tiny exposure to the allergen makes the body build up resistance to it and quite producing histamine when you eat it. However if any of your allergies is severe then you cannot eat it because you risk anaphylaxis and death. Even mild allergies can one day become severe and cause anaphylaxis so if you have ANY true food allergies you must carry an epi pen.

Now with intolerances, as your gut heals, then you might be able to eat things like dairy and whatnot again because your body will be producing the right enzymes that you need to digest those things.

The distinction between allergy and intolerance is crucial because a food intolerance will not cause anaphylaxis and possible death, but an allergy can and must be handled carefully.

sandsurfgirl Collaborator

I wanted to add that if allergy tests come up negative, but a food makes you sick they will generally consider it an intolerance.

soblessed128 Newbie

Mushroom,

Have you had experience with food intolerance testing? I question some my results.

One example is that I tested extremely sensitive to lemon, mildy sensitive to grapefruit and not sensitive to lime or orange.

Another example is extreme sensitivity to zucchini, moderate sensitivity to cucumber and pumpkin, mild sensitivity to yellow squash and no sensitivity to acorn squash. I wonder where butternut squash fits in there as there was no test done on it.

The third one in question is extreme sensitivity to mackerel, mild sensitivity to talapia and no sensitivity to other seafood.

I wasn't expecting such a range within food groups.

Jackay

I totally understand your issue. My allergist just placed me on the rotation diet to figure out what I am allergic to. I am of course highly sensitive to gluten. Somewhat to lemons, grapefruit,and other citrus. I also noticed that I cannot tolerate some raw veggies. I have noticed however that healing is taking taking place as long as you avoid the things that cause trouble. My sores have started going away on my mouth and I do not have as much periphial nueropathy. My skin condition is not as bad but returns when eating something agrivating. My gastroenterologist also suggested I try bowel retraining to get my bowel habits and food digestion normal again. There is hope. Just keep trying to figure out what is causing you trouble and stop eating it. there are so many foods to choose from that we have to eat. Just be creative.

  • 2 weeks later...
Lisa79 Enthusiast

How was you tested for other intolerances? Was is a blood test thru your doctor?

I have multiple intolerances although this was thru elimination and my naturopath.

I am taking lots of supplimenets from my naturopath to repair my gut and hopefully in time I should be able to tolerate more foods. Or so I am told!

mushroom Proficient

I already tried kefir but that was colored with beet juice, which is an intolerance. I finished it up even after I found out beets were a problem. Maybe that's why my muscles feel worse today.

I have always tended to avoid beets for no particular reason other than that here they are generally pickled. So I roasted some along with some other roasted vegetables I know are safe for me, and had a pretty violent reaction to them. You are the only other person I know of who reacts to beets :unsure::blink:

jackay Enthusiast

How was you tested for other intolerances? Was is a blood test thru your doctor?

I have multiple intolerances although this was thru elimination and my naturopath.

I am taking lots of supplimenets from my naturopath to repair my gut and hopefully in time I should be able to tolerate more foods. Or so I am told!

My blood test was through my doctor who is an osteopath. The test was for intolerances, not allergies. My symptoms are insomnia, muscle pain, headaches, anxiety and diarrhea. I do think it is only gluten that caused the insomnia and diarrhea but other intolerances causing headaches and muscle pain. I'm still trying to figure out all the other intolerances since the muscle pain changes daily in severity. Right now I have the headaches under control.

Back when I was seeing a naturopath, she kept insisting that I could eat anything as long as I took supplements to balance things out. I just kept getting sicker and sicker. I am having better luck with my osteopath.

Lisa79 Enthusiast

Thanks for the info, I might check out an osteopath, I am happy with the Naturopath although like you mentioned taking suppliments is not a way of life forever, my bank account cant handle that :)

Has your osteopath advised that you will improve or its a lifelong thing to avoid those foods?

Thanks :)

Lisa

jackay Enthusiast

Thanks for the info, I might check out an osteopath, I am happy with the Naturopath although like you mentioned taking suppliments is not a way of life forever, my bank account cant handle that :)

Has your osteopath advised that you will improve or its a lifelong thing to avoid those foods?

Thanks :)

Lisa

My oseopath feels that I should be able to bring back all or most of the foods I tested sensitive to except for the gluten. That is the only definite one that I have to avoid forever.

My osteopath also has me try a lot of supplements. Unfortunately, I have had extreme reactions to any herbal ones that I've tried, mostly urinary pain and frequency. Right now I supplement with a mutlivitamin, Vitamin D3, Magnesium, Vitamin B12, calcium, melatonin, L-Theanine and probiotics. He feels I don't need the mutivitamin now but I am still taking it since I am an avoiding quite a few fruits and vegetables because of intolerances.

  • 2 weeks later...
sannep77 Newbie

I just got back my blood test results for additional food intolerances. I tested intolerant to many, many foods. I am suppose to avoid them and be on a four day rotation diet. I can see avoiding all foods that I tested extremely and moderately intolerant to. However, I am wondering if it is necessary to avoid everything that I am mildly intolerant to.

I know a lot of people say that these blood tests aren't that accurate. I question that too since I had them done 18 months ago and gluten and gliadin didn't show up at that time. This time, there was no reaction to gliadin but a mild reaction to gluten. I tested positive to gliadin six months ago with a saliva test. Since I have eliminated gluten, would that cause the test result to be negative at this time?

No matter how I test for gluten, I know I have to avoid it. I am making progress in healing. My diarrhea and anxiety are gone and I am finally sleeping.

As my stomach continues to heal from avoiding gluten, will I be able to tolerate other foods without first giving them up?

Hello, I realize you posted this in december.lol But I am new here and wanted to respond. I was just diagnosed with Celiac's disease and I also did the food intolerance testing. I used Lame Advertisement. From what I have learned so far...after first finding out about celiac most people have a very damaged small intestine...which causes us to have a thing called leaky gut syndrome. This is what causes the multiple food intolerance's. However, once your intestines heal, most of them probably go away! Along with the lactose intolerance, but some people just can't digest lactose, period. I have around 96 food intolerances on top of not being able to have gluten. My test showed no reaction to gluten, but a mild reaction to gliadin. That confused me at first, but then realized the test they did was not a celiac test...so it had nothing to do with my celiac disease. I trust the test because even after being gluten free/dairy free for 3 months I still have bad stomach issues, and this is because of these other food intolerances. They suck, but if eliminating them is what it takes to finally get better, then its worth it!

What were some of yours? Just curious.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748

    volivier
    Newest Member
    volivier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @tiffanygosci, Hello.  I apologize for your thread being hijacked.   I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain.  My cycle returned early after I had my son, and I became pregnant again with all my symptoms worsening.  Unfortunately, I lost that baby.  In hindsight, I recognized that I was suffering so much from Thiamine deficiency and other nutritional deficiencies that I was not able to carry it.   Celiac Disease affects the absorption of nutrients from our food.  There's eight B vitamins that must be replenished every day.  Thiamine Vitamin B1 becomes depleted first because it cannot be stored very long, less than two weeks.  Other B vitamins can be stored for two months or so.  But Thiamine can get low enough to produce symptoms in as little as three days.  As the thiamine level gets lower, symptoms worsen.  Early symptoms like fatigue and anxiety are often attributed to life situations, and so frequently go unrecognized by medical professionals who "have a pill for that".   I used to get severe migraines and vomiting after gluten consumption.  Thiamine and the other B vitamins are needed to turn carbohydrates, fats and proteins into fuel for our bodies.  With a large influx of carbohydrates from gluten containing foods, the demand for Thiamine increases greatly.  Available thiamine can be depleted quickly, resulting in suddenly worsening symptoms.  Emotional stress or trauma, physical activity (athletes and laborers) and physiological stresses like pregnancy or injury (even surgery or infection) increase the need for Thiamine and can precipitate a thiamine insufficiency. Pregnancy requires more thiamine, not just for the mother, but for the child as well.  The mother's Thiamine stores are often depleted trying to meet the higher demand of a growing fetus.  Thiamine insufficiency can affect babies in utero and after birth (autism, ADHD).  Having babies close together doesn't allow time for the mother to replenish thiamine stores sufficiently.   Thiamine insufficiency can cause migraines, pins and needles (paresthesia), and gastrointestinal Beriberi (gas, bloating, diarrhea or constipation, back pain).   Thiamine deficiency can cause blurry vision, difficulty focusing, and affect the eyes in other ways.  Thiamine deficiency can damage the optic nerves.  I have permanent vision problems.  High histamine levels can make your brain feel like it's on fire or swelling inside your cranium.  High histamine levels can affect behavior and mood.  Histamine is released by Mast Cells as part of the immune system response to gluten.  Mast Cells need Thiamine to regulate histamine release.  Mast Cells without sufficient thiamine release histamine at the slightest provocation.  This shows up as sensitivities to foods, smelly chemicals, plants, and dust mites.  Thiamine and the other B vitamins are needed to lower histamine levels.  Vitamin D is needed to calm the immune system and to regulate our hormones.  Menstrual irregularities can be caused by low Vitamin D.   Celiac Disease is a disease if Malabsorption of Nutrients.  We must take great care to eat a nutritionally dense diet.  Our bodies cannot make vitamins.  We must get them from what we eat.  Supplementation with essential vitamins and minerals is warranted while we are healing and to ensure we don't become deficient over time.  Our bodies will not function properly without essential vitamins and minerals.  Doctors have swept their importance under the rug in favor of a pill that covers the symptoms but doesn't resolve the underlying issue of malnutrition. Do talk to your doctor and dietician about checking for nutritional deficiencies.  Most blood tests for the eight B vitamins do not reflect how much is available or stored inside cells.  Blood tests reflect how much is circulating in the blood stream, the transportation system.  Blood levels can be "normal" while a deficiency exists inside cells where the vitamins are actually used.  The best way to see if you're low in B vitamins is to take a B Complex, and additional Thiamine and look for improvement.   Most vitamin supplements contain Thiamine Mononitrate, which is not easily absorbed nor utilized by the body.  Only thirty percent of thiamine mononitrate listed on the label is absorbed, less is actually utilized.  This is because thiamine mononitrate is shelf stable, it won't breakdown sitting on a shelf in the grocery store.  It's so hard to breakdown, our bodies don't absorb it and can't turn it into a form the body can use.  Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) which the body can utilize much better.  (Ask for an Erythrocyte Transketolace Activity test for Thiamine level.  Though not accurate, this test does better picking up on a thiamine deficiency than a blood test.) Are you keeping your babies on a gluten free diet?  This can prevent genetically susceptible children from developing Celiac Disease.   P. S. Interesting Reading  Thiamine deficiency in pregnancy and lactation: implications and present perspectives https://pmc.ncbi.nlm.nih.gov/articles/PMC10158844/ Descriptive spectrum of thiamine deficiency in pregnancy: A potentially preventable condition https://pubmed.ncbi.nlm.nih.gov/37458305/ B vitamins and their combination could reduce migraine headaches: A randomized double-blind controlled trial https://pmc.ncbi.nlm.nih.gov/articles/PMC9860208/
    • trents
      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.