Well Soy Is Out

[sandsurfgirl]

I've only been gluten free for 8 days and today I was feeling the best I've felt in a long time. I also cut soy and dairy because I know I have trouble digesting them and I want to heal.

But like a big dummy, I was sorely tempted tonight by my kids drinking chocolate soymilk at the neighbor's house. I had a few sips and then a couple more.

Now my stomache hurts so bad. The pain is awful!!! I am so mad at myself. I'm so new to this journey and to mess up this soon into it just makes me feel silly. I mean seriously, what was I thinking?

All I ate at their house was steak and salad. I read the ingredients on the garlic salt for the steak and I read the ingredients for the salad dressing and they were safe so I'm pretty sure it was the soymilk.

[chasbari]

I've only been gluten free for 8 days and today I was feeling the best I've felt in a long time. I also cut soy and dairy because I know I have trouble digesting them and I want to heal.

But like a big dummy, I was sorely tempted tonight by my kids drinking chocolate soymilk at the neighbor's house. I had a few sips and then a couple more.

Now my stomache hurts so bad. The pain is awful!!! I am so mad at myself. I'm so new to this journey and to mess up this soon into it just makes me feel silly. I mean seriously, what was I thinking?

All I ate at their house was steak and salad. I read the ingredients on the garlic salt for the steak and I read the ingredients for the salad dressing and they were safe so I'm pretty sure it was the soymilk.

My experience as well. When I went gluten-free last year I actually had a worse reaction to soy than to gluten. Haved stayed clear of it ever since with no interest in ever reintroducing it. You have to be as diligent at reading labels for it as well. Who'da thunk it would be in canned tuna fish...grrrr. It has never been granted GRAS (Generally Regarded as Safe) status as a food in the US from my understanding and yet here it is in everything.

CS

[Jestgar]

Sorry for this

Some people find they can tolerate soy lecithin, which would make your life easier if it were true for you as well. Might be worth testing it out.

[ravenwoodglass]

It is wise to drop soy for now but..... You are new to the diet. What did your friend do to prevent CC while cooking for you? If they eat gluten at the house precautions need to be taken. You could have been glutened by crumbs that were in the butter or on a counter, a cutting board that had had gluten ingredients cut on it, a colander that was used to rinse the salad veggies that is also used for pasta, a non-stick pan that had been used for gluten food and has scratches, A wooden spoon with gluten residue etc. It is very hard for us to eat food prepared in others homes. Do go ahead and drop soy for now but your reaction may not have been from that.

[sandsurfgirl]

It is wise to drop soy for now but..... You are new to the diet. What did your friend do to prevent CC while cooking for you? If they eat gluten at the house precautions need to be taken. You could have been glutened by crumbs that were in the butter or on a counter, a cutting board that had had gluten ingredients cut on it, a colander that was used to rinse the salad veggies that is also used for pasta, a non-stick pan that had been used for gluten food and has scratches, A wooden spoon with gluten residue etc. It is very hard for us to eat food prepared in others homes. Do go ahead and drop soy for now but your reaction may not have been from that.

I was wondering about that stuff too. I've been eating things with soy lecithin and they haven't bothered me at all, so hopefully it's just the actual soy. I think soymilk, and pretty much all milk is just hard to digest in general so I will be more careful and avoid all of it for now.

Funny thing, I'm generally lactose intolerant but I ate some things that later I realized had dairy components like casein an other types of additives and no reaction. That might be a good sign! I just need something milky and creamy in my tea and breakfast cereals. Rice milk is a sad substitute.

[mushroom]

I was wondering about that stuff too. I've been eating things with soy lecithin and they haven't bothered me at all, so hopefully it's just the actual soy. I think soymilk, and pretty much all milk is just hard to digest in general so I will be more careful and avoid all of it for now.

Funny thing, I'm generally lactose intolerant but I ate some things that later I realized had dairy components like casein an other types of additives and no reaction. That might be a good sign! I just need something milky and creamy in my tea and breakfast cereals. Rice milk is a sad substitute.

Have you tested yourself on goat's milk? Lactaid milk??

[sandsurfgirl]

Have you tested yourself on goat's milk? Lactaid milk??

A long time ago Lactaid didn't do it for me, but I will see in the future if my lactose intolerance was due to undiagnosed celiac. I'm really praying for that. I don't need a lot of dairy. If I could just have some cream or milk in my tea!!!

I've never tried goat's milk because the taste is well... goaty. LOL

[VioletBlue]

When I went gluten-free I pretty much cut out processed foods, so I've gotten very little soy in the last couple years. I've never cared for tofu or any other soy products so the only soy I was getting was soybean oil and soy lecithin in gluten-free things and of course in chocolate chips and bars.

Then I started having serious allergic reactions a few weeks ago to products with soy lecithin in it. The symptoms are less alarming with soybean oil, but soy lecithin is definitely out along with all other soy now.

The so called experts claim that soybean oil and soy lecithin can't cause allergic reactions because they don't contain enough of the soy proteins that set off soy allergies. Yeah, well, not in my experience.

I was wondering about that stuff too. I've been eating things with soy lecithin and they haven't bothered me at all, so hopefully it's just the actual soy. I think soymilk, and pretty much all milk is just hard to digest in general so I will be more careful and avoid all of it for now.

Funny thing, I'm generally lactose intolerant but I ate some things that later I realized had dairy components like casein an other types of additives and no reaction. That might be a good sign! I just need something milky and creamy in my tea and breakfast cereals. Rice milk is a sad substitute.

[jackay]

This past summer I tested positive to soy protein through a saliva test. Last month I tested negative to soy through a blood test. Yesterday I ate a can of tuna which contained soybean oil. I tested negative to tuna with a blood test. I noticed gas a couple hours later so wonder if the soy is still bothering me. Or is some gas normal?

My doctor said I shouldn't be bothered by either soybean oil or soy lecethin because they don't contain soy protein. I don't trust everything he says. Maybe I have outgrown the soy intolerance. Guess only time will tell.

[psawyer]

Or is some gas normal?

It is quite normal for all humans, whether celiac or not, to produce some gas as a result of the incomplete digestion of some complex carbohydrates. Certain foods are noted for producing larger amounts (think baked beans). But if you are reacting to fish in oil, that is likely a different issue.

[nmlove]

I just need something milky and creamy in my tea and breakfast cereals. Rice milk is a sad substitute.

Have you tried other alternative milks like almond, hemp?

The so called experts claim that soybean oil and soy lecithin can't cause allergic reactions because they don't contain enough of the soy proteins that set off soy allergies. Yeah, well, not in my experience.

I see this issue in my breastfed daughter. I kept reading how the oil and soy lecithin were ok but my daughter kept proving they were not! It's a pain reading labels for soy because it's not always bolded or in the "contains ..." statement if it's just the oil or lecithin. Plus, it's in everything! I'm still finding stuff that I somehow missed. Like in my cooking canola spray (I hardly ever use it). It's my least favorite of all (between dairy, soy and gluten).

[jacnit]

don't feel bad about messing up so soon:) i've been gluten-free (seriously trying anyway) for about 4 months..last weekend i went out for sushi on Friday night and helped myself to 5 pieces complete w/soy sauce oh and had two or three bites of my husbands udon noodles..didn't sleep due to horrific stomach cramps and guess what? went out the next night to the same place and did it all over again even though i KNEW better..i just wanted it soooo bad..was sick for three days...it's hard no doubt about it but i seriously think i finally learned my lesson.

[jnclelland]

Like in my cooking canola spray (I hardly ever use it).

The only cooking spray I've found without soy lecithin is Pam for Grilling. But it's gluten/dairy/soy-free (knock on wood that it stays that way!) and works fine for an all-purpose cooking spray.

Jeanne

[T.H.]

Oh, related to the soy lecithin! my GI doc was just telling me about that, warning me to stay away from it. He was saying that he's noticed most of his celiac patients and others with auto-immune issues are more sensitive to genetically modified foods, and tend to develop food allergies more readily when they consume them. And on top of that, he was saying that soy lecithin is almost always genetically modified.

I wonder if that's one of the reasons your little one reacts so much, ya know?

I see this issue in my breastfed daughter. I kept reading how the oil and soy lecithin were ok but my daughter kept proving they were not! It's a pain reading labels for soy because it's not always bolded or in the "contains ..." statement if it's just the oil or lecithin. Plus, it's in everything! I'm still finding stuff that I somehow missed. Like in my cooking canola spray (I hardly ever use it). It's my least favorite of all (between dairy, soy and gluten).

[VioletBlue]

I was reading up on soy lecithin and found that it is literally the waste product left over from making oil out of soybeans. It supposedly will carry any contaminates or pesticides from the bean with it. I can't imagine how it wouldn't contain a fair amount of protein given the way it's processed.

It's a safe bet that about 99% of soy in the market, unless it specifically states it's organic is GMO soy. The same is true with corn and most everything else in the world these days. It's downright scary what's been done to our food supply in the last twenty years by Monsanto.

Oh, related to the soy lecithin! my GI doc was just telling me about that, warning me to stay away from it. He was saying that he's noticed most of his celiac patients and others with auto-immune issues are more sensitive to genetically modified foods, and tend to develop food allergies more readily when they consume them. And on top of that, he was saying that soy lecithin is almost always genetically modified.

I wonder if that's one of the reasons your little one reacts so much, ya know?

[runningcrazy]

I was reading up on soy lecithin and found that it is literally the waste product left over from making oil out of soybeans. It supposedly will carry any contaminates or pesticides from the bean with it. I can't imagine how it wouldn't contain a fair amount of protein given the way it's processed.

It's a safe bet that about 99% of soy in the market, unless it specifically states it's organic is GMO soy. The same is true with corn and most everything else in the world these days. It's downright scary what's been done to our food supply in the last twenty years by Monsanto.

I despise Monsanto! Grrrrr...

[AKcollegestudent]

I almost react worse to soy than I do gluten, despite the fact that gluten affects me more in the long run. I am lucky--in very small amounts, I can handle soy lecithin. But anything else, including soybean oil? Migraine, fuzzy head, and all that fun stuff.

[lvanderb]

When I read this, I was thinking... uh oh... soy sauce... it probably has wheat in it.

My younger daughter was getting really bad nose bleeds and they're really much better now that we're all gluten free, but if she has soy sauce with her rice in a restaurant - I just wait and 2 or 3 days later she gets a nose bleed. I guess we have to find a nice portable size of gluten free soy sauce to take to Swiss Chalet.

don't feel bad about messing up so soon:) i've been gluten-free (seriously trying anyway) for about 4 months..last weekend i went out for sushi on Friday night and helped myself to 5 pieces complete w/soy sauce oh and had two or three bites of my husbands udon noodles..didn't sleep due to horrific stomach cramps and guess what? went out the next night to the same place and did it all over again even though i KNEW better..i just wanted it soooo bad..was sick for three days...it's hard no doubt about it but i seriously think i finally learned my lesson.