Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get More Strict?


Roda

Recommended Posts

Roda Rising Star

Well I finaly got in today for the hida scan. I have my report, but have not talked to my doctor yet. Here it is:

FINDINGS: After the administration of 6.48 mCi of Tc 99 m Choletec multiple views of the abdomen were obtained.

The liver, common bile duct, gallbladder and small bowel are demonstrated in a timely fashion. There does appear to be a small amount of reflux into the stomach after the CCK injection. Time activity curve was created after injection of 1.66 mcg of Kinevac. Gallbladder ejection fraction was somewhat suboptimal at 48%, but still above the 35% threshold required for surgical intervention.

IMPRESSION:

1. MILD REFLUX INTO THE STOMACH; OTHERWISE UNREMARKABLE HIDA SCAN WITH EF OF AROUND 48%.

I have still been having symptoms, heartburn is reduced but the belching and stomach bloating is still very bothersome and taxing. I am still getting the pinching/pulling sensation just right to the epigastric region. I have no idea what the gi doc will say about this. I don't think they will recommend anything surgical. The thing that interested me was the reflux back into the stomach. Has anyone had this? From what little I could find is that bile and duodenal contents reflux back into the stomach causing symptoms. I am wondering what kind of non surgical options there are. More than likely the gallbladder function will worsen over time. At least everyone else will know I was not imagining things. I don't present "typical" with things and the fact that I am not in excruciating pain threw everyone off. It is just a nagging pinching sensation that happens after I eat. I've had it since supper tonight and it is still there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scissorhappygirl Newbie

CC-stamps, envelopes, anything that sticks anything to anything, shared toothpaste tubes, and I'm a hairdresser and most professional products have hydrolyzed wheat protein, so be sure to check, even your hairspray and gel. Many surgical gloves have powder that contains wheat.Floaties for the pool have wheat inside for shipping purposes, and when you blow those up, watch out. Shower liners, anything plastic that gets shipped. Ceramic dishes that are losing the glaze. I would get a seperate microwave. My troops have a little storage cabinet for all of their gluten goods and I keep their microwave and toaster on the top of it. I keep it across the room from the kitchen.

Acid reflux- When you get glutened, it causes your small intestine to swell, which pushes the contents of your stomach up into the esophagus, which in turn causes your stomach to spasm and your esophagus to burn. It takes a while for everything to heal, inclyding your tummy. You just have to be patient. I ended up with 'severe esophagitis' which is when I was diagnosed. I took Aciphex(still do) and it took about six months after being gluten-free for the pain and nausea to subside. I was told to never drink again, and I eat small meals. You might be getting sick after you eat because your meals are too large and it's stretching out your stomach and pushing up a little acid. You need just enough food in there to keep the stomach acid busy but don't just eat one big meal. I sort of graze all day. You'll stay thin this way, too! Hope this helps.

Roda Rising Star

All great ideas. I don't lick envelopes. The shared toothpaste tube is one I had not considered. Don't have pool floaties, but do use powdered gloves at work. However, I am constantly washing my hands because of infection control. I'm at a point that I feel that I have managed the loose ends up with the possible cross contamination issue. Of course there is always room for improvement all the time. I talked to the nurse from the gi's office and she told me that the doctor said my hida scan was normal. Well, I said to her, "could it still be the gallbladder causing symptoms?" She said possibley, since the function was not great, but not bad enough to do anything about. He wants me to have an egd done and I am scheduled for April 6th. I have noticed over the last couple of days that fats (even good fats) seem to trigger my symptoms. I don't eat alot of fried foods, but do like nuts, dairy and olive oil in salad dressing. I guess if I eliminate some more things, I can look at the bright side, and I may loose weight. However I refuse to eat salad without dressing and I hate fat free. This is going to suck until April and then I may still have no more answers than I do now.

twe0708 Community Regular

CC-stamps, envelopes, anything that sticks anything to anything, shared toothpaste tubes, and I'm a hairdresser and most professional products have hydrolyzed wheat protein, so be sure to check, even your hairspray and gel. Many surgical gloves have powder that contains wheat.Floaties for the pool have wheat inside for shipping purposes, and when you blow those up, watch out. Shower liners, anything plastic that gets shipped. Ceramic dishes that are losing the glaze. I would get a seperate microwave. My troops have a little storage cabinet for all of their gluten goods and I keep their microwave and toaster on the top of it. I keep it across the room from the kitchen.

Acid reflux- When you get glutened, it causes your small intestine to swell, which pushes the contents of your stomach up into the esophagus, which in turn causes your stomach to spasm and your esophagus to burn. It takes a while for everything to heal, inclyding your tummy. You just have to be patient. I ended up with 'severe esophagitis' which is when I was diagnosed. I took Aciphex(still do) and it took about six months after being gluten-free for the pain and nausea to subside. I was told to never drink again, and I eat small meals. You might be getting sick after you eat because your meals are too large and it's stretching out your stomach and pushing up a little acid. You need just enough food in there to keep the stomach acid busy but don't just eat one big meal. I sort of graze all day. You'll stay thin this way, too! Hope this helps.

Also, be careful what you eat. I have rice, bean and tomatoes and cheese almost everyday for lunch and do just fine, but I noticed if I had Winto Green Lifesaver after lunch for the breath I would get big time acid reflux.

kareng Grand Master

I have noticed over the last couple of days that fats (even good fats) seem to trigger my symptoms. I don't eat alot of fried foods, but do like nuts, dairy and olive oil in salad dressing. I guess if I eliminate some more things, I can look at the bright side, and I may loose weight. However I refuse to eat salad without dressing and I hate fat free. This is going to suck until April and then I may still have no more answers than I do now.

If you can eat any of these things, they are good instead of salad dressing - lemon or lime juice, salsa, cut up an orange into little bits so you get some in every bite, yogurt, anything juicy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.