Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Florida?


simplyconfused

Recommended Posts

simplyconfused Newbie

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K.Darling Rookie

hi, i live in florida and im 20 and very confused as well? have you been diagnosed?

twe0708 Community Regular

I live in Tampa and was diagnosed about 6 months ago.

laurelfla Enthusiast

I was in Florida but have moved. There is a great support group in Orlando! Look them up and try to go to a meeting, if you can. :)

  • 1 month later...
taylor- Rookie

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

  • 1 month later...
RideAllWays Enthusiast

Sarasota has an amazing gluten free bakery!

GF Traveling Dude Newbie

I'm moving to Florida in a couple years; seeking friends in the meantime. I'm 30 and travel there often.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 months later...
glutenfreemamax2 Enthusiast

HI! I"m 28 in the Daytona Beach area. Have a 3 year old, and a 5 year old. Waiting on test results to come back next week. Have been gluten-free for 2 weeks now. Was also on Dr. Phil in Sept, and if it wasn't for all his show has done for me, I would have NEVER known!

I can't find any support groups in the area and thinking about starting one.

  • 2 months later...
jparsick84 Rookie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

cO-ol Explorer

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

I'm from the Tampa Bay area too! Still live here as well. :)

  • 1 month later...
laurelfla Enthusiast

jparsick84, you don't have to be that paranoid in my opinion -- of course, we all have differing levels of sensitivity and you will hear of people that do not worry about such things and people that would never dream of kissing someone who had had a beer. I make my husband rinse his mouth out after beer, and brush his teeth after eating gluten. I haven't ever gotten sick from kissing him. :)

  • 4 weeks later...
scuzy Rookie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

I can vouch for the kissing thing, IT SUCKS!!!!!!!!!!!!, I guess everyone is different though, but one night I kissed a guy after he had eaten pizza a few hours earlier and I still got glutened... I read in a book somewhere that if you are dating a not gluten free person make sure they brush there teeth before you ever kiss them to avoid the horrible consequences.

  • 1 month later...
NolesChick Newbie

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

  • 3 weeks later...
taylor- Rookie

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

Hey Christy! I live in Tallahassee too! Welcome :)

  • 8 months later...
lsteward68 Newbie

Hi, My name is Laura I live in Cocoa Fl. My Son who is 14 almost died of type 1 Diabetes, I went to the library to get info on Diabetes and a cook book, in the same area I found a book for ADHD & Autism cookbook going gluten free and casein free which my second son is very hyper with low concentration? So I picked up that book too, to my realization all the symtoms that were described in the book was what I myself was feeling... So being un-employed with no insurance I went on an internet scout of my own and found some very interesting and scary facts about type 1 Diabetes and Celiac Disease. After a day of information overload, I went to my cabinet and filled three boxes full of food and frozen foods that I imediately gave away went to the store to see what I and my family can eat. I bought bread flour and all the other things that I could imediately eat and fix for dinner. From that day on which has been two weeks now, I can get out of bed without feeling bad and I have eaten food that does not make my stomach hurt, and I do remember things now. Not sure if I am Coeliac or not but the whole Me is much better. I told my ex to take my oldest son to the Dr. to get the test ( he has insurance for him ) hopefully he will, have not heard or not. Thanks for the vent session. If there is anyone out there with input or more info that will help feel free to let me know...

Mike Menkes Newbie

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

I have lived in Florida off and on since 1970. I have found gluten-free foods to be more accessible than ever.

Mike Menkes Newbie

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

IrishHeart Veteran

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

Just so you know, you are replying to a post that is old---(Dec. 2010) and the person may not see your reply.

  • 2 weeks later...
TravelnVal Newbie

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

IrishHeart Veteran

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

MarilynR mentioned it to me. PM her! :)

kareng Grand Master

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

Looks like several forum members will be there:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.