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Does It Ever Get Better

Maddiemo

By Maddiemo
in Coping with Celiac Disease

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Maddiemo Rookie
Maddiemo
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

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mommida Enthusiast
mommida
Posted

Forever.

gena Newbie
gena
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

You do have to stick with this diet forever but it does get better! You will start to see improvements in everything, even things you thought had nothing to do with your gluten allergy! Once you learn how to make the foods you like without gluten you wont really feel like your missing out at all and you will not care that you cant go back to gluten!

luvs2eat Collaborator
luvs2eat
Posted

AND as more people learn about us and our issues, new and better breads and things like that will come out and restaurants will "GET" it and we'll be able to do lots more stuff!

ciavyn Contributor
ciavyn
Posted

It does get better! Once you start feeling better, you will realize how much easier this is. I don't even want the junk food I used to eat before. I love feeling healthier, not having GI issues...I don't think I realized how much I enjoyed it until I got glutened! After three weeks of misery, I am finally back to feeling like me again. It's fantastic!

StacyA Enthusiast
StacyA
Posted

Yes, it does get better. If you've been sick a long time, it may take awhile to feel better - but it's worth it. Otherwise, if you eat gluten, you'll continue the damage.

Eating gluten-free is hard and it stinks - but intestinal damage and your body attacking itself is a really bad thing.

I wasn't sick for years and years. My celiac's was only triggered last summer. Every symptom I had back then is gone - except for some diarrhea - but I think it takes awhile for the GI system to even out. I had severe abdominal pain, fatigue (I was NOT running on all my pistons), low back pain, irritabililty, and very light periods (which means something was starting to go wrong with my reproductive system - which is not good). All those symptoms are gone now. Gluten-free works. Hang in there.

Mskedi Newbie
Mskedi
Posted

It's almost ridiculous how much better it gets. If I weren't experiencing it myself, I wouldn't believe it.

The diet is forever, but there's no way I'd go back. Things are less and less tempting all the time, too. I don't feel like I'm missing anything.

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VickiLynn Newbie
VickiLynn
Posted

It absolutely does get better! Do not give up or give in. After your body is completely healed and you are feeling like a different person you won't want to go back to all the foods that made you sick. I've been gluten free for 15 years. It took 6 years to figure it out. My diagnosis was what saved me from malnutrition. My brother was just diagnosed after only 4 weeks of symptoms. It is so much easier living gluten free in today's world, although not easy for the beginner. Try to keep a positive attitude and you will see that as each day goes by you get healthier and feel so much better. Hang in there!

kaki-clam Enthusiast
kaki-clam
Posted

as someone who has recently gone through the "hard part" I am finally here to give encouragement to someone who is where I was 5 months ago. This is the first time in five freaking months that I have actually felt like my old self again. I never thought i would get here. post after post of complaining and symptoms and help from everyone on this site helped me get to where i am today....so, even though i never, ever, in one million years, thought i would be saying this.....IT TRULY DOES GET BETTER!!!!!!!!!!!

Canadian Girl Apprentice
Canadian Girl
Posted

I've been gluten free for about a month, and it's getting way easier to deal with making gluten free stuff to eat. But lately I've been absolutely exhausted. I'll sleep in until 11 somedays, then get up and do what I need to do, then by 9 pm i'm just wiped. Sooo tired. I work shifts, and the nights shifts are a killer, I feel like I will fall asleep at any moment sometimes. There are still days when I feel a little bloated or maybe just too full.. sometimes i can't tell.. so how long until all the symptoms clear? like 5 months??? :s at least there's hope!

juppygirl Newbie
juppygirl
Posted

It does take time - 6 months for me but then I get cross contaminated accidentally and ill again. Realised how bad I must have been feeling most of the time and wonder how i got thru.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
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      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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      Is this celiac?

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    • Trish G
      Fiber Supplement

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    • trents
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      By trents · Posted

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