Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does It Ever Get Better

Maddiemo

By Maddiemo
in Coping with Celiac Disease

Recommended Posts

Maddiemo Rookie
Maddiemo
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Forever.

gena Newbie
gena
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

You do have to stick with this diet forever but it does get better! You will start to see improvements in everything, even things you thought had nothing to do with your gluten allergy! Once you learn how to make the foods you like without gluten you wont really feel like your missing out at all and you will not care that you cant go back to gluten!

luvs2eat Collaborator
luvs2eat
Posted

AND as more people learn about us and our issues, new and better breads and things like that will come out and restaurants will "GET" it and we'll be able to do lots more stuff!

ciavyn Contributor
ciavyn
Posted

It does get better! Once you start feeling better, you will realize how much easier this is. I don't even want the junk food I used to eat before. I love feeling healthier, not having GI issues...I don't think I realized how much I enjoyed it until I got glutened! After three weeks of misery, I am finally back to feeling like me again. It's fantastic!

StacyA Enthusiast
StacyA
Posted

Yes, it does get better. If you've been sick a long time, it may take awhile to feel better - but it's worth it. Otherwise, if you eat gluten, you'll continue the damage.

Eating gluten-free is hard and it stinks - but intestinal damage and your body attacking itself is a really bad thing.

I wasn't sick for years and years. My celiac's was only triggered last summer. Every symptom I had back then is gone - except for some diarrhea - but I think it takes awhile for the GI system to even out. I had severe abdominal pain, fatigue (I was NOT running on all my pistons), low back pain, irritabililty, and very light periods (which means something was starting to go wrong with my reproductive system - which is not good). All those symptoms are gone now. Gluten-free works. Hang in there.

Mskedi Newbie
Mskedi
Posted

It's almost ridiculous how much better it gets. If I weren't experiencing it myself, I wouldn't believe it.

The diet is forever, but there's no way I'd go back. Things are less and less tempting all the time, too. I don't feel like I'm missing anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VickiLynn Newbie
VickiLynn
Posted

It absolutely does get better! Do not give up or give in. After your body is completely healed and you are feeling like a different person you won't want to go back to all the foods that made you sick. I've been gluten free for 15 years. It took 6 years to figure it out. My diagnosis was what saved me from malnutrition. My brother was just diagnosed after only 4 weeks of symptoms. It is so much easier living gluten free in today's world, although not easy for the beginner. Try to keep a positive attitude and you will see that as each day goes by you get healthier and feel so much better. Hang in there!

kaki-clam Enthusiast
kaki-clam
Posted

as someone who has recently gone through the "hard part" I am finally here to give encouragement to someone who is where I was 5 months ago. This is the first time in five freaking months that I have actually felt like my old self again. I never thought i would get here. post after post of complaining and symptoms and help from everyone on this site helped me get to where i am today....so, even though i never, ever, in one million years, thought i would be saying this.....IT TRULY DOES GET BETTER!!!!!!!!!!!

Canadian Girl Apprentice
Canadian Girl
Posted

I've been gluten free for about a month, and it's getting way easier to deal with making gluten free stuff to eat. But lately I've been absolutely exhausted. I'll sleep in until 11 somedays, then get up and do what I need to do, then by 9 pm i'm just wiped. Sooo tired. I work shifts, and the nights shifts are a killer, I feel like I will fall asleep at any moment sometimes. There are still days when I feel a little bloated or maybe just too full.. sometimes i can't tell.. so how long until all the symptoms clear? like 5 months??? :s at least there's hope!

juppygirl Newbie
juppygirl
Posted

It does take time - 6 months for me but then I get cross contaminated accidentally and ill again. Realised how bad I must have been feeling most of the time and wonder how i got thru.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    2. cristiana
      - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

      Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,...
    3. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy. Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter...
    4. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    5. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient. The one test that was ordered...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,972
    • Most Online (within 30 mins)
      7,748
    NinaElaine
    Newest Member
    NinaElaine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Celiac support is hard to find

      By cristiana · Posted

      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Help understand results

      By trents · Posted

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.