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Does It Ever Get Better

Maddiemo

By Maddiemo
in Coping with Celiac Disease

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Maddiemo Rookie
Maddiemo
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

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mommida Enthusiast
mommida
Posted

Forever.

gena Newbie
gena
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

You do have to stick with this diet forever but it does get better! You will start to see improvements in everything, even things you thought had nothing to do with your gluten allergy! Once you learn how to make the foods you like without gluten you wont really feel like your missing out at all and you will not care that you cant go back to gluten!

luvs2eat Collaborator
luvs2eat
Posted

AND as more people learn about us and our issues, new and better breads and things like that will come out and restaurants will "GET" it and we'll be able to do lots more stuff!

ciavyn Contributor
ciavyn
Posted

It does get better! Once you start feeling better, you will realize how much easier this is. I don't even want the junk food I used to eat before. I love feeling healthier, not having GI issues...I don't think I realized how much I enjoyed it until I got glutened! After three weeks of misery, I am finally back to feeling like me again. It's fantastic!

StacyA Enthusiast
StacyA
Posted

Yes, it does get better. If you've been sick a long time, it may take awhile to feel better - but it's worth it. Otherwise, if you eat gluten, you'll continue the damage.

Eating gluten-free is hard and it stinks - but intestinal damage and your body attacking itself is a really bad thing.

I wasn't sick for years and years. My celiac's was only triggered last summer. Every symptom I had back then is gone - except for some diarrhea - but I think it takes awhile for the GI system to even out. I had severe abdominal pain, fatigue (I was NOT running on all my pistons), low back pain, irritabililty, and very light periods (which means something was starting to go wrong with my reproductive system - which is not good). All those symptoms are gone now. Gluten-free works. Hang in there.

Mskedi Newbie
Mskedi
Posted

It's almost ridiculous how much better it gets. If I weren't experiencing it myself, I wouldn't believe it.

The diet is forever, but there's no way I'd go back. Things are less and less tempting all the time, too. I don't feel like I'm missing anything.

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VickiLynn Newbie
VickiLynn
Posted

It absolutely does get better! Do not give up or give in. After your body is completely healed and you are feeling like a different person you won't want to go back to all the foods that made you sick. I've been gluten free for 15 years. It took 6 years to figure it out. My diagnosis was what saved me from malnutrition. My brother was just diagnosed after only 4 weeks of symptoms. It is so much easier living gluten free in today's world, although not easy for the beginner. Try to keep a positive attitude and you will see that as each day goes by you get healthier and feel so much better. Hang in there!

kaki-clam Enthusiast
kaki-clam
Posted

as someone who has recently gone through the "hard part" I am finally here to give encouragement to someone who is where I was 5 months ago. This is the first time in five freaking months that I have actually felt like my old self again. I never thought i would get here. post after post of complaining and symptoms and help from everyone on this site helped me get to where i am today....so, even though i never, ever, in one million years, thought i would be saying this.....IT TRULY DOES GET BETTER!!!!!!!!!!!

Canadian Girl Apprentice
Canadian Girl
Posted

I've been gluten free for about a month, and it's getting way easier to deal with making gluten free stuff to eat. But lately I've been absolutely exhausted. I'll sleep in until 11 somedays, then get up and do what I need to do, then by 9 pm i'm just wiped. Sooo tired. I work shifts, and the nights shifts are a killer, I feel like I will fall asleep at any moment sometimes. There are still days when I feel a little bloated or maybe just too full.. sometimes i can't tell.. so how long until all the symptoms clear? like 5 months??? :s at least there's hope!

juppygirl Newbie
juppygirl
Posted

It does take time - 6 months for me but then I get cross contaminated accidentally and ill again. Realised how bad I must have been feeling most of the time and wonder how i got thru.

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      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
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    • trents
      Positive biopsy

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      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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