Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does It Ever Get Better

Maddiemo

By Maddiemo
in Coping with Celiac Disease

Recommended Posts

Maddiemo Rookie
Maddiemo
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Forever.

gena Newbie
gena
Posted

Does being gluten intolerance ever get better? If you stop eating any gluten for a long time can you get back to it one day or is this for ever?

You do have to stick with this diet forever but it does get better! You will start to see improvements in everything, even things you thought had nothing to do with your gluten allergy! Once you learn how to make the foods you like without gluten you wont really feel like your missing out at all and you will not care that you cant go back to gluten!

luvs2eat Collaborator
luvs2eat
Posted

AND as more people learn about us and our issues, new and better breads and things like that will come out and restaurants will "GET" it and we'll be able to do lots more stuff!

ciavyn Contributor
ciavyn
Posted

It does get better! Once you start feeling better, you will realize how much easier this is. I don't even want the junk food I used to eat before. I love feeling healthier, not having GI issues...I don't think I realized how much I enjoyed it until I got glutened! After three weeks of misery, I am finally back to feeling like me again. It's fantastic!

StacyA Enthusiast
StacyA
Posted

Yes, it does get better. If you've been sick a long time, it may take awhile to feel better - but it's worth it. Otherwise, if you eat gluten, you'll continue the damage.

Eating gluten-free is hard and it stinks - but intestinal damage and your body attacking itself is a really bad thing.

I wasn't sick for years and years. My celiac's was only triggered last summer. Every symptom I had back then is gone - except for some diarrhea - but I think it takes awhile for the GI system to even out. I had severe abdominal pain, fatigue (I was NOT running on all my pistons), low back pain, irritabililty, and very light periods (which means something was starting to go wrong with my reproductive system - which is not good). All those symptoms are gone now. Gluten-free works. Hang in there.

Mskedi Newbie
Mskedi
Posted

It's almost ridiculous how much better it gets. If I weren't experiencing it myself, I wouldn't believe it.

The diet is forever, but there's no way I'd go back. Things are less and less tempting all the time, too. I don't feel like I'm missing anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VickiLynn Newbie
VickiLynn
Posted

It absolutely does get better! Do not give up or give in. After your body is completely healed and you are feeling like a different person you won't want to go back to all the foods that made you sick. I've been gluten free for 15 years. It took 6 years to figure it out. My diagnosis was what saved me from malnutrition. My brother was just diagnosed after only 4 weeks of symptoms. It is so much easier living gluten free in today's world, although not easy for the beginner. Try to keep a positive attitude and you will see that as each day goes by you get healthier and feel so much better. Hang in there!

kaki-clam Enthusiast
kaki-clam
Posted

as someone who has recently gone through the "hard part" I am finally here to give encouragement to someone who is where I was 5 months ago. This is the first time in five freaking months that I have actually felt like my old self again. I never thought i would get here. post after post of complaining and symptoms and help from everyone on this site helped me get to where i am today....so, even though i never, ever, in one million years, thought i would be saying this.....IT TRULY DOES GET BETTER!!!!!!!!!!!

Canadian Girl Apprentice
Canadian Girl
Posted

I've been gluten free for about a month, and it's getting way easier to deal with making gluten free stuff to eat. But lately I've been absolutely exhausted. I'll sleep in until 11 somedays, then get up and do what I need to do, then by 9 pm i'm just wiped. Sooo tired. I work shifts, and the nights shifts are a killer, I feel like I will fall asleep at any moment sometimes. There are still days when I feel a little bloated or maybe just too full.. sometimes i can't tell.. so how long until all the symptoms clear? like 5 months??? :s at least there's hope!

juppygirl Newbie
juppygirl
Posted

It does take time - 6 months for me but then I get cross contaminated accidentally and ill again. Realised how bad I must have been feeling most of the time and wonder how i got thru.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Insomnia help

      Hi @knitty kitty Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially w...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      43

      My journey is it gluten or fiber?

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    3. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida...
    4. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    5. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748
    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.