Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Desperate For Help.

hazeleyez682

Recommended Posts

hazeleyez682 Apprentice
hazeleyez682
Posted

Hello all. I need some advice as i am kind of freaking out a bit. In october i went to my PCP with complaints of constant soft stool or diarreah. I had also been getting sick alot and look horribly unhealthy. After tests she advised i go gluten-free. Which of course i did. Since then my symtoms have not gotten much better and i have lost 30lbs over a little less than a year! I'm seeing the doc again nexxt Monday, but maybe you guys can give insight and ease my mind. Thanks all

gluten-free/DF since October 09

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hello all. I need some advice as i am kind of freaking out a bit. In october i went to my PCP with complaints of constant soft stool or diarreah. I had also been getting sick alot and look horribly unhealthy. After tests she advised i go gluten-free. Which of course i did. Since then my symtoms have not gotten much better and i have lost 30lbs over a little less than a year! I'm seeing the doc again nexxt Monday, but maybe you guys can give insight and ease my mind. Thanks all

gluten-free/DF since October 09

Can you tell us what kind of tests you had?

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

Can you tell us what kind of tests you had?

the only test she gave me was the blood test.

Wolicki Enthusiast
Wolicki
Posted

the only test she gave me was the blood test.

Based on the limited info you provided, my guess would be you have some secondary food intolerances. ARe you keeping a food diary? Also, are you taking enzymes and probiotics? These seem to aid in healing.

Most Celiacs have secondary food intolerances, and thankfully, most of them go away after a period of keeping your diet free of those foods.

Can you describe your symptoms in more detail?

tarnalberry Community Regular
tarnalberry
Posted

I would also ask if you've checked for hidden sources of gluten and/or cross contamination - soy sauce, salad dressings, "rice" cereals with barley malt, shared toasters or cutting boards, toothpaste, etc.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

I have secondary food intolorances to milk and dairy an eggs seem to be an issue as well as they give me a terrible stomache ache! I take a probiotic ( acidopolus) calcium, vit c, Vit E, grapeseed extract, and a daily multi. All gluten-free DF lables.

Toothpaste i always use crest? Is that a gluten-free lable?? Which is best?

CC- I threw out my toaster , cutting board, strainers, and any cracked damaged pans. I always line pans with foil, or wax paper to prevent CC. My boyfiend who lives with me agreed to keeping a gluten-free kitchen and i worry little about him bringing in things. But in case i designante a shelf for him as well as dishtowels and sponges for washing any non gluten-free dishes. I feel like i covered so many bases, what could i be missing?

Oh nad cereals, Always Chex gluten-free brand and Puffins gluten-free rice cereal all gluten-free right on lable, use silk soy milk.

Reba32 Rookie
Reba32
Posted

I believe all toothpastes in North America are gluten free.

Sounds like you're pretty thorough and that your boyfriend is very supportive, lucky you ;)

If you are overly sensitive, you might want to consider checking the labels on your soaps, cosmetics, shampoos etc. And pet foods if you have pets. Some people think it's a bit overkill, but it's up to you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Oh nad cereals, Always Chex gluten-free brand and Puffins gluten-free rice cereal all gluten-free right on lable, use silk soy milk.

I suggest you get rid of all the soy in your diet. There are non-soy milk alternatives available. Also, just because your vitamins are gluten free, doesn't mean they are safe for you. You could have additional intolerances besides gluten that are causing problems. If one of your vitamins has that item in it, then you would be dosing your self with an irritant. So taking a break from all your vitamins for 2 weeks might be good idea. That would probably be enough time to see if it made any difference. Multivitamins would be the most likely to cause a problem since they have so many ingredients.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

Thanks for the advice. I will give the vitamins a break. Out of curosity could i also be intolorant of corn. As a snack i often have Santatitas corn chips made by lays. Stated is gluten-free,DF,casine free?

Reba32 Rookie
Reba32
Posted

corn and soy are probably the other most common intolerances/allergies after wheat and dairy. I can't even smell corn from the other side of the room without feeling nauseous.

hazeleyez682 Apprentice
hazeleyez682
Posted
  • Author

corn and soy are probably the other most common intolerances/allergies after wheat and dairy. I can't even smell corn from the other side of the room without feeling nauseous.

ok, thanks im going to eliminate corn and soy. Lets see what happens. Thanks again.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,026
    • Most Online (within 30 mins)
      7,748
    thegoik
    Newest Member
    thegoik
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.