Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take For B12 Supplements To Work?


jackay

Recommended Posts

jackay Enthusiast

I finally got the results of nutrional analysis and found the only thing I am low on is Vitamin B12. My doctor was surprised and said it almost looked like they checked someone elses blood. I had my calcium, phosphorus and Vitamin D checked a month earlier by another doctor and those results matched closely so it was most likely my blood tested.

I ordered Vitamin B12 drops since I could not find any locally that don't have ingredients in that I can't tolerate. I am wondering how long it takes to notice changes once taking this supplement. Among other things, I suffer from insomnia and because of that a lack of energy. I'm hoping the B12 will help that. It would be wonderful to be able to go to bed and know I will sleep and to actually have some energy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I finally got the results of nutrional analysis and found the only thing I am low on is Vitamin B12. My doctor was surprised and said it almost looked like they checked someone elses blood. I had my calcium, phosphorus and Vitamin D checked a month earlier by another doctor and those results matched closely so it was most likely my blood tested.

I ordered Vitamin B12 drops since I could not find any locally that don't have ingredients in that I can't tolerate. I am wondering how long it takes to notice changes once taking this supplement. Among other things, I suffer from insomnia and because of that a lack of energy. I'm hoping the B12 will help that. It would be wonderful to be able to go to bed and know I will sleep and to actually have some energy.

One thing I learned with my bout of b12 deficiency is that you have to take a LOT of it. I took 8000 mcg nightly, just before going to bed, and it took about a month to get it back to normal levels. This was after taking 2000 mcg for 2 months with no results. You can't really OD on B12 because the extra just comes out in your urine.

Evangeline Explorer

Be sure to take the sublingual tablets, not the pills/liquid that is absorbed in the stomach. Most Celiacs don't have 'intrinsic factor' and therefore cannot absorb b12. Buy sublingual tablets.

jackay Enthusiast

Be sure to take the sublingual tablets, not the pills/liquid that is absorbed in the stomach. Most Celiacs don't have 'intrinsic factor' and therefore cannot absorb b12. Buy sublingual tablets.

I am starting out with sublingual liquid drops that I will hold in my mouth for absorption. I checked extensively for sublinqual tablets and they all have ingredients in that I shouldn't have. Most of them are sweetened and flavored, which I shouldn't have at this time. Right now I am fighting candida so am suppose to avoid all sweeteners. Hopefully once I get that resolved and get over some of my intolerances, I can handle sublingual tablets.

If the drops don't help, I'll switch to the "best for me" sublingual tablet.

Thanks for the advice!

Jackay

OptimisticMom42 Apprentice

I use the liquid. I started taking it because I was bone aching cold when everyone else was fine. It started working within a couple of days. It's nice to not have to wear long johns under my turtleneck under my sweater under my fleece jacket under my winter coat!

jackay Enthusiast

I use the liquid. I started taking it because I was bone aching cold when everyone else was fine. It started working within a couple of days. It's nice to not have to wear long johns under my turtleneck under my sweater under my fleece jacket under my winter coat!

OptimisticMom42,

You make me smile! Living in MN, I can definitely relate. I thought it was just me that gets so cold.

Jackay

sandsurfgirl Collaborator

I was looking for a sublingual B12 and one of them had 6000 iu in it. I was worried about that high of a dose so I asked the pharmacist about it. He said not that much of it gets absorbed, even sublingually, so the high dose ensures that you will get what you need. He said shots are the best for celiacs, but I haven't gotten that far with my doc yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

I was looking for a sublingual B12 and one of them had 6000 iu in it. I was worried about that high of a dose so I asked the pharmacist about it. He said not that much of it gets absorbed, even sublingually, so the high dose ensures that you will get what you need. He said shots are the best for celiacs, but I haven't gotten that far with my doc yet.

I'm sure my doctor will suggest shots if the drops don't work for me. He said to start taking them three times a day but didn't tell me how much to take at a time. I had many, many questions for him so didn't think to ask that one. I'll see what it says on the bottles. Most likely I'll have to call him once I get the drops.

I am absorbing all my other nutrients but do take 3400 IU D3 and 2200-2500 mg. calcium citrate daily. I feel those levels should be higher for the dosage I take. Time will tell if my absorption improves.

Does anyone know if insurance pay for B12 shots?

On another note, I ordered Kirkman Labs EnZymAid and Advanced Adult Multi's online Monday evening from Our Kids. They arrived in two days:) Am I ever impressed with that company! I was little disappointed when I opened the box as I thought it was my B12 that I ordered from another company.) The B12 is on it's way so hope to get it by the weekend.

I was impressed with the speedy delivery and that there was no shipping charge for orders over $40.

TrillumHunter Enthusiast

Insurance pays for my shots and it's dirt cheap.

bluebonnet Explorer

i just got my results today and i need to start b12 and d. maybe ... hoping ... fingers crossed after b levels go up that i will start getting sleep now! :) the step out doses needed sound scary though.

jackay Enthusiast

i just got my results today and i need to start b12 and d. maybe ... hoping ... fingers crossed after b levels go up that i will start getting sleep now! :) the step out doses needed sound scary though.

Boy, oh boy, am I looking forward to sleep, too. I hope this is my missing link. Every once in a while I get a pretty decent night's sleep and what a difference it makes. To sleep every night would be wonderful!!!!!

LizRam Newbie

I'm sure my doctor will suggest shots if the drops don't work for me. He said to start taking them three times a day but didn't tell me how much to take at a time. I had many, many questions for him so didn't think to ask that one. I'll see what it says on the bottles. Most likely I'll have to call him once I get the drops.

I am absorbing all my other nutrients but do take 3400 IU D3 and 2200-2500 mg. calcium citrate daily. I feel those levels should be higher for the dosage I take. Time will tell if my absorption improves.

Does anyone know if insurance pay for B12 shots?

On another note, I ordered Kirkman Labs EnZymAid and Advanced Adult Multi's online Monday evening from Our Kids. They arrived in two days:) Am I ever impressed with that company! I was little disappointed when I opened the box as I thought it was my B12 that I ordered from another company.) The B12 is on it's way so hope to get it by the weekend.

I was impressed with the speedy delivery and that there was no shipping charge for orders over $40.

Insurance pays for B12 shots. Might as well get the shots if insurance pays. My doctor recommended one shot for 14 days straight, then 1 shot every two weeks until I am down to 1 shot per month. Tomorrow is day 14 but I'm not feeling any different. I thought I was going to feel energetic; hope it's working. I'm also taking a multi-vitamin and just started on digestive enzymes (Digest by Enzymedica). I also take probiotics and Omega-3 which is also helpful.

jackay Enthusiast

Insurance pays for B12 shots. Might as well get the shots if insurance pays. My doctor recommended one shot for 14 days straight, then 1 shot every two weeks until I am down to 1 shot per month. Tomorrow is day 14 but I'm not feeling any different. I thought I was going to feel energetic; hope it's working. I'm also taking a multi-vitamin and just started on digestive enzymes (Digest by Enzymedica). I also take probiotics and Omega-3 which is also helpful.

How often does your doctor check your B12 level? Are you feeling more energetic?

I was hoping to get sleep once I started sublinqual B12. It has been only five days so I'm probably expecting too much too soon. Most nights I'm only getting 1-1/2 hours of sleep. Sleep seems to be getting worse instead of better.

Even though I'm not getting much sleep, I do feel a bit more energetic. Also, I have some color to my face. I have been so pale for so long. I thought it was from lack of sleep but since I'm still not sleeping much, it isn't that.

Let me know how the enzymedica digestive enzymes work. I started taking Kirkman EnZymAid yesterday. I took one two times. I got a headache that got worse as the day went on. This morning I didn't have a headache. I took one enzyme with breakfast. I got a headache again but it didn't get as bad as the one I had yesterday. I'm going to discontinue them for a while and then try again and see if the headache comes back. I know I'd benefit from a digestive enzyme so hope it is just coincidental that I got headaches.

  • 2 years later...
durxll Newbie

with b12 you have to have the right kind. There are three kinds. The kind that does little to no good, is cyanocobalimim. It is found in MOST supplements, and its also given by a lot of doctors in b12 shots. This form is synthetic and is basically useless in treating b12. Anyone with b12 defiency getting shots needs to make sure that the doctor is giving them hydroxocobalim, or even better methylcobalimim. One of the last 2 will help, the cyano kind wont. If he tells you there is no difference, punch him in the face, and change doctors. Doctors dont want you cured they want you treated, to make money off your suffering. Doctors are evil. If you know you have b12 defiency and the shots dont work, try buying sublingual methylcobalimim.

Mom-of-Two Contributor

I just started on Country Life coenzyme B complex, which uses dibencozide/methylcobalamin for the B12, 500mcg each capsule but directions say you can 1 or 2 a day.

I was curious if I should still add a sublingual B12 a few times a week. My B12 level was 357 which is well in "normal" range according to my primary dr who tested me but according to my celiac dr, is way lower than it should be!

frieze Community Regular

I just started on Country Life coenzyme B complex, which uses dibencozide/methylcobalamin for the B12, 500mcg each capsule but directions say you can 1 or 2 a day.

I was curious if I should still add a sublingual B12 a few times a week. My B12 level was 357 which is well in "normal" range according to my primary dr who tested me but according to my celiac dr, is way lower than it should be!

If you are at all symptomatic, you want the B12 level over 500. You need to take a separate B12 supplement, on an empty stomache, even if you do it sublingual, because most of that goes into your gut via saliva. you can get subliguals in 1-5 mcg per tab.

When you retest, make sure you don't take any for several days before the test.

megaloly Newbie

I just started on B12 today and am hopeful after reading some of the timeframes people posted on one of the neurology boards! I also read this article which mentioned the low cut-off in Europe and Japan is 500. Mom-of -Two, perhaps this is why your docs disagree? Open Original Shared Link

I am within the low-normal range but my neuro suggested I start otc supplements because of the tingling and numbness in my hands. The energy boost and help with mental clarity, which I need :) are kind of a bonus!

I went with pills - the methyl form though - because that is what was available locally. Please let me know how quickly you noticed a difference!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.