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How Do You Know How Long You'Ve Had It?

dube

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dube Contributor
dube
Posted

I'm new to the site and will be going to the doctor this week to discuss my problems. How does a person know how long they have had celiac disease? Are people born with it? Or does certain things make it develope?

I have had problems as a young adult and was told it was IBS...nothing severe. The past several years, more issues have come up and I eventually had my gallbladder out since it was full of stones. I thought maybe that was my issue, now I'm not so sure....I know some people have bowel problems especially after gallbladder surgery, so maybe I'm looking too much into this.

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WheatChef Apprentice
WheatChef
Posted

You most certainly can be born with it, I'm not too sure about developing it later in life though. I think it's more of just a question of how long it takes your body to start responding with some noticeable symptoms. Personally I exhibited symptoms of it at least as far back as grade 4ish.

lizard00 Enthusiast
lizard00
Posted

Yes, you can be diagnosed at a very young age, as in a year or sometimes less, but it can also be developed later in life. My doctor and I believe that I developed it after my son was born, as the stress of pregnancy was the trigger for me.

Surgeries, illnesses, anything that is stressful and traumatic can be the trigger and cause celiac to develop at any point.

Roda Rising Star
Roda
Posted

If I think about it I probably had subtle symptoms of celiac at least as far back as when I was diagnosed with the hashimotos in 2000. The symptoms that started me going to the doctor was when my youngest son was 14 months old (he is 5 now). He had so many food issues when he was a baby that I eliminated so much from my diet to keep him well. After I started reintroducing stuff is when I started my major symptoms. The pregnancy probably triggered it into really flaring up. However I was a very constipated child up until around 5. As a teenager an in my 20's, I had a tendency for constipation and bloating off and on and just would eat more fiber.

Bobbijo6681 Apprentice
Bobbijo6681
Posted

I believe that my "trigger" was having my apendix removed. 6 weeks after that surgery I had my gallbladder removed, but am now thinking that maybe my gallbladder was fine and it was the Celiac causing all of my GI issues. Before having my gallbladder out I had chronic D and severe nausea and pain, however the D never went away after the gallbladder came out but the nausea and pain subsided. The only reason they took out my gallbladder was because on the fuction test it showed that it only functioned at like 12% which was about half of what they consider "normal" and they could find no other reason for my problems. That was almost 4 years ago. I was only diagnosed Celiac about 2 months ago. I had the chronic D everyday for all those years, and thought that it was normal after having my gallbladder out, and NO ONE ever told me that it wasn't supposed to be that way. Everytime I would see a dr about anything they always ask about V or D and I would always say "yep had D since gallbladder came out" and they never questioned it more than that. UNTIL I went in because I had a terrible cold and my family dr wasn't in so I saw another DR in her practice. He was not worried about the cold at all, but was very concerned about the D....I remember thinking "Really after almost 4 years someone is finally worried about it"

Sorry to be so long winded, but just thought I would share my gallbladder issue/Story.

Good Luck and I hope the diet helps!!!

StacyA Enthusiast
StacyA
Posted

You most certainly can be born with it, I'm not too sure about developing it later in life though. I think it's more of just a question of how long it takes your body to start responding with some noticeable symptoms. Personally I exhibited symptoms of it at least as far back as grade 4ish.

Current thought is that celiac disease can be present from childhood or triggered later in life - more commonly in a person's 30s or 40s - from an infection, surgery, childbirth, etc.

There are other diseases that are inherited but often don't manifest until later in life, such as Multiple Sclerosis and schizophrenia.

My celiac's didn't manifest until I was 40. I had MSG sensitivity before then, but my MSG sensitivity is much worse now.

momxyz Contributor
momxyz
Posted

I dont have an official diagnosis, "just" a response to the diet. I think the onset of menopause was the trigger for me... and would be curious if others have had this same experience.

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tarnalberry Community Regular
tarnalberry
Posted

It can be triggered at any time - before/during birth, in infancy, childhood, adolescence, adulthood.

There is no good way to know how long you've had it - just go gluten free so the immune reaction doesn't continue. (You can certainly take a good guess, looking for stressors (including physical ones) that preceded symptoms, but there's no guarantee.)

nutralady2001 Newbie
nutralady2001
Posted

I'm positive I have had it from childhood, undiagnosed then mis-diagnosed as "mucous colitis" and "IBS "............yeah right !

kayo Explorer
kayo
Posted

Just like any other autoimmune illness (arthritis, type 1 diabetes, etc.) you'd have the genetic markers from birth. Often there's a triggering event that kicks the illness 'on'. Some folks can have the genes but never develop the disease or any symptoms. Women tend to have more triggering events than men: menstruation, childbirth, menopause. Hence the numbers of autoimmune illness is greater for women than men.

Now you will see on this site that there are two classic genes associated with celiac, often referred to as 2 and 8, recognized in the US. I don't have either gene but I have RA and Sjogrens. The presence of one autoimmune illness increases the chances of developing another. They tend to cluster in families. Other people in my family have RA and type 1 diabetes. There's a good chance they could have celiac as well.

There has been some research that identifies other genes to celiac but so far I haven't found which genes those are, just that they have been discovered.

Mskedi Newbie
Mskedi
Posted

I think I've had mild symptoms my whole life (gut-aches after eating, anemia, and insomnia).

In the last six years I started having noticeable GI problems, but it was such a gradual development, I just chalked it up to getting older (I feel kind of stupid about that now). Then when I started working on my MS while teaching full time, everything got so out of control I couldn't function. I believe that the stress I put on myself was my trigger, but, to be honest, I'm glad that happened, because if it hadn't I'd still have these gradually worsening symptoms that I'd be brushing off.

Now I feel better than I have... ever. I've never gotten such solid sleep, and I can't remember a time when eating wasn't followed by at least some mild pain. I feel so good now, in fact, that it's hard to believe just how crappy I felt before. It's a good thing I keep a diary!

nutralady2001 Newbie
nutralady2001
Posted

I'm positive I have had it since I was a child and misdiagnosed until I was around 58 as first "mucous colitis" then "IBS".

Brookesmom Newbie
Brookesmom
Posted

I believe mine expressed itself (noticeably, anyways) after my last pregnancy and the birth, being a c-section surgery, and moving out of state when he was just turning one year old, while the whole family had the flu. My thyroid and adrenals crashed pretty hard too. yikes. That was 3 years ago.

summerteeth Enthusiast
summerteeth
Posted

I'm positive I have had it from childhood, undiagnosed then mis-diagnosed as "mucous colitis" and "IBS "............yeah right !

Same here... I heard "IBS" constantly, but I finally saw a doctor who thought a bit outside of the box.

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