Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Celiac Teens Out There?


kellyisfresh

Recommended Posts

kellyisfresh Newbie

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 77
  • Created
  • Last Reply
runningcrazy Contributor

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

Hi! Im 14 and I've had it like 8 months now.. it sucks! But its great to know there are others out there...!! Whats up??:)

RideAllWays Enthusiast

I'm 19, been diagnosed for a year now :) Anybody in BC, Canada? I'd really like to meet some Celiacs, I feel so alone..

Gfresh404 Enthusiast

19 - from MA.

I have to say I know how all you guys feel. But I think eventually, I just realized - that we are ALL actually alone. I know that sounds kind of depressing, but it's true. And it certainly does not have to be depressing. After I accepted that, I was actually happier than before I had come to that realization.

By becoming more independent and improving myself - I became more attractive than I've ever been. That in turn boosted my self-confidence, which in turn boosted my happiness.

I know a lot of issues seem to be tied to gluten at first, but eventually you'll realize - a lot of them are just life's problems. And I know it's especially hard for teenagers since most of us are kind of confused anyway (I know I was!) but things do get better. I can promise you that. I have only been gluten-free for 1 year and 3 months and the changes over the past 6 months have been absurd.

gintare519 Newbie

Hi, I'm Kelly. I've been a celiac for about eight years now. I've never had a friend with it, so I was hoping to meet some teens on here that also have Celiac's. (:

Hey! Well I'm Gintare. Normally referred as Gina. I actually have had it since about 5th grade. I remember I went to the ER multiple multiple times due to severe abdominal pain. Not one doctor knew what it was. So I recently started to do some research on my own. And I have come across "celiac disease". It sounded JUST like what I have been phasing with. So actually, just about 2 weeks ago, I went to get tested for the disease. It turns out I have it. Not to mention, I am also lactose intolerant and vegan. What a small range of food now! haha. How depressing. I literally look 8 months pregnant at night after I have foods with gluten in it. Its horrible!! XD

kbug Newbie

Gintare me too! My pants won't button at allll... and good luck trying to wear a fitting shirt, right? :lol:

smilie Newbie

Hey! Well I'm Gintare. Normally referred as Gina. I actually have had it since about 5th grade. I remember I went to the ER multiple multiple times due to severe abdominal pain. Not one doctor knew what it was. So I recently started to do some research on my own. And I have come across "celiac disease". It sounded JUST like what I have been phasing with. So actually, just about 2 weeks ago, I went to get tested for the disease. It turns out I have it. Not to mention, I am also lactose intolerant and vegan. What a small range of food now! haha. How depressing. I literally look 8 months pregnant at night after I have foods with gluten in it. Its horrible!! XD

Hi, I'm 12 almost 13 and I started having problems when I was 5 and like you went to ER, Even the famous Cook Children


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
JackPintavalle Newbie

Im from Ct. and im 15 and have had celiac since i was 3

kannne Explorer

I am 19 and have had celiac for 9 years. I am now on SCD diet.

  • 2 weeks later...
Eilidh Newbie

I am 19 and have had celiac for 9 years. I am now on SCD diet.

Hey I'm 17 and I live in B.C. Canada. I've known that I was celiac for 6 years. I live on an island where it is pretty common, because everyone is so intouch with their health. My mom actually runs a gluten-free bakery, so thats sweet, but there are only 2 teens here that know they have it. And I want to meet some more teens who know how it is.

Anyone nearby?

poiuyanthony Newbie

hey hey

i'm 15 and i've had celiac for almost

my names Anthony and i live in QC Canada... anyone else pleaseee contact me

Angels~Exist Newbie

Hey,I'm Kasey 17 yrs old. diagnosed for a year. I promise it gets better!! :lol:

  • 2 weeks later...
Rebecca Madrid Newbie

Rebecca, 19. I self-diagnosed in Feb via diet change. No doctor could help so I just started looking myself. I live in Barrie, ON during the summer months, and in St. John's NL for the school year. Anyone in either province??

Celiacs Mom Newbie

Hi

I am the mom of a 17 year old who diagnosed herself about a month ago after talking to a teacher at her school who had the same problems. My daughter is a competive irish dancer (about 8- 10 hrs practice a week) and has had exercise induced asthma about 10 years and stomach problems all her life. She was told two years ago she definitely had irritable bowel syndrome and to change her diet. Add more fibre they said. She felt somewhat better but couldn't get her exercise induced asthma under control changing from one puffer to another. A top child respirologist had no solution. She would dance in a competition coming off stage doubled over, gasping for air and wanting to throw up. FIVE DAYS without gluten she went in a competition came off stage short of breath because she had worked hard but besides that she was fine. Unbelievable!! She has increased her stamina and doesn't require her puffer nearly as much!

  • 2 weeks later...
dunphy118 Newbie

Hey - My name is Taylor.

I am 19 and i was diagnosed about a week ago!

contact me if you want =]]

bCoy Newbie

Names Brandon, im 18 from New Jersey. I was diagnosed 17 years ago. been on Celiac diet my whole life. Its not bad at all to be honest. im actually the healthiest person in my family lol

G-freegal12 Contributor

Hi!, I'm 13 and in August I will be gluten-free for A WHOLE ENTIRE YEAR (wow) lol :lol:

I am bein' glutend right now... I look like I should be looking at pacifires and maternity shirts...

Hineys <3 Newbie

Heyy Girl! :] I'm Helen. I'm 17! I self diagnosed in January of this year, Almost everyone on my moms side has Celiac and one aunt on my dads does and it still took a year to figure out what it was. I have been gluten free for 6 months now and I'm finding that its really not that hard now that i found amazing pizza!! I live in Kentucky and would LOVE to know some people around here with it! Even if your from other places though, I would love to chat..I'm a talker in case you cant tell! :] Hit me up some time!

Hineys <3 Newbie

My names Helen. Im 17 and was diagnosed january of this year however, I have been suffering with symptoms since May of 2009. I dont know anyone my age thats not family that has Celiac and would love to talk to some people.

  • 2 weeks later...
celiacprincess17 Newbie

Cassidy, 17&1/2.

I was diagnosed 12 years ago. That's before there was "all purpose gluten free flour". Baking was awful.

Actually, that was before decent bread... Our breadmaker made one very lovely doorstop before it was retired.

I like to talk, and answer questions. Oh, and making friends.

So hi (:

  • 3 weeks later...
Lett Newbie

Hi, im 15 (almost 16) years old boy. I was diagnosed with celiac when i was 10 (one day before my 11th birthday, so that was my birthday gift from a doctor, lol)

eeyore Collaborator

I'm 14 -I was diagnosed almost 2 years ago...

  • 1 month later...
Mike7 Newbie

19 - from MA.

I have to say I know how all you guys feel. But I think eventually, I just realized - that we are ALL actually alone. I know that sounds kind of depressing, but it's true. And it certainly does not have to be depressing. After I accepted that, I was actually happier than before I had come to that realization.

By becoming more independent and improving myself - I became more attractive than I've ever been. That in turn boosted my self-confidence, which in turn boosted my happiness.

I know a lot of issues seem to be tied to gluten at first, but eventually you'll realize - a lot of them are just life's problems. And I know it's especially hard for teenagers since most of us are kind of confused anyway (I know I was!) but things do get better. I can promise you that. I have only been gluten-free for 1 year and 3 months and the changes over the past 6 months have been absurd.

Hey, I'm 19 and from MA

Oh and RideAllWays, BC, Canada is where it's at...best city in Canada

Aeva Rookie

Aeva, 18

I've had ongoing stomach issues my whole life. I got unofficially diagnosed a few years ago, gave up with no improvement and have now officially been told (yay bloodwork!) that I am, in fact, gluten intolerant. It's been about 4 months now, and I haven't seen that much improvement yet, although I've got a few other minor health things going on too, which prolly don't help.

Oh, and I live about 20 minutes outside NYC.

Kelly&Mom Rookie

My daughter Kelly (14) was diagnosed about a year ago now and is doing much better although we've added IBS (especially dairy) to the mix of "bad" foods. We were given an amazing gluten-free dessert cookbook and she's been baking up a storm for us! chocolate cheesecake, chocolate pecan pie, brownies, banana cream pie, cakes, cookies..... Yum! She wants to open a bakery! Luckily most of her friends are very understanding and helpful, actually make her gluten-free things or check to see what she can eat for sleep-overs. She's gained weight, has so much more energy and personality! You are not alone and lucky to have gotten diagnosed now. I'm 45 and finally got a diagnosis in Feb. of this year after having stomach issues since I can remember. My mom died of a celiac related cancer so I'm so glad I have a fighting chance!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.