Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination

dhiltonlittle

Recommended Posts

dhiltonlittle Contributor
dhiltonlittle
Posted

just wondering if you all get the same effects from cross contamination as you would eating a whole piece of bread. is it the same reaction either way or is it less depending on how much gluten you're actually exposed to?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

I think this is different for different people. Some report that the tiniest bit of gluten will give them a full-blown response, and others say that their response varies depending on how much gluten they've consumed.

Lgood22573 Rookie
Lgood22573
Posted

Full blown for me = all the gastro symptoms, bad stomach pain, bloating, frequent bathroom trips, feel horrible and joint pain.

Tiny bit = just joint pain

It is a bit strange. But I can tell within 15 minutes of ingesting it- my hips start to ache.

juppygirl Newbie
juppygirl
Posted

I get major symptoms from tiny amounts including some 'safe - less than 20ppmillion' items and am just really sensitive :angry:

dilettantesteph Collaborator
dilettantesteph
Posted

I get major symptoms from tiny amounts including some 'safe - less than 20ppmillion' items and am just really sensitive :angry:

Me too. I get sick of always cooking from scratch, but I got more sick of getting glutened.

buffettbride Enthusiast
buffettbride
Posted

I get major symptoms from tiny amounts including some 'safe - less than 20ppmillion' items and am just really sensitive :angry:

So does my daughter.

bluebonnet Explorer
bluebonnet
Posted

i felt just as horrible after a cross contamination from eggs and a grill and then a different occassion accidentally tasting a bite of something with gluten. i got ibs for a week and my joint pain got intense. not to mention sleep/insomnia worse. and it seems like it is harder to recover from these incidents. i don't understand it. :(

feeling like i did just from a small amount makes me way to scared to eat something like a slice of pizza or donut. yikes!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


i-geek Rookie
i-geek
Posted

It's a sliding scale for me. If I eat, say, a piece of bread, within 90 minutes I will have a migraine and such exhaustion that I will want to pass out, followed by several days of fatigue and GI issues. If I get CC'd, I can tell pretty quickly (I get a tightening in my throat while eating gluten followed by racing pulse, regardless of the amount) but the headache and other symptoms might take 24 hours to set in and generally aren't as debilitating.

Edit: I should clarify that I am no longer knowingly eating gluten and have not since 12/27/09 when I ate a piece of special holiday bread at the in-laws' and ended up with mouth sores so painful that it hurt to talk (on top of the other symptoms). The month of December 2009 was spent experimenting with stretches of on/off gluten and cataloging my symptoms, since the doctor I was seeing proved to be less than helpful (no surprise, I've had the same experience for 15 years). I'm actually afraid that, considering how bad my reactions were getting those last few months even while I was still consuming gluten semi-regularly, a big deliberate intake now might put me in the hospital. Cheating would so not be worth it and I'm not willing to find out how bad it could get.

Hawaii78 Newbie
Hawaii78
Posted

It's a sliding scale for me. If I eat, say, a piece of bread, within 90 minutes I will have a migraine and such exhaustion that I will want to pass out, followed by several days of fatigue and GI issues. If I get CC'd, I can tell pretty quickly (I get a tightening in my throat while eating gluten followed by racing pulse, regardless of the amount) but the headache and other symptoms might take 24 hours to set in and generally aren't as debilitating.

i-geek - I get almost the exact same symptoms as you. If I eat some wheat or gluten, I will have some small stomach pains within 30 min. to a few hours, but they go away. Then after around 6 to 8 hours, more stomach pains followed by shallow breathing, sometimes racing heart beats, really bad headaches, and all of a sudden have to take a crap right away. But aren't some of these anaphylactic characteristics, too? According to what I've read online, these can be fatal. I hope to be tested for these some time soon, and I'm wondering if I need to carry around an epi-pen. I sometimes get the throat tightening after eating a product containing peanuts. Stay well, and be safe!

i-geek Rookie
i-geek
Posted

i-geek - I get almost the exact same symptoms as you. If I eat some wheat or gluten, I will have some small stomach pains within 30 min. to a few hours, but they go away. Then after around 6 to 8 hours, more stomach pains followed by shallow breathing, sometimes racing heart beats, really bad headaches, and all of a sudden have to take a crap right away. But aren't some of these anaphylactic characteristics, too? According to what I've read online, these can be fatal. I hope to be tested for these some time soon, and I'm wondering if I need to carry around an epi-pen. I sometimes get the throat tightening after eating a product containing peanuts. Stay well, and be safe!

You know, I wonder sometimes about allergy (I don't doubt I have intestinal intolerance, based on chronic symptoms leading up to going gluten-free indicating intestinal damage that have since begun to resolve). Back in December when I was trying to figure all of this out, I broke a gluten fast with a slice of homemade pizza (with extra flour all over the crust) and had an immediate allergic reaction (eyes/mouth/throat itching, sneezing, etc.). I blamed it on the new Christmas candle we'd bought earlier that day, but I'd been sitting on the sofa within a few feet of said candle for at least an hour before dinner and had no problems until that first bite of pizza. Now I'm wondering if it wasn't flour inhalation, especially since I've not had a reaction like that since. Thanks for the reminder. I hope you get some answers for your allergies.

sandsurfgirl Collaborator
sandsurfgirl
Posted

I have only been gluten free for a couple of months and I don't ever intend on cheating. But I have been accidentally glutened a couple of times and I got a short bout of symptoms lasting a few hours. I guess I'm blessed that I don't get sick for days, but I do know that it could change in the future. I hope I don't get glutened again but I know that it's always a possibility.

1morething Explorer
1morething
Posted

I was like you when I first started on the gluten free diet. Few symptoms, mild reactions to gluten. But now, 18 months into the gluten free journey, the symptoms are immediate and last up to a week. I don't understand why we get worse as we heal....is that typical??

Shannonlass Apprentice
Shannonlass
Posted

My consultant told me that the amount of antibody your body produces in response to gluten is directly proportional to how much gluten (i.e. the antigen) that your body is exposed to. So if you get a few crumbs by CC, in theory (unless you are EXTREMELY sensitive) the reaction should be a lot milder then if you were to say consume a slice of bread. I am a biochemist by profession so this makes perfect sense to me but I wanted it confirmed by the expert. Our bodies are not designed to be wasteful. They will not invest resources to produce a huge amount of antibody unnecessarily.

Jestgar Rising Star
Jestgar
Posted

However the degree to which everyone reacts to the amount of antibody may not be the same.

i-geek Rookie
i-geek
Posted

However the degree to which everyone reacts to the amount of antibody may not be the same.

'Tis true, and the isotype of antibody matters too, because that affects which effector cells are acting in the inflammatory process. So it's also dependent on which and how many inflammatory cells one has in the gut.

kayo Explorer
kayo
Posted

I was cc'd the other night by some Spanish rice and there were some clues about 30 minutes after eating it - rumbling stomach, 'hunger' pangs, inability to satiate my hunger. Then around 4 am the pain woke me up and I had the Big D for about an hour and cramps for an hour after that. My stomach is still bloated and tender/sore but no other symptoms. I've been taking Pepcid AC to help with the bloating and eating very carefully and as close to the Earth as possible. I haven't purposefully eaten gluten since going gluten-free so I'm not sure how I'd react if I were to have a piece of bread. I have walked into a restaurant where they have a pizza making area with grille and I had an immediate allergic reaction - sinus congestion, watery eyes, scratchy throat. S far as I know I don't have wheat allergy. Previous skin tests came up negative but I do wonder if I have developed one since.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    2. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    3. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

      What exactly are you taking from doterra?
    5. Xravith
      - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,463
    • Most Online (within 30 mins)
      7,748
    The Yellow Rose
    Newest Member
    The Yellow Rose
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      What exactly are you taking from doterra? 
    • Xravith
      Challenges eating gluten before biopsy

      By Xravith · Posted

      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.