Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness


masterjen

Recommended Posts

masterjen Explorer

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LB1983 Newbie

I have had Celiacs for over two years. My diet had to change dramatically!!! I lost over 80lbs in 6 months. I have always been small..so when I got fat it was a shocker! I had celiacs my entire life but the loss of my dad triggered its bad self! I had severe atrophy for months after I went on the gluten-free diet! I could't do the smallest things like walk alot or get up n down. It got better after time and you have to push yourself...but not too hard. The headaches..well...I still have them!! I'm only 26 and I've had a rough 2 years. I have headaches...stomach pains...@ times due to the gluten-free diet. It's hard!! I was in nursing when i got so sick. The celiacs threw me into hypothyroid disease, irreg. heart beat, fibromyalgia, and non-specified lupus. It stinks....

quote name='masterjen' date='22 March 2010 - 07:43 AM' timestamp='1269272614' post='600090']

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!

Fozzie Newbie

I am also one month into this diet and I also experience muscle weakness and a low grade headache with brain fog. It is improving with the dieet and two 45 min walks per day. Tomorrow I am going for acupuncture hoping that it will improve my current state of health. hang in there. :rolleyes:

Reba32 Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

i-geek Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

Those were my first impressions, too: either not enough calorie intake or a nutrient deficiency. I find that if I don't eat a big enough lunch with enough fat and protein, I get headaches and sometimes I get the shakes. For me, it's usually a blood sugar crash and resolves when I increase food intake. In fact, I'd better eat a big meal tonight since I had salad and yogurt for lunch and I've got a pounding headache now (different from a gluten migraine, but still not fun).

Reba32 Rookie

yeah, if I haven't had enough to eat I get the shakes and muscle weakness. Particularly in my legs. And then I start to feel nauseous. If I don't allow myself to get hungry, I don't get these symptoms. And fasting blood sugar tests have all come up with blood glucose in the normal range. I usually have to eat every 3 hours or so.

  • 10 months later...
hanumandrea Newbie

Hello,

youve probably resolved your issue by now, but I wanted to add for the record:

I have experienced muscle weakness for the last 3-4 years if I do not eat enough protein. Just discovered my gluten intolerance a few months ago after 3 years of infertility and early onset osteoporosis. If I do not eat protein (in adequate amounts)at lunch and dinner, I get shaky and weak for 30 minutes to hours afterward. Fortunately I do not htink this is as severe as it is for some, but possibly related to malabsorption of protein. I look forward to learning more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Freesoul999 Newbie

Hi there :) I've been gluten free for about 2 years. Please take heed! This could save you years of heart ache! Often, when people switch from wheat.. they go to corn and rice. These are no good for you, and could very well be causing you muscle weakness, as they do me. Please go to www.marksdailyapple.com and click on 'success stories'. or google Mark Sisson. on top of that I'd be getting a fructose malabsorption breath test and an igG allergy test (210 foods test). If you need help finding info, drop me a line. Good luck!

p.s. my best friend is having amazing results with this, and when I eat like this I feel on top of the world.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,319
    • Most Online (within 30 mins)
      7,748

    Durinda-lee
    Newest Member
    Durinda-lee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NoGlutenCooties
      For anyone looking for a great place to eat near Wilmington, DE, I did not find anyplace in Wilmington that looked like they could do safe gluten free. I was also there on a Sunday and most places are closed on the weekends. However, I found a really great place in Newark, DE - just 20min away.  It's Ted's Montana Bar and Grill and it was absolutely amazing! They have a great gluten free menu and they really understand about keeping things from being cross contaminated. They had the best Bison burgers and hand-cut fries.  Yes, in a separate frier, of course. My friend got the gluten free bun and she said it was really good. Ted's Montana Bar and Grill is also a chain, with several locations across the country.  If you happen to be near one, I highly recommend them.
    • Mari
      I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body does not use words it uses biochemistry and electric interactions. Celiac disease is not a killer disease so you are not going to die in the near future if you get glutened.  It can be a disabling problem unless you stay gluten free. For OCD attacks I have used spearmint or peppermint teas to relax. I also sitorlay down , relax as much as possible and review what I have been eating for the last few days and can usually identify that I have been eating too much of something and not enough of other foods that would balance my body. My body may have become too acid when it needs to be slightly alkaline. For me this means eating more vegetables and less starches and proteins. There are some websites that will list acid forming foods and alkaline forming food and many foods that are in between. Just admit that you are anxious about gluten being present in foods and anything that is used to prepare foods or even in your environment. When you eat anything that makes you anxious take a capsule of an anti-gliadin enzyme. I use a brand called GliadinX. It works in the stomach and will break down small amounts of gluten. Look up online the amount of plain water your body height and weight needs every day. Two years ago I was 5' 4" and weighed 100 lbs and needed 48 oz. every day.  Even if you can't drink the full amount if you just drink more water you will notice some improvement in your digestive system.  That's enough for tonight and it's way past my bedtime. Don't hesitate to ask more question or ask for more information.       
    • Scott Adams
      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
×
×
  • Create New...